Matches in SemOpenAlex for { <https://semopenalex.org/work/W2990148655> ?p ?o ?g. }
Showing items 1 to 60 of
60
with 100 items per page.
- W2990148655 abstract "Ethical issues are common when managing children with complex medical problems. The GOSH Bioethics team (BT) provide four specific areas of support (i) Rapid Case Reviews (R/CR) – a forum for treating teams, researchers, parents/patients to consider ethical challenges; (ii) bioethical education/training; (iii) research into paediatric bioethics and (iv) staff support. The team, independently acknowledged as the leading UK organization in Paediatic Bioethics education (IME) and in innovative ethical review (UKCEN), were awarded the 2018 International Schwager Award for Bioethics. R/CR audit: 63% children> 3 diagnoses; 91% a life–limiting condition; 81% involved > 2 specialties; 57% involved experimental therapies. Respondents highlighted BT expertise and guidance, stating that ‘all parties’ views (including parents) were heard’ and that ‘the ethical issues and child’s best interests were fully addressed.’ Parents considered the ethics process showed the institution ‘truly valued their child.’ Issues have included adolescent consent & confidentiality, organ donation/transplantation and experimental treatments (e.g. CAR–T cells, conjoined–twin surgery and phage therapy) BT deliver an educational program to GOSH professionals, paediatric and other MSC students at UCL–ICH and Kings College and both UK and Erasmus/other international medical and other students. BT run medical student trainings days, end–of–life and ethical simulation sessions. Staff support aims to recognize and prevent moral distress in GOSH teams (pre–reg/other nurses & medical/AHP professionals) by providing routine and drop in support sessions and so improve staff retention and prevent ‘burn out.’ Existing research has produced peer–reviewed publications in Bioethics, JME, Lancet Respiratory and Archives of Diseases in Childhood. BT is (i) developing a collaborative London Paediatric Bioethics colloquium focusing on decision-support, educational forums, peer support and cross-centre guidance AND (ii) with UCL Laws, Philosophy, and Medicine a unique Paediatric Bioethics Centre to initiate and support further high-quality national and international research into key paediatric ethical issues." @default.
- W2990148655 created "2019-12-05" @default.
- W2990148655 creator A5001687494 @default.
- W2990148655 creator A5010081150 @default.
- W2990148655 creator A5031835507 @default.
- W2990148655 creator A5070726404 @default.
- W2990148655 creator A5087356133 @default.
- W2990148655 date "2019-11-01" @default.
- W2990148655 modified "2023-09-24" @default.
- W2990148655 title "10 Supporting ethical issues in the care of the complex child" @default.
- W2990148655 doi "https://doi.org/10.1136/archdischild-2019-gosh.10" @default.
- W2990148655 hasPublicationYear "2019" @default.
- W2990148655 type Work @default.
- W2990148655 sameAs 2990148655 @default.
- W2990148655 citedByCount "0" @default.
- W2990148655 crossrefType "proceedings-article" @default.
- W2990148655 hasAuthorship W2990148655A5001687494 @default.
- W2990148655 hasAuthorship W2990148655A5010081150 @default.
- W2990148655 hasAuthorship W2990148655A5031835507 @default.
- W2990148655 hasAuthorship W2990148655A5070726404 @default.
- W2990148655 hasAuthorship W2990148655A5087356133 @default.
- W2990148655 hasConcept C159110408 @default.
- W2990148655 hasConcept C17744445 @default.
- W2990148655 hasConcept C188084074 @default.
- W2990148655 hasConcept C199539241 @default.
- W2990148655 hasConcept C2780687493 @default.
- W2990148655 hasConcept C509550671 @default.
- W2990148655 hasConcept C512399662 @default.
- W2990148655 hasConcept C54355233 @default.
- W2990148655 hasConcept C71745522 @default.
- W2990148655 hasConcept C71924100 @default.
- W2990148655 hasConcept C86803240 @default.
- W2990148655 hasConceptScore W2990148655C159110408 @default.
- W2990148655 hasConceptScore W2990148655C17744445 @default.
- W2990148655 hasConceptScore W2990148655C188084074 @default.
- W2990148655 hasConceptScore W2990148655C199539241 @default.
- W2990148655 hasConceptScore W2990148655C2780687493 @default.
- W2990148655 hasConceptScore W2990148655C509550671 @default.
- W2990148655 hasConceptScore W2990148655C512399662 @default.
- W2990148655 hasConceptScore W2990148655C54355233 @default.
- W2990148655 hasConceptScore W2990148655C71745522 @default.
- W2990148655 hasConceptScore W2990148655C71924100 @default.
- W2990148655 hasConceptScore W2990148655C86803240 @default.
- W2990148655 hasLocation W29901486551 @default.
- W2990148655 hasOpenAccess W2990148655 @default.
- W2990148655 hasPrimaryLocation W29901486551 @default.
- W2990148655 hasRelatedWork W11940869 @default.
- W2990148655 hasRelatedWork W13327899 @default.
- W2990148655 hasRelatedWork W19726778 @default.
- W2990148655 hasRelatedWork W19930764 @default.
- W2990148655 hasRelatedWork W2423337 @default.
- W2990148655 hasRelatedWork W2874505 @default.
- W2990148655 hasRelatedWork W770114 @default.
- W2990148655 hasRelatedWork W7858121 @default.
- W2990148655 hasRelatedWork W921218 @default.
- W2990148655 hasRelatedWork W9422139 @default.
- W2990148655 isParatext "false" @default.
- W2990148655 isRetracted "false" @default.
- W2990148655 magId "2990148655" @default.
- W2990148655 workType "article" @default.