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• W3036688099 abstract "ObjectivesPatient-reported outcome measures (PROMs) are widely applied to assess perceived health status. To date, no transplant-specific PROM is available for generating a single, standardized score regarding the health status of transplant recipients. The objective of this study is to generate health items for a new patient-centered PROM for organ recipients: the Transplant PROM (TXP).Study Design and SettingA five-phase, mixed-method approach was applied to identify and select the health items: scoping literature review, expert meetings, focus-group meetings with organ recipients, a special judgmental task within an online survey, and expert meetings for final selection of health items.ResultsBased on a previously published scoping literature review, a first round of expert meetings, and a total of four focus-group meetings with kidney, lung, and liver transplant recipients (N = 18), a list of 83 relevant health items relating to post-transplant life was selected. In an online survey, 183 transplant recipients selected the 10 most important health items from this list. After evaluating the frequency of selected health items and combining items that assess closely related or similar concepts in the second round of expert meetings, nine health items were chosen to be included in TXP: fatigue, skin, worry/anxiety, self-reliance, activities, weight, sexuality, stooling, and memory/concentration.ConclusionThe nine TXP health items reflect the most prominent issues transplant recipients experience. The TXP can be administered by means of a mobile phone app." @default.
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• W3036688099 date "2020-10-01" @default.
• W3036688099 modified "2023-10-13" @default.
• W3036688099 title "Health items with a novel patient-centered approach provided information for preference-based transplant outcome measure" @default.
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• W3036688099 doi "https://doi.org/10.1016/j.jclinepi.2020.06.017" @default.
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