FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W3119254829> ?p ?o ?g. }

• W3119254829 abstract "There is often a great urgency to be inclusive when conducting research and to focus efforts with groups and communities that can be referred to as marginalised. This is especially the case in research concerning medical devices aimed at children and young people (CYP). Although involvement methodology has developed over the last two decades, it can be challenging to involve and engage CYP with confidence and clarity of purpose.Our aim was to provide a reflective narrative account of the involvement of CYP, over a period of 5 years, in a research project from conception of a new paediatric medical device through to practical application. We explored a model of patient and public involvement (PPI) through the Nottingham Young Persons Advisory Group (YPAG), part of the National Institute for Health Research (NIHR) GenerationR Alliance, in a NIHR funded research project. The YPAG designed and created a model of the human gut, co-designed the Transicap™ mini-capsules and their packaging, co-produced patient information sheets, came up with the idea to disseminate through a project website and co-wrote and created animation videos. The YPAG involvement continued through the writing and award of the follow-on research grant (MAGIC2). During this process the YPAG modified the clinical study protocol insisting that all participants in the control arm were given the imaging test results as well, save for a delayed reading compared to the intervention arm.Involvement of the YPAG over the last 5 years, led to the development of a mutually beneficial partnership, enabling genuine knowledge exchange between researchers and CYP. This influenced the design, plans and actions of the MAGIC study and well into the subsequent MAGIC2 follow-on project. Moreover, these involvement models applied within a feasibility study setting, have enhanced the realism and pragmatism of the study, contributing to the project's overall success." @default.
• W3119254829 created "2021-01-18" @default.
• W3119254829 creator A5001848534 @default.
• W3119254829 creator A5005945958 @default.
• W3119254829 creator A5019527146 @default.
• W3119254829 creator A5020982301 @default.
• W3119254829 creator A5052860746 @default.
• W3119254829 creator A5062537394 @default.
• W3119254829 creator A5066248848 @default.
• W3119254829 creator A5088133523 @default.
• W3119254829 date "2021-01-06" @default.
• W3119254829 modified "2023-09-30" @default.
• W3119254829 title "“A little (PPI) MAGIC can take you a long way” : involving children and young people in research from inception of a novel medical device to multi-centre clinical trial Roald Dahl, James and the Giant Peach (1961)" @default.
• W3119254829 cites W1567581279 @default.
• W3119254829 cites W1892812626 @default.
• W3119254829 cites W2031248213 @default.
• W3119254829 cites W2040244187 @default.
• W3119254829 cites W2049504028 @default.
• W3119254829 cites W2142707382 @default.
• W3119254829 cites W2147703459 @default.
• W3119254829 cites W2150335768 @default.
• W3119254829 cites W2323290108 @default.
• W3119254829 cites W2466141895 @default.
• W3119254829 cites W2624758131 @default.
• W3119254829 cites W2739751169 @default.
• W3119254829 cites W2754075663 @default.
• W3119254829 cites W2768045282 @default.
• W3119254829 cites W2792279377 @default.
• W3119254829 cites W2802049198 @default.
• W3119254829 cites W2943556053 @default.
• W3119254829 cites W2964533701 @default.
• W3119254829 cites W2986039188 @default.
• W3119254829 cites W3026598742 @default.
• W3119254829 cites W3033213910 @default.
• W3119254829 cites W3033390860 @default.
• W3119254829 cites W3052501566 @default.
• W3119254829 cites W4232698832 @default.
• W3119254829 doi "https://doi.org/10.1186/s40900-020-00243-0" @default.
• W3119254829 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/7789429" @default.
• W3119254829 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/33407935" @default.
• W3119254829 hasPublicationYear "2021" @default.
• W3119254829 type Work @default.
• W3119254829 sameAs 3119254829 @default.
• W3119254829 citedByCount "6" @default.
• W3119254829 countsByYear W31192548292021 @default.
• W3119254829 countsByYear W31192548292023 @default.
• W3119254829 crossrefType "journal-article" @default.
• W3119254829 hasAuthorship W3119254829A5001848534 @default.
• W3119254829 hasAuthorship W3119254829A5005945958 @default.
• W3119254829 hasAuthorship W3119254829A5019527146 @default.
• W3119254829 hasAuthorship W3119254829A5020982301 @default.
• W3119254829 hasAuthorship W3119254829A5052860746 @default.
• W3119254829 hasAuthorship W3119254829A5062537394 @default.
• W3119254829 hasAuthorship W3119254829A5066248848 @default.
• W3119254829 hasAuthorship W3119254829A5088133523 @default.
• W3119254829 hasBestOaLocation W31192548291 @default.
• W3119254829 hasConcept C138885662 @default.
• W3119254829 hasConcept C15744967 @default.
• W3119254829 hasConcept C159110408 @default.
• W3119254829 hasConcept C17744445 @default.
• W3119254829 hasConcept C185592680 @default.
• W3119254829 hasConcept C199033989 @default.
• W3119254829 hasConcept C199539241 @default.
• W3119254829 hasConcept C2777146004 @default.
• W3119254829 hasConcept C2778431023 @default.
• W3119254829 hasConcept C2780665704 @default.
• W3119254829 hasConcept C41895202 @default.
• W3119254829 hasConcept C509550671 @default.
• W3119254829 hasConcept C554936623 @default.
• W3119254829 hasConcept C55493867 @default.
• W3119254829 hasConcept C71750763 @default.
• W3119254829 hasConcept C71924100 @default.
• W3119254829 hasConceptScore W3119254829C138885662 @default.
• W3119254829 hasConceptScore W3119254829C15744967 @default.
• W3119254829 hasConceptScore W3119254829C159110408 @default.
• W3119254829 hasConceptScore W3119254829C17744445 @default.
• W3119254829 hasConceptScore W3119254829C185592680 @default.
• W3119254829 hasConceptScore W3119254829C199033989 @default.
• W3119254829 hasConceptScore W3119254829C199539241 @default.
• W3119254829 hasConceptScore W3119254829C2777146004 @default.
• W3119254829 hasConceptScore W3119254829C2778431023 @default.
• W3119254829 hasConceptScore W3119254829C2780665704 @default.
• W3119254829 hasConceptScore W3119254829C41895202 @default.
• W3119254829 hasConceptScore W3119254829C509550671 @default.
• W3119254829 hasConceptScore W3119254829C554936623 @default.
• W3119254829 hasConceptScore W3119254829C55493867 @default.
• W3119254829 hasConceptScore W3119254829C71750763 @default.
• W3119254829 hasConceptScore W3119254829C71924100 @default.
• W3119254829 hasFunder F4320319990 @default.
• W3119254829 hasIssue "1" @default.
• W3119254829 hasLocation W31192548291 @default.
• W3119254829 hasLocation W31192548292 @default.
• W3119254829 hasLocation W31192548293 @default.
• W3119254829 hasLocation W31192548294 @default.
• W3119254829 hasLocation W31192548295 @default.
• W3119254829 hasLocation W31192548296 @default.
• W3119254829 hasLocation W31192548297 @default.
• W3119254829 hasOpenAccess W3119254829 @default.
• W3119254829 hasPrimaryLocation W31192548291 @default.
• W3119254829 hasRelatedWork W2032850860 @default.

• next