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- W3132488704 abstract "Abstract This article describes my reflections of speaking with three patients and their families living with mastocytosis, who I was introduced to through the UK Mastocytosis Support Group. I discuss the various ways in which the condition affects their day-to-day lives and how this has changed during the Covid-19 pandemic. I have tried to give an insight into the particular difficulties that this patient group faces, both during and before the pandemic, whilst also considering how these challenges may resonate more widely with other patient groups in the rare disease community. Pseudonyms are used throughout to protect patient anonymity." @default.
- W3132488704 created "2021-03-01" @default.
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- W3132488704 date "2021-02-26" @default.
- W3132488704 modified "2023-10-03" @default.
- W3132488704 title "Unmasked: an insight into three patients’ rare disease experiences during the COVID-19 pandemic" @default.
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- W3132488704 doi "https://doi.org/10.1186/s13023-021-01734-3" @default.
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