Matches in SemOpenAlex for { <https://semopenalex.org/work/W3100322403> ?p ?o ?g. }
- W3100322403 endingPage "440" @default.
- W3100322403 startingPage "433" @default.
- W3100322403 abstract "Background: New trends are emerging in clinical research, such as patient empowerment and an active role in influencing health and research ethics. Patients’ involvement is considered pivotal by stakeholders and institutions because they can channel the voice of those they represent, empowering their starring role in the different research activities.Objectives: To obtain an overview of the real involvement of Italian patient associations in clinical research.Methods: In January 2019, the Working Group ‘Clinical Research Coordinators’ of the Italian Association of Medical Oncology spread an online questionnaire consisting of 16 questions on the active involvement of patient associations in clinical research.Results: The involvement in clinical research working groups, in the organization and implementation of specific activities and training initiatives is very limited (21.7% in both cases), as well as the active involvement in the conduct and/or definition of clinical trials (0.3%). Moreover, few associations (15.2%) have joined projects on patient involvement in clinical research in collaboration with other associations.Discussion: Although the current involvement of the associations may have been somewhat underestimated, there is no doubt that much more can be done in terms of training and identification of common objectives between patients and professionals." @default.
- W3100322403 created "2020-11-23" @default.
- W3100322403 creator A5012455437 @default.
- W3100322403 creator A5013097735 @default.
- W3100322403 creator A5022206145 @default.
- W3100322403 creator A5035471408 @default.
- W3100322403 creator A5045201047 @default.
- W3100322403 creator A5053172573 @default.
- W3100322403 creator A5054443196 @default.
- W3100322403 creator A5057926104 @default.
- W3100322403 creator A5064531989 @default.
- W3100322403 creator A5070722768 @default.
- W3100322403 creator A5080676581 @default.
- W3100322403 creator A5083384813 @default.
- W3100322403 date "2020-11-26" @default.
- W3100322403 modified "2023-10-16" @default.
- W3100322403 title "Patient associations and clinical oncology research: how much does a patient’s voice really matter?" @default.
- W3100322403 cites W1933330762 @default.
- W3100322403 cites W1971365027 @default.
- W3100322403 cites W1999496102 @default.
- W3100322403 cites W1999984017 @default.
- W3100322403 cites W2011318588 @default.
- W3100322403 cites W2023723164 @default.
- W3100322403 cites W2074048861 @default.
- W3100322403 cites W2099101249 @default.
- W3100322403 cites W2109575571 @default.
- W3100322403 cites W2118907870 @default.
- W3100322403 cites W2342690669 @default.
- W3100322403 cites W2490738881 @default.
- W3100322403 cites W2769287128 @default.
- W3100322403 cites W2786053204 @default.
- W3100322403 cites W2890558836 @default.
- W3100322403 cites W2972418407 @default.
- W3100322403 doi "https://doi.org/10.1080/14737167.2021.1850274" @default.
- W3100322403 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/33201731" @default.
- W3100322403 hasPublicationYear "2020" @default.
- W3100322403 type Work @default.
- W3100322403 sameAs 3100322403 @default.
- W3100322403 citedByCount "3" @default.
- W3100322403 countsByYear W31003224032022 @default.
- W3100322403 countsByYear W31003224032023 @default.
- W3100322403 crossrefType "journal-article" @default.
- W3100322403 hasAuthorship W3100322403A5012455437 @default.
- W3100322403 hasAuthorship W3100322403A5013097735 @default.
- W3100322403 hasAuthorship W3100322403A5022206145 @default.
- W3100322403 hasAuthorship W3100322403A5035471408 @default.
- W3100322403 hasAuthorship W3100322403A5045201047 @default.
- W3100322403 hasAuthorship W3100322403A5053172573 @default.
- W3100322403 hasAuthorship W3100322403A5054443196 @default.
- W3100322403 hasAuthorship W3100322403A5057926104 @default.
- W3100322403 hasAuthorship W3100322403A5064531989 @default.
- W3100322403 hasAuthorship W3100322403A5070722768 @default.
- W3100322403 hasAuthorship W3100322403A5080676581 @default.
- W3100322403 hasAuthorship W3100322403A5083384813 @default.
- W3100322403 hasConcept C118552586 @default.
- W3100322403 hasConcept C126086293 @default.
- W3100322403 hasConcept C126322002 @default.
- W3100322403 hasConcept C142724271 @default.
- W3100322403 hasConcept C143998085 @default.
- W3100322403 hasConcept C17744445 @default.
- W3100322403 hasConcept C199539241 @default.
- W3100322403 hasConcept C204787440 @default.
- W3100322403 hasConcept C20555606 @default.
- W3100322403 hasConcept C2909500400 @default.
- W3100322403 hasConcept C502991105 @default.
- W3100322403 hasConcept C512399662 @default.
- W3100322403 hasConcept C535046627 @default.
- W3100322403 hasConcept C71924100 @default.
- W3100322403 hasConceptScore W3100322403C118552586 @default.
- W3100322403 hasConceptScore W3100322403C126086293 @default.
- W3100322403 hasConceptScore W3100322403C126322002 @default.
- W3100322403 hasConceptScore W3100322403C142724271 @default.
- W3100322403 hasConceptScore W3100322403C143998085 @default.
- W3100322403 hasConceptScore W3100322403C17744445 @default.
- W3100322403 hasConceptScore W3100322403C199539241 @default.
- W3100322403 hasConceptScore W3100322403C204787440 @default.
- W3100322403 hasConceptScore W3100322403C20555606 @default.
- W3100322403 hasConceptScore W3100322403C2909500400 @default.
- W3100322403 hasConceptScore W3100322403C502991105 @default.
- W3100322403 hasConceptScore W3100322403C512399662 @default.
- W3100322403 hasConceptScore W3100322403C535046627 @default.
- W3100322403 hasConceptScore W3100322403C71924100 @default.
- W3100322403 hasIssue "3" @default.
- W3100322403 hasLocation W31003224031 @default.
- W3100322403 hasOpenAccess W3100322403 @default.
- W3100322403 hasPrimaryLocation W31003224031 @default.
- W3100322403 hasRelatedWork W1997659045 @default.
- W3100322403 hasRelatedWork W2066477442 @default.
- W3100322403 hasRelatedWork W2071502007 @default.
- W3100322403 hasRelatedWork W2318699552 @default.
- W3100322403 hasRelatedWork W2344218328 @default.
- W3100322403 hasRelatedWork W2372334925 @default.
- W3100322403 hasRelatedWork W2399667542 @default.
- W3100322403 hasRelatedWork W2971584765 @default.
- W3100322403 hasRelatedWork W3097246647 @default.
- W3100322403 hasRelatedWork W3125293636 @default.
- W3100322403 hasVolume "21" @default.
- W3100322403 isParatext "false" @default.