Matches in SemOpenAlex for { <https://semopenalex.org/work/W2973268065> ?p ?o ?g. }
Showing items 1 to 90 of
90
with 100 items per page.
- W2973268065 endingPage "181" @default.
- W2973268065 startingPage "174" @default.
- W2973268065 abstract "Recent interest in personalized medicine has highlighted the importance of research in ethical, legal, and social issues (ELSI). Issues in ELSI research may be magnified in the rare diseases population (i.e., small numbers of affected individuals, challenges in maintaining confidentiality, and paucity of treatments for diseases where natural history information may be limited). More than other areas of research, potential barriers include the lack of funding opportunities and appropriate review processes for applications to funding agencies. The ELSI Working Group of the International Rare Diseases Research Consortium (IRDiRC) performed an informal survey on ELSI funding initiatives to learn more about different funding mechanisms and to identify potential gaps in funding opportunities. The Working Group discusses these challenges and highlights the role of funding agencies and partners such as patient advocacy groups, specialists in social sciences and humanities, and clinicians to advance ELSI research in rare diseases." @default.
- W2973268065 created "2019-09-26" @default.
- W2973268065 creator A5002322936 @default.
- W2973268065 creator A5028172563 @default.
- W2973268065 creator A5028571678 @default.
- W2973268065 creator A5059884371 @default.
- W2973268065 creator A5061458935 @default.
- W2973268065 creator A5081134242 @default.
- W2973268065 date "2019-09-19" @default.
- W2973268065 modified "2023-10-18" @default.
- W2973268065 title "Ethical, legal, and social issues (ELSI) in rare diseases: a landscape analysis from funders" @default.
- W2973268065 cites W1983965561 @default.
- W2973268065 cites W2007833428 @default.
- W2973268065 cites W2035915394 @default.
- W2973268065 cites W2076005227 @default.
- W2973268065 cites W2108260468 @default.
- W2973268065 cites W2116655074 @default.
- W2973268065 cites W2124257155 @default.
- W2973268065 cites W2134468845 @default.
- W2973268065 cites W2204701197 @default.
- W2973268065 cites W2267520375 @default.
- W2973268065 cites W2313087036 @default.
- W2973268065 cites W2571094594 @default.
- W2973268065 cites W2578037138 @default.
- W2973268065 cites W2618933986 @default.
- W2973268065 cites W2739122096 @default.
- W2973268065 cites W2743245152 @default.
- W2973268065 cites W2808273159 @default.
- W2973268065 cites W2886173545 @default.
- W2973268065 cites W2887102207 @default.
- W2973268065 cites W2890454147 @default.
- W2973268065 cites W2900632039 @default.
- W2973268065 cites W2921153415 @default.
- W2973268065 doi "https://doi.org/10.1038/s41431-019-0513-3" @default.
- W2973268065 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/6974597" @default.
- W2973268065 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/31537898" @default.
- W2973268065 hasPublicationYear "2019" @default.
- W2973268065 type Work @default.
- W2973268065 sameAs 2973268065 @default.
- W2973268065 citedByCount "9" @default.
- W2973268065 countsByYear W29732680652019 @default.
- W2973268065 countsByYear W29732680652020 @default.
- W2973268065 countsByYear W29732680652021 @default.
- W2973268065 countsByYear W29732680652022 @default.
- W2973268065 countsByYear W29732680652023 @default.
- W2973268065 crossrefType "journal-article" @default.
- W2973268065 hasAuthorship W2973268065A5002322936 @default.
- W2973268065 hasAuthorship W2973268065A5028172563 @default.
- W2973268065 hasAuthorship W2973268065A5028571678 @default.
- W2973268065 hasAuthorship W2973268065A5059884371 @default.
- W2973268065 hasAuthorship W2973268065A5061458935 @default.
- W2973268065 hasAuthorship W2973268065A5081134242 @default.
- W2973268065 hasBestOaLocation W29732680651 @default.
- W2973268065 hasConcept C127413603 @default.
- W2973268065 hasConcept C17744445 @default.
- W2973268065 hasConcept C199539241 @default.
- W2973268065 hasConcept C2986663376 @default.
- W2973268065 hasConcept C39549134 @default.
- W2973268065 hasConcept C55587333 @default.
- W2973268065 hasConcept C71745522 @default.
- W2973268065 hasConceptScore W2973268065C127413603 @default.
- W2973268065 hasConceptScore W2973268065C17744445 @default.
- W2973268065 hasConceptScore W2973268065C199539241 @default.
- W2973268065 hasConceptScore W2973268065C2986663376 @default.
- W2973268065 hasConceptScore W2973268065C39549134 @default.
- W2973268065 hasConceptScore W2973268065C55587333 @default.
- W2973268065 hasConceptScore W2973268065C71745522 @default.
- W2973268065 hasIssue "2" @default.
- W2973268065 hasLocation W29732680651 @default.
- W2973268065 hasLocation W29732680652 @default.
- W2973268065 hasLocation W29732680653 @default.
- W2973268065 hasOpenAccess W2973268065 @default.
- W2973268065 hasPrimaryLocation W29732680651 @default.
- W2973268065 hasRelatedWork W1533191804 @default.
- W2973268065 hasRelatedWork W2006941205 @default.
- W2973268065 hasRelatedWork W2078399708 @default.
- W2973268065 hasRelatedWork W2135375308 @default.
- W2973268065 hasRelatedWork W2186987036 @default.
- W2973268065 hasRelatedWork W2230051042 @default.
- W2973268065 hasRelatedWork W2932032427 @default.
- W2973268065 hasRelatedWork W3029902755 @default.
- W2973268065 hasRelatedWork W797245538 @default.
- W2973268065 hasRelatedWork W8504243 @default.
- W2973268065 hasVolume "28" @default.
- W2973268065 isParatext "false" @default.
- W2973268065 isRetracted "false" @default.
- W2973268065 magId "2973268065" @default.
- W2973268065 workType "article" @default.