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• W2980450038 abstract "Recruiting participants for studies on memory loss and cognition remains an ongoing challenge. The Alzheimer's Disease Research Center (ADRC) at the Icahn School of Medicine at Mount Sinai conducted a mailing to evaluate interest in research studies and estimate sample size needed to enroll participants. A general recruitment letter was sent to 15,952 individuals age 65 and over who received care from the Mount Sinai Health System between 2013 and spring 2018. The sample comprised 12,951 (81.2%) individuals who received care for memory concerns; patients diagnosed with dementia or prescribed an acetylcholinesterase inhibitor were excluded. A random age-matched sample of 3,001 (18.8%) individuals without memory concerns was included. Letters were sent in four batches spaced two weeks apart between July and September 2018. Individuals could contact the ADRC directly using a dedicated phone number or email address. A returnable mailing slip and prepaid envelope were included allowing individuals to confirm or deny interest in being contacted by the ADRC about research opportunities. As of January 2019, 113 individuals contacted the ADRC directly by phone or email (23 enrolled, 3 scheduled, 23 ineligible for trials or biomarker studies, 40 not interested, 24 did not follow up after three contacts). Average time from date of mailing to initial contact was 16.7 days. A total of 42.3 hours was logged contacting these 113 individuals, averaging 1.84 hours to enroll one participant. Notably, two individuals who contacted the ADRC and enrolled in a study did not receive the mailing themselves. Additionally, 829 mailing slips have been returned, with 614 interested in more information and 215 not interested. Among those interested, 236 preferred contact by email, 203 by phone, and 175 by mail. Current enrollment rate from the mailing is 0.14%, suggesting 693 individuals need to be reached to enroll one participant. 1.60% of all mailing recipients expressed no interest in further contact. Preliminary findings represent the first nine months of outreach to a medically serviced population. Future work will compare enrollment rates by method of response to improve efficacy of communication about memory and aging research within the community." @default.
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• W2980450038 date "2019-07-01" @default.
• W2980450038 modified "2023-09-27" @default.
• W2980450038 title "P1-547: MAILING OUTREACH FOR PARTICIPATION IN COGNITIVE IMPAIRMENT AND ALZHEIMER'S DISEASE RESEARCH" @default.
• W2980450038 doi "https://doi.org/10.1016/j.jalz.2019.06.1152" @default.
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