FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W3025506811> ?p ?o ?g. }

• W3025506811 endingPage "2" @default.
• W3025506811 startingPage "2" @default.
• W3025506811 abstract "In the past few decades, there has been a cultural shift from physician-centered to patient- and family-centered engagement in both health care and research. Patient- and family-centered health care encourages collaboration and shared decision making between patients and families and their health care team. Patients and families are engaged at both the patient and system levels. Likewise, research participants and other community stakeholders are now encouraged to participate alongside of scientists and researchers during all phases of clinical and translational research—from setting the agenda to analyzing the data and disseminating the findings. Despite widespread public support for these changes by all of the various stakeholders, little has been written about how it works in practice. Janvier et al discuss the role of parents and patients post-neonatal intensive care unit discharge (resource parents and patients) in one neonatal unit in Montreal, Canada. Since 2011, 30 resource parents and patients were involved in a total of 643 activities, mostly in clinical care (n = 413), but also in research (n = 209) and teaching (n = 31). Overall, the participation of resource parents and patients was viewed positively by both resource parents and patients and health care providers. Nevertheless, 3 resource parents and patients described reliving traumatic memories during medical simulation and several providers described discomfort with this new form of collaboration. This highlights a limitation reported by the authors regarding the lack of evidence-based training curricula for both resource parents and patients and providers. Until the late 20th century, patients and research participants were passive recipients of care and research interventions. The shift to patient-centered care and community-engaged research ensured that patient and family stakeholders had “a seat at the table,” although their expected roles were often unclear. Janvier et al have gone the next step by describing meaningful engagement of resource parents and patients at various stages of health care delivery, medical education, and research design. Evaluating the impact of resource parents' and patients' engagement on neonatal and family outcomes is the obvious next step. Article page 123 ▶ Beyond a Seat at the Table: The Added Value of Family Stakeholders to Improve Care, Research, and Education in NeonatologyThe Journal of PediatricsVol. 207PreviewTo analyze activities involving veteran resource parents and patients in a family partnership program; their perspectives were also explored. Full-Text PDF" @default.
• W3025506811 created "2020-05-21" @default.
• W3025506811 creator A5068267879 @default.
• W3025506811 date "2019-04-01" @default.
• W3025506811 modified "2023-09-26" @default.
• W3025506811 title "Engaging family stakeholders in post-discharge NICU missions" @default.
• W3025506811 doi "https://doi.org/10.1016/j.jpeds.2019.02.012" @default.
• W3025506811 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/30922494" @default.
• W3025506811 hasPublicationYear "2019" @default.
• W3025506811 type Work @default.
• W3025506811 sameAs 3025506811 @default.
• W3025506811 citedByCount "0" @default.
• W3025506811 crossrefType "journal-article" @default.
• W3025506811 hasAuthorship W3025506811A5068267879 @default.
• W3025506811 hasBestOaLocation W30255068111 @default.
• W3025506811 hasConcept C122637931 @default.
• W3025506811 hasConcept C145420912 @default.
• W3025506811 hasConcept C15744967 @default.
• W3025506811 hasConcept C159110408 @default.
• W3025506811 hasConcept C160735492 @default.
• W3025506811 hasConcept C162324750 @default.
• W3025506811 hasConcept C19417346 @default.
• W3025506811 hasConcept C206345919 @default.
• W3025506811 hasConcept C31258907 @default.
• W3025506811 hasConcept C41008148 @default.
• W3025506811 hasConcept C47177190 @default.
• W3025506811 hasConcept C50522688 @default.
• W3025506811 hasConcept C509550671 @default.
• W3025506811 hasConcept C512399662 @default.
• W3025506811 hasConcept C71924100 @default.
• W3025506811 hasConceptScore W3025506811C122637931 @default.
• W3025506811 hasConceptScore W3025506811C145420912 @default.
• W3025506811 hasConceptScore W3025506811C15744967 @default.
• W3025506811 hasConceptScore W3025506811C159110408 @default.
• W3025506811 hasConceptScore W3025506811C160735492 @default.
• W3025506811 hasConceptScore W3025506811C162324750 @default.
• W3025506811 hasConceptScore W3025506811C19417346 @default.
• W3025506811 hasConceptScore W3025506811C206345919 @default.
• W3025506811 hasConceptScore W3025506811C31258907 @default.
• W3025506811 hasConceptScore W3025506811C41008148 @default.
• W3025506811 hasConceptScore W3025506811C47177190 @default.
• W3025506811 hasConceptScore W3025506811C50522688 @default.
• W3025506811 hasConceptScore W3025506811C509550671 @default.
• W3025506811 hasConceptScore W3025506811C512399662 @default.
• W3025506811 hasConceptScore W3025506811C71924100 @default.
• W3025506811 hasLocation W30255068111 @default.
• W3025506811 hasLocation W30255068112 @default.
• W3025506811 hasOpenAccess W3025506811 @default.
• W3025506811 hasPrimaryLocation W30255068111 @default.
• W3025506811 hasRelatedWork W1606373206 @default.
• W3025506811 hasRelatedWork W2047108272 @default.
• W3025506811 hasRelatedWork W2227517452 @default.
• W3025506811 hasRelatedWork W2354271637 @default.
• W3025506811 hasRelatedWork W2354499381 @default.
• W3025506811 hasRelatedWork W2390008417 @default.
• W3025506811 hasRelatedWork W2899084033 @default.
• W3025506811 hasRelatedWork W4240973838 @default.
• W3025506811 hasRelatedWork W4280579921 @default.
• W3025506811 hasRelatedWork W4322153325 @default.
• W3025506811 hasVolume "207" @default.
• W3025506811 isParatext "false" @default.
• W3025506811 isRetracted "false" @default.
• W3025506811 magId "3025506811" @default.
• W3025506811 workType "article" @default.