Matches in SemOpenAlex for { <https://semopenalex.org/work/W3022961573> ?p ?o ?g. }
Showing items 1 to 81 of
81
with 100 items per page.
- W3022961573 abstract "Background Advance care planning concepts for adults are not directly applicable to the pediatric setting. Aim of the study was to develop a specific pediatric advance care planning (pACP) intervention using a participatory approach. Methods Bereaved parents and healthcare professionals selected by purposeful sampling participated in two transdisciplinary workshops. In the first workshop, discussion groups identified key elements of pACP. In the second, participants organized the key elements and visualized the pACP process on a timeline. Results were systematized, translated into a modular program, and sent back to participants for validation. Results The structured intervention organizes pACP elements in a modular design. First steps include 1) Preparation: building up trustful relationships; 2) Opening discussions: framing the process, making participants’ expectations and aims explicit. The next modules can be arranged in accordance with participants’ priorities: 3) Focusing on the child: quality of life, wishes and hopes; 4) Medical topics: emergency situations and disease-specific crises discussed in hypothetical scenarios; 5) End of life issues: optional. Final steps 6) Concluding discussions: validation of written documents (e.g. parental advance directives), discussion on their implementation; 7) Implementation: informing all relevant stakeholders. Timing (initiation, appropriate intervals, actualization), communication, documentation (emergency and care plans, advance directives, discussion protocols), and age-appropriate participation of children and adolescents are transversal aspects pertaining to the whole process. Conclusion The developed pACP program exhibits a modular design ensuring a structured step-by-step approach as well as a personalized process aimed at meeting the highly individual needs of the child and the family." @default.
- W3022961573 created "2020-05-13" @default.
- W3022961573 creator A5009111856 @default.
- W3022961573 creator A5023470353 @default.
- W3022961573 creator A5026252552 @default.
- W3022961573 creator A5038586084 @default.
- W3022961573 creator A5043166981 @default.
- W3022961573 creator A5071165077 @default.
- W3022961573 date "2019-12-01" @default.
- W3022961573 modified "2023-09-23" @default.
- W3022961573 title "OP44 ‘Like pearls on a string’: Developing a pediatric advance care planning intervention with a step-by-step modular design" @default.
- W3022961573 doi "https://doi.org/10.1136/spcare-2019-acpicongressabs.44" @default.
- W3022961573 hasPublicationYear "2019" @default.
- W3022961573 type Work @default.
- W3022961573 sameAs 3022961573 @default.
- W3022961573 citedByCount "0" @default.
- W3022961573 crossrefType "proceedings-article" @default.
- W3022961573 hasAuthorship W3022961573A5009111856 @default.
- W3022961573 hasAuthorship W3022961573A5023470353 @default.
- W3022961573 hasAuthorship W3022961573A5026252552 @default.
- W3022961573 hasAuthorship W3022961573A5038586084 @default.
- W3022961573 hasAuthorship W3022961573A5043166981 @default.
- W3022961573 hasAuthorship W3022961573A5071165077 @default.
- W3022961573 hasBestOaLocation W30229615731 @default.
- W3022961573 hasConcept C101468663 @default.
- W3022961573 hasConcept C111919701 @default.
- W3022961573 hasConcept C127413603 @default.
- W3022961573 hasConcept C159110408 @default.
- W3022961573 hasConcept C160735492 @default.
- W3022961573 hasConcept C162324750 @default.
- W3022961573 hasConcept C166957645 @default.
- W3022961573 hasConcept C169087156 @default.
- W3022961573 hasConcept C195094911 @default.
- W3022961573 hasConcept C199360897 @default.
- W3022961573 hasConcept C2780665704 @default.
- W3022961573 hasConcept C41008148 @default.
- W3022961573 hasConcept C4438859 @default.
- W3022961573 hasConcept C50522688 @default.
- W3022961573 hasConcept C509550671 @default.
- W3022961573 hasConcept C56666940 @default.
- W3022961573 hasConcept C66938386 @default.
- W3022961573 hasConcept C71924100 @default.
- W3022961573 hasConcept C95457728 @default.
- W3022961573 hasConcept C98045186 @default.
- W3022961573 hasConceptScore W3022961573C101468663 @default.
- W3022961573 hasConceptScore W3022961573C111919701 @default.
- W3022961573 hasConceptScore W3022961573C127413603 @default.
- W3022961573 hasConceptScore W3022961573C159110408 @default.
- W3022961573 hasConceptScore W3022961573C160735492 @default.
- W3022961573 hasConceptScore W3022961573C162324750 @default.
- W3022961573 hasConceptScore W3022961573C166957645 @default.
- W3022961573 hasConceptScore W3022961573C169087156 @default.
- W3022961573 hasConceptScore W3022961573C195094911 @default.
- W3022961573 hasConceptScore W3022961573C199360897 @default.
- W3022961573 hasConceptScore W3022961573C2780665704 @default.
- W3022961573 hasConceptScore W3022961573C41008148 @default.
- W3022961573 hasConceptScore W3022961573C4438859 @default.
- W3022961573 hasConceptScore W3022961573C50522688 @default.
- W3022961573 hasConceptScore W3022961573C509550671 @default.
- W3022961573 hasConceptScore W3022961573C56666940 @default.
- W3022961573 hasConceptScore W3022961573C66938386 @default.
- W3022961573 hasConceptScore W3022961573C71924100 @default.
- W3022961573 hasConceptScore W3022961573C95457728 @default.
- W3022961573 hasConceptScore W3022961573C98045186 @default.
- W3022961573 hasLocation W30229615731 @default.
- W3022961573 hasOpenAccess W3022961573 @default.
- W3022961573 hasPrimaryLocation W30229615731 @default.
- W3022961573 hasRelatedWork W1967959 @default.
- W3022961573 hasRelatedWork W3209676 @default.
- W3022961573 hasRelatedWork W3539361 @default.
- W3022961573 hasRelatedWork W5203002 @default.
- W3022961573 hasRelatedWork W5544266 @default.
- W3022961573 hasRelatedWork W5570359 @default.
- W3022961573 hasRelatedWork W5644185 @default.
- W3022961573 hasRelatedWork W5673372 @default.
- W3022961573 hasRelatedWork W6574812 @default.
- W3022961573 hasRelatedWork W972797 @default.
- W3022961573 isParatext "false" @default.
- W3022961573 isRetracted "false" @default.
- W3022961573 magId "3022961573" @default.
- W3022961573 workType "article" @default.