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• W3042247811 abstract "Introduction The purpose of this study was to explore communication with health care providers from the perceptions of parents before their child's diagnosis of autism spectrum disorder and provide some examples of how communication may contribute to the autism diagnosis. Method This study used a qualitative descriptive design with multiple individual structured in-person interviews. Results Three themes captured parents’ (n = 8) descriptions of the phases of communication during their children's diagnoses including, (1) anguished questioning, (2) urgently seeking help, and (3) expecting a diagnosis. In addition, three themes characterized the communication style that parents needed, although not always received, in each of the periods of diagnosis including (1) compassionate curiosity, (2) acknowledgment and affirmation, and (3) engagement with parents. Discussion Results point to opportunities for pediatric providers to use a more empathic and engaging communication style during the diagnostic process with better identification of education and support needed by parents and families. The purpose of this study was to explore communication with health care providers from the perceptions of parents before their child's diagnosis of autism spectrum disorder and provide some examples of how communication may contribute to the autism diagnosis. This study used a qualitative descriptive design with multiple individual structured in-person interviews. Three themes captured parents’ (n = 8) descriptions of the phases of communication during their children's diagnoses including, (1) anguished questioning, (2) urgently seeking help, and (3) expecting a diagnosis. In addition, three themes characterized the communication style that parents needed, although not always received, in each of the periods of diagnosis including (1) compassionate curiosity, (2) acknowledgment and affirmation, and (3) engagement with parents. Results point to opportunities for pediatric providers to use a more empathic and engaging communication style during the diagnostic process with better identification of education and support needed by parents and families. Norah Louise Johnson, Associate Professor, College of Nursing, Marquette University, Milwaukee, WI. Wendy Krueger, Clinical Associate Professor, Department of Speech Pathology and Audiology, Marquette University, Milwaukee, WI. Elizabeth Jilek, Student, College of Health Sciences, Marquette University, Milwaukee, WI. Kristin Haglund, Professor, College of Nursing, Marquette University, Milwaukee, WI." @default.
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• W3042247811 date "2020-09-01" @default.
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• W3042247811 title "Conversations With Health Care Providers and Parents Before Autism Diagnosis: A Qualitative Study" @default.
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• W3042247811 doi "https://doi.org/10.1016/j.pedhc.2020.05.002" @default.
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