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- W3024669723 abstract "Objective Non-adherence to pediatric regimens is a common concern. Low health is correlated with poor outcomes in adults but is understudied in pediatrics. The current project aimed to determine the relationship between health literacy, adherence, and outcomes in pediatric liver transplant recipients. Hypotheses included a) parent and patient health would be positively correlated; and b) low patient and/or parent health would be negatively correlated with adherence and health outcomes. Patients and methods Eligible participants were recruited during routine follow-up visits in a pediatric liver transplant clinic. Parents and patients (>13 years old) completed 2 measures of health literacy. Patients ≥18 years completed health measures without corresponding parent surveys. Adherence variables and health outcomes were obtained from medical records. Results Seventy-nine patients across two sites completed the study. Variance in classification of health between measures was observed; however, most parents (82%-100%) scored within an adequate literacy range. More adolescents scored in lower health ranges relative to the parents. Markers of SES were positively correlated with health literacy. Parent health was negatively associated with biopsy-proven rejection episodes and the number of hospitalizations; however, it was not associated with measures of tacrolimus adherence. There were no relationships observed between parent and adolescent health literacy. Conclusions Health is an important consideration in managing patient care; however, available measures demonstrate variability in capturing the skills of patients. Effective communication strategies may ameliorate admittedly small, but negative, impacts of limited health on outcomes." @default.
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- W3024669723 date "2020-05-14" @default.
- W3024669723 modified "2023-10-16" @default.
- W3024669723 title "Health literacy and its association with adherence in pediatric liver transplant recipients and their parents" @default.
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- W3024669723 doi "https://doi.org/10.1111/petr.13726" @default.
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