Matches in SemOpenAlex for { <https://semopenalex.org/work/W3111177928> ?p ?o ?g. }
Showing items 1 to 68 of
68
with 100 items per page.
- W3111177928 endingPage "S715" @default.
- W3111177928 startingPage "S714" @default.
- W3111177928 abstract "To identify RWD sources available for the rare renal diseases IgAN, MN and C3G globally in order to summarize and understand the availability of RWD in these rare diseases and support the design and potentially selection of data sources for future observational studies. A literature review was conducted to identify RWD sources for IgAN, MN and C3G using Medline and EMBASE from inception until May 2019. Retrieved results were screened to devise a list of unique data sources and relevant meta-data (type of data source, study design, population size, epidemiology, demographics, clinical, economic and humanistic burden, follow-up duration, data access and linkage, etc.) was extracted. Of the 2,926 retrieved publications, 173 unique RWD sources (IgAN only: 28; MN only: 32; C3G only: 3; IgAN & MN: 91; IgAN, MN & C3G: 19) were identified. There were 61% generic and 39% disease specific RWD sources. Half of the data sources (50%) covered Asian countries, followed by Europe (33%) and Americas (12%). Majority were administrative data sources (70%), followed by registries (20%). Data sources recorded minimum 5% and maximum 56% of the 68 assessed variables. The most commonly reported (>90%) variables were age, sex and biopsy as mode of diagnosis; quality of life, caregiver burden, and details of hospitalizations were the least reported (<1%) ones across all the three indications. Patients’ baseline eGFR and proteinuria levels were captured in >60% and >80% data sources, respectively. Possibility to access was actively reported in 21% of data sources. This comprehensive overview identified RWD sources for IgAN and MN in certain geographies, with limited availability of existing RWD for C3G. The overview might provide the base for identification of opportunities for future partnerships and more efficient and sustainable use of RWD." @default.
- W3111177928 created "2020-12-21" @default.
- W3111177928 creator A5007269025 @default.
- W3111177928 creator A5017375433 @default.
- W3111177928 creator A5027383365 @default.
- W3111177928 creator A5030743692 @default.
- W3111177928 creator A5061281135 @default.
- W3111177928 date "2020-12-01" @default.
- W3111177928 modified "2023-09-27" @default.
- W3111177928 title "PRO139 Identification and Description of Global Real-World DATA (RWD) Sources for Iga Nephropathy (IGAN), Membranous Nephropathy (MN) and C3 Glomerulopathy (C3G)" @default.
- W3111177928 doi "https://doi.org/10.1016/j.jval.2020.08.1875" @default.
- W3111177928 hasPublicationYear "2020" @default.
- W3111177928 type Work @default.
- W3111177928 sameAs 3111177928 @default.
- W3111177928 citedByCount "0" @default.
- W3111177928 crossrefType "journal-article" @default.
- W3111177928 hasAuthorship W3111177928A5007269025 @default.
- W3111177928 hasAuthorship W3111177928A5017375433 @default.
- W3111177928 hasAuthorship W3111177928A5027383365 @default.
- W3111177928 hasAuthorship W3111177928A5030743692 @default.
- W3111177928 hasAuthorship W3111177928A5061281135 @default.
- W3111177928 hasBestOaLocation W31111779281 @default.
- W3111177928 hasConcept C107130276 @default.
- W3111177928 hasConcept C126322002 @default.
- W3111177928 hasConcept C134018914 @default.
- W3111177928 hasConcept C23131810 @default.
- W3111177928 hasConcept C2779134260 @default.
- W3111177928 hasConcept C2779561371 @default.
- W3111177928 hasConcept C2780091579 @default.
- W3111177928 hasConcept C2780199430 @default.
- W3111177928 hasConcept C2781184683 @default.
- W3111177928 hasConcept C2908647359 @default.
- W3111177928 hasConcept C555293320 @default.
- W3111177928 hasConcept C71924100 @default.
- W3111177928 hasConcept C99454951 @default.
- W3111177928 hasConceptScore W3111177928C107130276 @default.
- W3111177928 hasConceptScore W3111177928C126322002 @default.
- W3111177928 hasConceptScore W3111177928C134018914 @default.
- W3111177928 hasConceptScore W3111177928C23131810 @default.
- W3111177928 hasConceptScore W3111177928C2779134260 @default.
- W3111177928 hasConceptScore W3111177928C2779561371 @default.
- W3111177928 hasConceptScore W3111177928C2780091579 @default.
- W3111177928 hasConceptScore W3111177928C2780199430 @default.
- W3111177928 hasConceptScore W3111177928C2781184683 @default.
- W3111177928 hasConceptScore W3111177928C2908647359 @default.
- W3111177928 hasConceptScore W3111177928C555293320 @default.
- W3111177928 hasConceptScore W3111177928C71924100 @default.
- W3111177928 hasConceptScore W3111177928C99454951 @default.
- W3111177928 hasLocation W31111779281 @default.
- W3111177928 hasOpenAccess W3111177928 @default.
- W3111177928 hasPrimaryLocation W31111779281 @default.
- W3111177928 hasRelatedWork W1999830312 @default.
- W3111177928 hasRelatedWork W2041592859 @default.
- W3111177928 hasRelatedWork W2082025651 @default.
- W3111177928 hasRelatedWork W2087893473 @default.
- W3111177928 hasRelatedWork W2096843276 @default.
- W3111177928 hasRelatedWork W2136569541 @default.
- W3111177928 hasRelatedWork W2192094876 @default.
- W3111177928 hasRelatedWork W2413590472 @default.
- W3111177928 hasRelatedWork W3163805176 @default.
- W3111177928 hasRelatedWork W4220843915 @default.
- W3111177928 hasVolume "23" @default.
- W3111177928 isParatext "false" @default.
- W3111177928 isRetracted "false" @default.
- W3111177928 magId "3111177928" @default.
- W3111177928 workType "article" @default.