Matches in SemOpenAlex for { <https://semopenalex.org/work/W2989697029> ?p ?o ?g. }
Showing items 1 to 87 of
87
with 100 items per page.
- W2989697029 abstract "Background with rationalePatient registers and electronic health records are both valuable resources for disease surveillance but can be limited by variation in data quality over time. Variation may stem from changes in data collection methods, in the accuracy or completeness of clinical information, or in the quality of patient identifiers and the linkage that relies on these.
 Main AimBy linking the National Down Syndrome Cytogenetic Register (NDSCR) to Hospital Episode Statistics for England (HES), we aimed to assess the quality of each and establish a consistent approach for analysis of trends in prevalence of Down’s syndrome among live births in England.
 Methods/ApproachProbabilistic record linkage of NDSCR to HES for the period 1998–2013, supported by linkage of babies to mothers within HES. Comparison of prevalence estimates in England using NDSCR only, HES data only, and linked data. Capture-recapture analysis and quantitative bias analysis were used to account for potential errors, including false positive diagnostic codes, unrecorded diagnoses, and linkage error.
 ResultsAnalyses of single-source data indicated increasing live birth prevalence of Down’s syndrome, particularly steep in analysis of HES. Linked data indicated a contrastingly stable prevalence of 12.3 cases per 10,000 live births, with a plausible range of 11.6–12.7 cases per 10,000 live births allowing for potential errors.
 Conclusion Case ascertainment in NDSCR improved slightly over time, creating a picture of slowly increasing prevalence. The emerging epidemic suggested by HES primarily reflects improving linkage within HES (assignment of unique patient identifiers to hospital episodes). Administrative data are valuable but trends should be interpreted with caution, and with assessment of data quality over time. Linked data with quantitative bias analysis can provide more robust estimation and, in this case, reassurance that prevalence of Down’s syndrome is not increasing. Routine linkage of administrative and register data can enhance the value of each." @default.
- W2989697029 created "2019-12-05" @default.
- W2989697029 creator A5004861350 @default.
- W2989697029 creator A5005303580 @default.
- W2989697029 creator A5014660498 @default.
- W2989697029 creator A5041576405 @default.
- W2989697029 creator A5071048593 @default.
- W2989697029 date "2019-11-21" @default.
- W2989697029 modified "2023-09-26" @default.
- W2989697029 title "Prevalence three ways: Comparison of linked data from a patient register and electronic health records with allowance for linkage error" @default.
- W2989697029 doi "https://doi.org/10.23889/ijpds.v4i3.1273" @default.
- W2989697029 hasPublicationYear "2019" @default.
- W2989697029 type Work @default.
- W2989697029 sameAs 2989697029 @default.
- W2989697029 citedByCount "0" @default.
- W2989697029 crossrefType "journal-article" @default.
- W2989697029 hasAuthorship W2989697029A5004861350 @default.
- W2989697029 hasAuthorship W2989697029A5005303580 @default.
- W2989697029 hasAuthorship W2989697029A5014660498 @default.
- W2989697029 hasAuthorship W2989697029A5041576405 @default.
- W2989697029 hasAuthorship W2989697029A5071048593 @default.
- W2989697029 hasBestOaLocation W29896970291 @default.
- W2989697029 hasConcept C104317684 @default.
- W2989697029 hasConcept C105795698 @default.
- W2989697029 hasConcept C133462117 @default.
- W2989697029 hasConcept C142210648 @default.
- W2989697029 hasConcept C142724271 @default.
- W2989697029 hasConcept C144024400 @default.
- W2989697029 hasConcept C149923435 @default.
- W2989697029 hasConcept C154504017 @default.
- W2989697029 hasConcept C162324750 @default.
- W2989697029 hasConcept C176217482 @default.
- W2989697029 hasConcept C187212893 @default.
- W2989697029 hasConcept C199360897 @default.
- W2989697029 hasConcept C21547014 @default.
- W2989697029 hasConcept C24756922 @default.
- W2989697029 hasConcept C2779268580 @default.
- W2989697029 hasConcept C2908647359 @default.
- W2989697029 hasConcept C31266012 @default.
- W2989697029 hasConcept C33923547 @default.
- W2989697029 hasConcept C41008148 @default.
- W2989697029 hasConcept C534262118 @default.
- W2989697029 hasConcept C54355233 @default.
- W2989697029 hasConcept C71924100 @default.
- W2989697029 hasConcept C86803240 @default.
- W2989697029 hasConcept C99454951 @default.
- W2989697029 hasConceptScore W2989697029C104317684 @default.
- W2989697029 hasConceptScore W2989697029C105795698 @default.
- W2989697029 hasConceptScore W2989697029C133462117 @default.
- W2989697029 hasConceptScore W2989697029C142210648 @default.
- W2989697029 hasConceptScore W2989697029C142724271 @default.
- W2989697029 hasConceptScore W2989697029C144024400 @default.
- W2989697029 hasConceptScore W2989697029C149923435 @default.
- W2989697029 hasConceptScore W2989697029C154504017 @default.
- W2989697029 hasConceptScore W2989697029C162324750 @default.
- W2989697029 hasConceptScore W2989697029C176217482 @default.
- W2989697029 hasConceptScore W2989697029C187212893 @default.
- W2989697029 hasConceptScore W2989697029C199360897 @default.
- W2989697029 hasConceptScore W2989697029C21547014 @default.
- W2989697029 hasConceptScore W2989697029C24756922 @default.
- W2989697029 hasConceptScore W2989697029C2779268580 @default.
- W2989697029 hasConceptScore W2989697029C2908647359 @default.
- W2989697029 hasConceptScore W2989697029C31266012 @default.
- W2989697029 hasConceptScore W2989697029C33923547 @default.
- W2989697029 hasConceptScore W2989697029C41008148 @default.
- W2989697029 hasConceptScore W2989697029C534262118 @default.
- W2989697029 hasConceptScore W2989697029C54355233 @default.
- W2989697029 hasConceptScore W2989697029C71924100 @default.
- W2989697029 hasConceptScore W2989697029C86803240 @default.
- W2989697029 hasConceptScore W2989697029C99454951 @default.
- W2989697029 hasLocation W29896970291 @default.
- W2989697029 hasOpenAccess W2989697029 @default.
- W2989697029 hasPrimaryLocation W29896970291 @default.
- W2989697029 hasRelatedWork W11079011 @default.
- W2989697029 hasRelatedWork W13435886 @default.
- W2989697029 hasRelatedWork W13666399 @default.
- W2989697029 hasRelatedWork W14413730 @default.
- W2989697029 hasRelatedWork W15523188 @default.
- W2989697029 hasRelatedWork W15790314 @default.
- W2989697029 hasRelatedWork W16928157 @default.
- W2989697029 hasRelatedWork W1789585 @default.
- W2989697029 hasRelatedWork W329239 @default.
- W2989697029 hasRelatedWork W9230873 @default.
- W2989697029 isParatext "false" @default.
- W2989697029 isRetracted "false" @default.
- W2989697029 magId "2989697029" @default.
- W2989697029 workType "article" @default.