Matches in SemOpenAlex for { <https://semopenalex.org/work/W2980652077> ?p ?o ?g. }
Showing items 1 to 75 of
75
with 100 items per page.
- W2980652077 abstract "Introduction A more coordinated haemoglobinopathy screening is desired across European countries1. A non-funded pilot screening programme was implemented in six Irish maternity units in 20052. It aims to identify patients with haemoglobinopathies such as sickle cell disease and thalassemia, by screening patients from high-risk ethnic origins. As screening involves identifying disease carriers, ensuring informed consent is vital. Since the introduction of an electronic healthcare record in the Rotunda hospital in November 2017, patients no longer sign consent forms before blood samples are taken. Attendance rates at haematology clinics are poor, it is proposed that this is due to lack of education about screening and lack of early contact with results2. Aim To ensure appropriate information sharing between laboratories. To ensure parents are fully informed of the benefits of screening and that their consent to testing is recorded. To ensure correspondence is sent to all families informing them of positive test results and arranging a follow up appointment with haematology. To establish a successful pilot programme that can be expanded to all other maternity units. Methods A cross-hospital working group was established. Following a literature review, the HSE Change Model was used as an organisational development model2. An information leaflet, a consent form and a letter informing parents of abnormal results were developed. A standard Operating Procedure was agreed which outlines how screening will proceed uniformly across all hospitals. Further Steps These improvement initiatives are being implemented in the Rotunda. An organisational development approach is used to ensure that consent is obtained and positive test results are acted upon. Rates of attendance at haematology OPD will be reviewed following implementation of changes. Following successful implementation, the initiative will be replicated in the other pilot hospitals and ultimately in all maternity hospitals in Ireland. References Lobitz S, Telfer P, Cela E, Allaf B, Angastiniotis M, Backman Johansson C, Badens C, Bento C, Bouva MJ, Canatan D, Charlton M. Newborn screening for sickle cell disease in Europe: recommendations from a Pan-European Consensus Conference. British journal of haematology. 2018 Nov;183(4):648–60. Gibbons C, Geoghegan R, Conroy H, Lippacott S, O’Brien D, Lynam P, Langabeer L, Cotter M, Smith O, McMahon C. Sickle cell disease: time for a targeted neonatal screening programme. Irish medical journal. 2015 Feb 1." @default.
- W2980652077 created "2019-10-25" @default.
- W2980652077 creator A5039436968 @default.
- W2980652077 creator A5053523944 @default.
- W2980652077 creator A5090790915 @default.
- W2980652077 date "2019-06-01" @default.
- W2980652077 modified "2023-09-26" @default.
- W2980652077 title "P154 Improving the haemoglobinopathy screening programme for high-risk patients in a tertiary maternity hospital in dublin, a pilot quality improvement initiative" @default.
- W2980652077 doi "https://doi.org/10.1136/archdischild-2019-epa.509" @default.
- W2980652077 hasPublicationYear "2019" @default.
- W2980652077 type Work @default.
- W2980652077 sameAs 2980652077 @default.
- W2980652077 citedByCount "0" @default.
- W2980652077 crossrefType "proceedings-article" @default.
- W2980652077 hasAuthorship W2980652077A5039436968 @default.
- W2980652077 hasAuthorship W2980652077A5053523944 @default.
- W2980652077 hasAuthorship W2980652077A5090790915 @default.
- W2980652077 hasBestOaLocation W29806520771 @default.
- W2980652077 hasConcept C142724271 @default.
- W2980652077 hasConcept C151730666 @default.
- W2980652077 hasConcept C162324750 @default.
- W2980652077 hasConcept C187212893 @default.
- W2980652077 hasConcept C187736073 @default.
- W2980652077 hasConcept C198783460 @default.
- W2980652077 hasConcept C204787440 @default.
- W2980652077 hasConcept C2777267654 @default.
- W2980652077 hasConcept C2778173179 @default.
- W2980652077 hasConcept C50522688 @default.
- W2980652077 hasConcept C512399662 @default.
- W2980652077 hasConcept C68122502 @default.
- W2980652077 hasConcept C71405471 @default.
- W2980652077 hasConcept C71924100 @default.
- W2980652077 hasConcept C86803240 @default.
- W2980652077 hasConceptScore W2980652077C142724271 @default.
- W2980652077 hasConceptScore W2980652077C151730666 @default.
- W2980652077 hasConceptScore W2980652077C162324750 @default.
- W2980652077 hasConceptScore W2980652077C187212893 @default.
- W2980652077 hasConceptScore W2980652077C187736073 @default.
- W2980652077 hasConceptScore W2980652077C198783460 @default.
- W2980652077 hasConceptScore W2980652077C204787440 @default.
- W2980652077 hasConceptScore W2980652077C2777267654 @default.
- W2980652077 hasConceptScore W2980652077C2778173179 @default.
- W2980652077 hasConceptScore W2980652077C50522688 @default.
- W2980652077 hasConceptScore W2980652077C512399662 @default.
- W2980652077 hasConceptScore W2980652077C68122502 @default.
- W2980652077 hasConceptScore W2980652077C71405471 @default.
- W2980652077 hasConceptScore W2980652077C71924100 @default.
- W2980652077 hasConceptScore W2980652077C86803240 @default.
- W2980652077 hasLocation W29806520771 @default.
- W2980652077 hasOpenAccess W2980652077 @default.
- W2980652077 hasPrimaryLocation W29806520771 @default.
- W2980652077 hasRelatedWork W1569075311 @default.
- W2980652077 hasRelatedWork W1971917516 @default.
- W2980652077 hasRelatedWork W1984731515 @default.
- W2980652077 hasRelatedWork W1992136634 @default.
- W2980652077 hasRelatedWork W2163302243 @default.
- W2980652077 hasRelatedWork W2163940174 @default.
- W2980652077 hasRelatedWork W2216629082 @default.
- W2980652077 hasRelatedWork W2324843074 @default.
- W2980652077 hasRelatedWork W2329468925 @default.
- W2980652077 hasRelatedWork W2329679882 @default.
- W2980652077 hasRelatedWork W2404159748 @default.
- W2980652077 hasRelatedWork W2750737486 @default.
- W2980652077 hasRelatedWork W2756076335 @default.
- W2980652077 hasRelatedWork W2765511911 @default.
- W2980652077 hasRelatedWork W2905394388 @default.
- W2980652077 hasRelatedWork W3005547544 @default.
- W2980652077 hasRelatedWork W3020631829 @default.
- W2980652077 hasRelatedWork W3041529238 @default.
- W2980652077 hasRelatedWork W3113368774 @default.
- W2980652077 hasRelatedWork W3117485085 @default.
- W2980652077 isParatext "false" @default.
- W2980652077 isRetracted "false" @default.
- W2980652077 magId "2980652077" @default.
- W2980652077 workType "article" @default.