FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W3042063729> ?p ?o ?g. }

• W3042063729 endingPage "1642" @default.
• W3042063729 startingPage "1631" @default.
• W3042063729 abstract "Family caregivers provide the majority of care for people with Parkinson's disease (PD) in the palliative care phase. For many this is a demanding experience, affecting their quality of life.We set out to map the experiences of bereaved family caregivers during the period of informal care in the palliative care phase as well as after the death of their loved one with PD.Ten bereaved family caregivers participated in this qualitative study. Semi-structured interviews were conducted and interpretative phenomenological analysis was used executed.We identified four main themes. 1) Feeling like a professional caregiver: while caring for a person with PD, the family caregivers took over many roles and tasks of the person with PD. 2) Healthcare professionals do not always know what PD really means: most interviewees had negative experiences with knowledge and understanding of PD of, especially, (practice) nurses. 3) Being on your own: many respondents had felt highly responsible for their loved one's care and lacked time and space for themselves. Grief and feelings of guilt were present during the caregiving period and after death. 4) Being behind the times: to provide palliative care in line with patients' preferences and to feel prepared for the palliative care phase of PD, proactive palliative care planning was considered important. However, the interviewees told that this was most often not provided.These findings indicate that caring for a person with PD in the palliative care phase is a demanding experience for family caregivers. They experience psychological problems for many years before and after the death of the person with PD. Increasing healthcare professionals' awareness of family and bereaved caregivers' needs may mitigate these long-term detrimental effects." @default.
• W3042063729 created "2020-07-16" @default.
• W3042063729 creator A5019208882 @default.
• W3042063729 creator A5021291155 @default.
• W3042063729 creator A5023018798 @default.
• W3042063729 creator A5026794760 @default.
• W3042063729 creator A5029338448 @default.
• W3042063729 creator A5046970307 @default.
• W3042063729 creator A5056343723 @default.
• W3042063729 creator A5060766297 @default.
• W3042063729 creator A5062939154 @default.
• W3042063729 date "2020-10-27" @default.
• W3042063729 modified "2023-10-16" @default.
• W3042063729 title "“How Long Can I Carry On?” The Need for Palliative Care in Parkinson’s Disease: A Qualitative Study from the Perspective of Bereaved Family Caregivers" @default.
• W3042063729 cites W150185549 @default.
• W3042063729 cites W1969419495 @default.
• W3042063729 cites W1977542675 @default.
• W3042063729 cites W2000216201 @default.
• W3042063729 cites W2021113404 @default.
• W3042063729 cites W2026850878 @default.
• W3042063729 cites W2030122075 @default.
• W3042063729 cites W2046570091 @default.
• W3042063729 cites W2047763769 @default.
• W3042063729 cites W2049924647 @default.
• W3042063729 cites W2058617385 @default.
• W3042063729 cites W2065025961 @default.
• W3042063729 cites W2093688031 @default.
• W3042063729 cites W2103167096 @default.
• W3042063729 cites W2104922254 @default.
• W3042063729 cites W2121667298 @default.
• W3042063729 cites W2131884901 @default.
• W3042063729 cites W2138664283 @default.
• W3042063729 cites W2140229457 @default.
• W3042063729 cites W2140717464 @default.
• W3042063729 cites W2144244706 @default.
• W3042063729 cites W2145861083 @default.
• W3042063729 cites W2151817400 @default.
• W3042063729 cites W2153350289 @default.
• W3042063729 cites W2162434240 @default.
• W3042063729 cites W2165538120 @default.
• W3042063729 cites W2168498116 @default.
• W3042063729 cites W2170503011 @default.
• W3042063729 cites W2171357832 @default.
• W3042063729 cites W2265884397 @default.
• W3042063729 cites W2316945044 @default.
• W3042063729 cites W2318293923 @default.
• W3042063729 cites W2342170604 @default.
• W3042063729 cites W2407604968 @default.
• W3042063729 cites W2466921826 @default.
• W3042063729 cites W2502071815 @default.
• W3042063729 cites W2526120653 @default.
• W3042063729 cites W2572052623 @default.
• W3042063729 cites W2611080541 @default.
• W3042063729 cites W2729065458 @default.
• W3042063729 cites W2762413879 @default.
• W3042063729 cites W2769683131 @default.
• W3042063729 cites W2792614588 @default.
• W3042063729 cites W2816038251 @default.
• W3042063729 cites W2898643383 @default.
• W3042063729 cites W2941449847 @default.
• W3042063729 cites W2941725546 @default.
• W3042063729 cites W2965968679 @default.
• W3042063729 cites W3017070166 @default.
• W3042063729 cites W4252524792 @default.
• W3042063729 doi "https://doi.org/10.3233/jpd-191884" @default.
• W3042063729 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/32651330" @default.
• W3042063729 hasPublicationYear "2020" @default.
• W3042063729 type Work @default.
• W3042063729 sameAs 3042063729 @default.
• W3042063729 citedByCount "12" @default.
• W3042063729 countsByYear W30420637292021 @default.
• W3042063729 countsByYear W30420637292022 @default.
• W3042063729 countsByYear W30420637292023 @default.
• W3042063729 crossrefType "journal-article" @default.
• W3042063729 hasAuthorship W3042063729A5019208882 @default.
• W3042063729 hasAuthorship W3042063729A5021291155 @default.
• W3042063729 hasAuthorship W3042063729A5023018798 @default.
• W3042063729 hasAuthorship W3042063729A5026794760 @default.
• W3042063729 hasAuthorship W3042063729A5029338448 @default.
• W3042063729 hasAuthorship W3042063729A5046970307 @default.
• W3042063729 hasAuthorship W3042063729A5056343723 @default.
• W3042063729 hasAuthorship W3042063729A5060766297 @default.
• W3042063729 hasAuthorship W3042063729A5062939154 @default.
• W3042063729 hasBestOaLocation W30420637292 @default.
• W3042063729 hasConcept C113470044 @default.
• W3042063729 hasConcept C122980154 @default.
• W3042063729 hasConcept C12713177 @default.
• W3042063729 hasConcept C142724271 @default.
• W3042063729 hasConcept C144024400 @default.
• W3042063729 hasConcept C154945302 @default.
• W3042063729 hasConcept C15744967 @default.
• W3042063729 hasConcept C159110408 @default.
• W3042063729 hasConcept C190248442 @default.
• W3042063729 hasConcept C2778900529 @default.
• W3042063729 hasConcept C2779134260 @default.
• W3042063729 hasConcept C2780837026 @default.
• W3042063729 hasConcept C2780879335 @default.
• W3042063729 hasConcept C2994186709 @default.

• next