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• W2977058412 abstract "Deciding whether to undergo fertility preservation treatment prior to initiating cancer treatment is a complex personal decision. Patient decision aids have been proposed to help women navigate these decisions by providing up-to-date, balanced information and helping women clarify how they value key factors in their decision. The objective of this study was to compare female cancer patients’ decision-making values (i.e., the importance of 10 key factors) and treatment preferences with and without the use of the Pathways patient decision aid website. Randomized Controlled Trial Pathways – a fertility preservation patient decision aid website for women with cancer explains the risk of cancer-related infertility and describes fertility preservation treatments (tailored by cancer type) and other family-building options. It also provides structured decision-making activities to help women personalize the information and prepare to discuss the options with their providers. Thirty newly-diagnosed reproductive-age women were randomized to view Pathways or standard educational brochures, then rate how important 10 patient-identified key factors were in their decision (“Not Sure”, or from 0 = Not Important to 10 = Very Important) and to indicate their treatment preferences. At 2 months, women indicated whether they had completed a fertility preservation treatment. Among the 10 factors, women rated Avoiding regret about my decision, Starting my cancer treatment as soon as possible, and Being able to genetically screen my future child for cancer as most important in their decision-making (9.4, 9.2, and 7.5 out of 10). As expected, decision-making values were highly individual and no systematic differences were observed between groups. Women who viewed the patient decision aid were more confident in their treatment preferences (9.3 versus 8.2 out of 10). All of the women in the control group indicated they were Not Sure or would Wait and See, while half of the women who viewed Pathways chose egg or embryo freezing. However, only 11 women were able to complete the study and only one woman had chosen fertility preservation at 2 months. Interacting with an interactive patient decision aid may help women become more clear and confident in their fertility preservation decisions. It may also help providers assess patients’ values and preferences. However, addressing dissemination challenges may be key in providing timely care for all women." @default.
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• W2977058412 date "2019-09-01" @default.
• W2977058412 modified "2023-10-18" @default.
• W2977058412 title "What is important to women considering fertility preservation before cancer treatment? Comparing decision-making values with and without using the pathways patient decision aid website" @default.
• W2977058412 doi "https://doi.org/10.1016/j.fertnstert.2019.07.486" @default.
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