Matches in SemOpenAlex for { <https://semopenalex.org/work/W3096405437> ?p ?o ?g. }
Showing items 1 to 71 of
71
with 100 items per page.
- W3096405437 abstract "ABSTRACTBackground: Chronic kidney disease (CKD) is a chronic and life-limiting condition with no cure. Family members play a significant, yet often unacknowledged, role in supporting a relative with advanced kidney disease. Aim: This thesis investigates family members’ involvement in their relative’s kidney disease management and treatment choices. Its objectives are: investigate family members’ understanding of CKD and involvement in treatment decisions; identify family members’ support needs; explore the emotional impact on family members and how they made sense of their experiences.Method: Cross-sectional survey design employing semi-structured interviews with seven family members of people with advanced kidney disease. Data was analysed using the qualitative framework approach. Participants’ narratives were also interpreted using the assimilation model.Results: Four overarching concepts emerged from the findings: ‘Uncertainty’, ‘Maintaining a normal life’, ‘Developing an understanding’ and ‘Identifying and meeting needs’. Family members struggled with the uncertainty of their situation. They made sense of their experience at a different pace and oscillated between levels of avoidance and acceptance. Family members attempted to maintain as normal a life as possible but there were often barriers to this. They developed an understanding of CKD and their role within their relative’s healthcare decisions and management. Whilst all family members had examples of feeling supported by HCP, most had examples where they felt the support could improve.Discussion: Whilst family members favour treatment and illness management decisions that keep life as normal as possible, their everyday life is impacted by their relative’s illness. Family members utilise different strategies to help them cope with the uncertainty of their situation. Using the assimilation model allowed the study to map the process of coming to terms with a problematic experience in a systematic way. Family members support needs could be addressed by family members having time alone with healthcare teams, support groups, and additional resources such as leaflets. Such a support pathway could be co-designed with family members.Conclusion: Family members have support needs that could be addressed with the development of a support pathway within renal services." @default.
- W3096405437 created "2020-11-09" @default.
- W3096405437 creator A5012332973 @default.
- W3096405437 date "2020-05-01" @default.
- W3096405437 modified "2023-09-27" @default.
- W3096405437 title "Family members' involvement in their relative's kidney disease management and treatment choices : a survey using qualitative methods" @default.
- W3096405437 hasPublicationYear "2020" @default.
- W3096405437 type Work @default.
- W3096405437 sameAs 3096405437 @default.
- W3096405437 citedByCount "0" @default.
- W3096405437 crossrefType "dissertation" @default.
- W3096405437 hasAuthorship W3096405437A5012332973 @default.
- W3096405437 hasConcept C107993555 @default.
- W3096405437 hasConcept C122980154 @default.
- W3096405437 hasConcept C126322002 @default.
- W3096405437 hasConcept C13280743 @default.
- W3096405437 hasConcept C142724271 @default.
- W3096405437 hasConcept C144024400 @default.
- W3096405437 hasConcept C15744967 @default.
- W3096405437 hasConcept C190248442 @default.
- W3096405437 hasConcept C205649164 @default.
- W3096405437 hasConcept C2777526511 @default.
- W3096405437 hasConcept C2778653478 @default.
- W3096405437 hasConcept C2779134260 @default.
- W3096405437 hasConcept C2993804084 @default.
- W3096405437 hasConcept C36289849 @default.
- W3096405437 hasConcept C71924100 @default.
- W3096405437 hasConcept C77805123 @default.
- W3096405437 hasConceptScore W3096405437C107993555 @default.
- W3096405437 hasConceptScore W3096405437C122980154 @default.
- W3096405437 hasConceptScore W3096405437C126322002 @default.
- W3096405437 hasConceptScore W3096405437C13280743 @default.
- W3096405437 hasConceptScore W3096405437C142724271 @default.
- W3096405437 hasConceptScore W3096405437C144024400 @default.
- W3096405437 hasConceptScore W3096405437C15744967 @default.
- W3096405437 hasConceptScore W3096405437C190248442 @default.
- W3096405437 hasConceptScore W3096405437C205649164 @default.
- W3096405437 hasConceptScore W3096405437C2777526511 @default.
- W3096405437 hasConceptScore W3096405437C2778653478 @default.
- W3096405437 hasConceptScore W3096405437C2779134260 @default.
- W3096405437 hasConceptScore W3096405437C2993804084 @default.
- W3096405437 hasConceptScore W3096405437C36289849 @default.
- W3096405437 hasConceptScore W3096405437C71924100 @default.
- W3096405437 hasConceptScore W3096405437C77805123 @default.
- W3096405437 hasLocation W30964054371 @default.
- W3096405437 hasOpenAccess W3096405437 @default.
- W3096405437 hasPrimaryLocation W30964054371 @default.
- W3096405437 hasRelatedWork W1773674879 @default.
- W3096405437 hasRelatedWork W2050275584 @default.
- W3096405437 hasRelatedWork W2050670008 @default.
- W3096405437 hasRelatedWork W2052475701 @default.
- W3096405437 hasRelatedWork W2364124726 @default.
- W3096405437 hasRelatedWork W2411083685 @default.
- W3096405437 hasRelatedWork W2492032617 @default.
- W3096405437 hasRelatedWork W2716532732 @default.
- W3096405437 hasRelatedWork W2862087 @default.
- W3096405437 hasRelatedWork W2887467866 @default.
- W3096405437 hasRelatedWork W2888112952 @default.
- W3096405437 hasRelatedWork W2924644974 @default.
- W3096405437 hasRelatedWork W2970379030 @default.
- W3096405437 hasRelatedWork W3007683707 @default.
- W3096405437 hasRelatedWork W3014627452 @default.
- W3096405437 hasRelatedWork W3122801907 @default.
- W3096405437 hasRelatedWork W3184429641 @default.
- W3096405437 hasRelatedWork W3211895533 @default.
- W3096405437 hasRelatedWork W74298499 @default.
- W3096405437 hasRelatedWork W890875049 @default.
- W3096405437 isParatext "false" @default.
- W3096405437 isRetracted "false" @default.
- W3096405437 magId "3096405437" @default.
- W3096405437 workType "dissertation" @default.