FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W3101292150> ?p ?o ?g. }

• W3101292150 abstract "Background Disclosure decision-making refers to the way in which people affected by dementia choose to conceal or reveal their diagnostic status to others. Dementia is a stigmatised condition; the presence of stigma may generate reluctance to disclose a dementia diagnosis for fear of the consequences. Aims The aim of this thesis is to understand the influence of stigma on disclosure decision-making in dementia, to (1) establish the motivations for diagnostic secrecy and the barriers to disclosure in dementia, utilising literature on stigma, stigma reduction and decision-making; (2) test measures of stigma with people affected by dementia; (3) develop and test an intervention to support disclosure decision-making for people affected by dementia. Methods Robust methodology was employed to gather an initial understanding of the influence of stigma on disclosure decision-making through one conceptual and one systematic review, followed by adaptation and statistical analysis of psychometric instruments quantifying stigma in people affected by dementia. Intervention development and evaluation was conducted using Medical Research Council guidelines to create the first support group focussed on disclosure decision-making in dementia. Public and patient involvement was used throughout, ranging from the adaptation of psychometric instruments to intervention production being informed by coproduction principles. Results Stigma exacerbates the existing complexities in the nature of decision-making in dementia. Stigma measures for people living with dementia (N = 40) and carers (N = 70) were acceptable and suitable with adequate psychometric properties with some exceptions. Intervention development procedures resulted in a novel, 3-session, group based, dyadic (pairs of people living with dementia and their carers) approach heavily endorsed by stakeholders. Preliminary evaluation of the “who to tell, how and when?” intervention (N = 14; 7 dyads) is presented along with recommendations for further iterations. Conclusion Stigma negatively influences disclosure decision-making in dementia. Outputs of this thesis, with further testing, can help change this." @default.
• W3101292150 created "2020-11-23" @default.
• W3101292150 creator A5025487959 @default.
• W3101292150 date "2020-10-28" @default.
• W3101292150 modified "2023-09-23" @default.
• W3101292150 title "The Influence of Stigma on Disclosure Decision-Making in People Affected by Dementia" @default.
• W3101292150 cites W108162968 @default.
• W3101292150 cites W121762075 @default.
• W3101292150 cites W1235886408 @default.
• W3101292150 cites W1495377470 @default.
• W3101292150 cites W1497552704 @default.
• W3101292150 cites W1498823917 @default.
• W3101292150 cites W150814993 @default.
• W3101292150 cites W1853717444 @default.
• W3101292150 cites W1856805750 @default.
• W3101292150 cites W1930644238 @default.
• W3101292150 cites W1964755344 @default.
• W3101292150 cites W1967867804 @default.
• W3101292150 cites W1973985405 @default.
• W3101292150 cites W1986853177 @default.
• W3101292150 cites W1995815823 @default.
• W3101292150 cites W1999950582 @default.
• W3101292150 cites W2006632281 @default.
• W3101292150 cites W2012237996 @default.
• W3101292150 cites W2021734435 @default.
• W3101292150 cites W2022137364 @default.
• W3101292150 cites W2026487189 @default.
• W3101292150 cites W2030534060 @default.
• W3101292150 cites W2030702569 @default.
• W3101292150 cites W2055585850 @default.
• W3101292150 cites W2076954459 @default.
• W3101292150 cites W2078605337 @default.
• W3101292150 cites W2078849823 @default.
• W3101292150 cites W2081757472 @default.
• W3101292150 cites W2085001923 @default.
• W3101292150 cites W2090369677 @default.
• W3101292150 cites W2097669248 @default.
• W3101292150 cites W2097879723 @default.
• W3101292150 cites W2111828422 @default.
• W3101292150 cites W2113603163 @default.
• W3101292150 cites W2113782382 @default.
• W3101292150 cites W2114822376 @default.
• W3101292150 cites W2115988342 @default.
• W3101292150 cites W2125336283 @default.
• W3101292150 cites W2125640635 @default.
• W3101292150 cites W2131115009 @default.
• W3101292150 cites W2133847961 @default.
• W3101292150 cites W2134799259 @default.
• W3101292150 cites W2140282625 @default.
• W3101292150 cites W2144257333 @default.
• W3101292150 cites W2145939494 @default.
• W3101292150 cites W2158565154 @default.
• W3101292150 cites W2159846010 @default.
• W3101292150 cites W2166035703 @default.
• W3101292150 cites W2171150718 @default.
• W3101292150 cites W2201573021 @default.
• W3101292150 cites W2223459237 @default.
• W3101292150 cites W2287242856 @default.
• W3101292150 cites W2322833956 @default.
• W3101292150 cites W2333766557 @default.
• W3101292150 cites W2557014275 @default.
• W3101292150 cites W2580245871 @default.
• W3101292150 cites W2593694531 @default.
• W3101292150 cites W2733742624 @default.
• W3101292150 cites W2767097600 @default.
• W3101292150 cites W2772593206 @default.
• W3101292150 cites W2803484965 @default.
• W3101292150 cites W2911749519 @default.
• W3101292150 cites W2914967760 @default.
• W3101292150 cites W2944276528 @default.
• W3101292150 cites W2972594891 @default.
• W3101292150 cites W2993014598 @default.
• W3101292150 hasPublicationYear "2020" @default.
• W3101292150 type Work @default.
• W3101292150 sameAs 3101292150 @default.
• W3101292150 citedByCount "0" @default.
• W3101292150 crossrefType "dissertation" @default.
• W3101292150 hasAuthorship W3101292150A5025487959 @default.
• W3101292150 hasConcept C118552586 @default.
• W3101292150 hasConcept C142724271 @default.
• W3101292150 hasConcept C15744967 @default.
• W3101292150 hasConcept C168285401 @default.
• W3101292150 hasConcept C2779134260 @default.
• W3101292150 hasConcept C2779483572 @default.
• W3101292150 hasConcept C2780665704 @default.
• W3101292150 hasConcept C70410870 @default.
• W3101292150 hasConcept C71924100 @default.
• W3101292150 hasConcept C75630572 @default.
• W3101292150 hasConceptScore W3101292150C118552586 @default.
• W3101292150 hasConceptScore W3101292150C142724271 @default.
• W3101292150 hasConceptScore W3101292150C15744967 @default.
• W3101292150 hasConceptScore W3101292150C168285401 @default.
• W3101292150 hasConceptScore W3101292150C2779134260 @default.
• W3101292150 hasConceptScore W3101292150C2779483572 @default.
• W3101292150 hasConceptScore W3101292150C2780665704 @default.
• W3101292150 hasConceptScore W3101292150C70410870 @default.
• W3101292150 hasConceptScore W3101292150C71924100 @default.
• W3101292150 hasConceptScore W3101292150C75630572 @default.
• W3101292150 hasLocation W31012921501 @default.
• W3101292150 hasOpenAccess W3101292150 @default.

• next