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• W3008097368 abstract "Purpose To gain a better understanding of parental decision making in situations of uncertainty and multidisciplinary care, we explored parents' decision-making experiences while seeking care for their child's vascular anomaly at a multidisciplinary clinic at a large Midwestern children's hospital. Design and methods We collected data using semi-structured interviews with 29 parents after they met with multiple specialists for the care of their child's vascular anomaly. Results The findings revealed parents' attempts to manage decision-related uncertainty about their child's vascular anomaly included seeking information, avoiding information, and seeking support from the specialists. Parents described how information management both facilitated and obstructed decision making. Conclusions Overall, the study reveals several benefits and challenges of making decisions about the management of uncertain childhood conditions, like vascular anomalies, in a multidisciplinary context. The information-rich environment produces information-management dilemmas that challenge parents' decision making efforts. Therefore, parents relied on the support of the team of specialists to make decisions about their child's treatment. Practice implications The study offers practical implications concerning the barriers of autonomy in decision making. Healthcare professionals should acknowledge the potential for parents' to have shifting information and decision-making goals and preferences, and should explicitly support parents throughout the decision-making process." @default.
• W3008097368 created "2020-03-06" @default.
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• W3008097368 date "2020-05-01" @default.
• W3008097368 modified "2023-09-24" @default.
• W3008097368 title "Uncertainty Management and Decision Making: Parents' Experiences During their First Visit to a Multidisciplinary Clinic for their Child's Vascular Anomaly" @default.
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• W3008097368 doi "https://doi.org/10.1016/j.pedn.2020.02.009" @default.
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