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- W2990501293 abstract "Hansen’s disease or leprosy is one of the stigmatized skin afflictions in human history. The afflictedpersons who are clinically cured often received persisting discrimination and suffer the consequencesof the affliction. Stigmatization, physical restrictions, economic disadvantage and loss of self-dignityare the main elements to be considered in promoting inclusion to these former sufferers. The idea ofsocial inclusion is initiated by World Health Organization in a five-years global elimination programmefor Hansen’s disease, the Global Leprosy Strategy 2016-2020. One of the strategic pillars of theprogramme is to end prejudice and discrimination, and to promote inclusion among the personsaffected by Hansen’s disease. By using an ethnographic approach that involves in-depth interviewsand participant observations, 15 former sufferers and their family members from Kampung SinarBaru, a village settlement in a sub-district of Kuching, Sarawak, Malaysia have been selected. Findingsreveal the impacts of being affected by Hansen’s disease on the lives of the former sufferers and theirfamilies such as having to separate from the family. Despite that, the affected persons have takenpositive initiatives by building their own community in Rajah Charles Brooke Memorial Hospital andeventually, in Kampung Sinar Baru. By highlighting the social impacts of Hansen’s disease, inclusion then can be demonstrated by understanding the contexts and social needs of those experiencing Hansen’s disease as well as changing negative attitudes and perception towards former sufferers. By letting their voices be heard, it will provide awareness in society about the misconceptions ofHansen’s disease, in the hope to build an inclusive society that accepts differences of people." @default.
- W2990501293 created "2019-12-05" @default.
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- W2990501293 date "2019-06-30" @default.
- W2990501293 modified "2023-09-25" @default.
- W2990501293 title "Promoting Social Inclusion: Voices from Persons Affected by Hansen’s Disease" @default.
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- W2990501293 doi "https://doi.org/10.6007/ijarbss/v9-i6/5923" @default.
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