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- W3136017948 abstract "There are 55 National Heart Failure Societies (NHFS) and Working Groups within the Heart Failure Association (HFA) providing important support to the HFA in the development of new ideas and programmes and in the promotion of heart failure (HF) as a target for both healthcare professionals and researchers. Every year since 2011, HFA has organized a NHFS Summit aiming to address the needs of the societies and to discuss the best ways to improve cooperation among the national societies and between societies and the HFA. By tradition, the NHFS Summit provides an excellent opportunity for national representatives to meet each other, to meet and personally discuss with HFA Board members, and to harmonise all valorous ideas raised on the occasion of the summit. In 2020, the NHFS Summit was held for the first time online as a virtual meeting on 15 December, with participation of 37 representatives of NHFS and 14 HFA Board members. Distinct to previous meetings, rich in social interactions and personal discussions, this year summit had to accommodate an online format (Figure 1). However, despite of being a virtual meeting, the main themes for 2020 remained the dialogue and the continuity. For the first time, the NHFS representatives were asked in advance to answer a questionnaire and the results were presented during the meeting. The questionnaire focused on the identification of the NHFS specific needs and addressed four major points, essential for the perspective of further cooperation between NHFS and HFA: ‘know yourself’, ‘identify the barriers’, ‘ask for the support’ and ‘needs for improvement’. In the first part of the summit, participants were informed about HFA strategic initiatives in terms of education, epidemiology, research, quality of care, membership and international connections. Professor Andrew Coats, President of HFA, presented the ‘HFA Roadmap’ and declared that the HFA continues to set the global standard in HF care, education and research. Also, he underlined the firm intention to maintain HFA's leadership in HF Congresses worldwide. Professor Coats mentioned the role of HFA Scientific Committees to elaborate position papers and consensus documents, some of these with a substantial impact on current HF care.1-9 These documents are produced as the result of a large collaborative effort10 and represent the coordinated work of the HFA in bringing together the considered views of its appointed experts on a range of new, emerging, contentious, or complicated matters. Also, HFA's intention to publish the ESC Textbook on Heart Failure in early 2022 was shared with the National Societies, an idea that was very well received and strongly supported. Professor Petar Seferović, Vice President of the European Society of Cardiology (ESC), discussed the HF Atlas programme which is one of the hallmark initiatives of the HFA. He described HFA Atlas as an excellent example of cooperation between HFA and national HF societies, since the collection of the data was entirely based on voluntary contributions from NHFS/HF working groups. Epidemiological data will include national data in terms of prevalence, incidence, mortality, length of stay, readmissions, healthcare organization, and will be sourced from health systems, scientific publications, registries and other databases.11 These data can be used to identify HF care provision across Europe, including the identification of gaps and unequal delivery of services. Despite several difficulties in obtaining accurate epidemiological data, Professor Seferović said that the HF Atlas programme is a continuous process, and this first edition represents just ‘the start of the journey’. Professor Massimo Piepoli discussed the establishment of the HFA/ESC-HF accredited Quality of Care Centres (QCC) project, designed to improve cardiovascular outcomes across ESC member countries. The evaluation of the framework, criteria, and feasibility of the HFQCC will be conducted in collaboration with ESC Education department and ESC Council on Standards of Education and Accreditation.12 HFA plans commencement of a pilot programme in 11 countries (29 centres), in collaboration with its NHFS, but this pilot phase was delayed due to the COVID-19 pandemic. Professor Piepoli stated that providing multidisciplinary care and international collaboration, HFQCCs will help to decrease regional and national disparities in the accessibility and quality of HF care. They will also help to fortify the five pillars of HFA/ESC and NHFS activities through increased membership, enhanced advocacy, intensified education, innovative research, and greater participation in the annual HFA Congress. Furthermore, the inclusion of a centre within the accredited HFQCC network will augment the institution's visibility and status within the local healthcare system. Professor Giuseppe Rosano presented a new vision for the HFA educational offer. He mentioned that HFA has already delivered a broad programme of education having one of the largest portfolio of webinars among ESC Associations. Based on an updated HF curriculum, the HFA educational programme will include courses on specific skills (acute HF, magnetic resonance imaging, advanced echo techniques, cardiac resynchronization therapy and ventricular assist device) and clinical trial courses. On the highest level, Giuseppe Rosano presented academic programmes under umbrella of several prestigious universities allowing accreditation and then obtaining a university degree. Finally, Professor Rosano underlined the need of certification and credentialling for all educational activities. Professor Yuri Lopatin described how the annual ‘Heart Failure Awareness Days/Week’, organized by NHFS, contributes to the education of the general public and politicians about HF. Since their initial conception, these events have grown with each passing year and highlight, to increasing numbers of individuals around the world, the importance of recognizing HF, getting an accurate diagnosis and receiving optimal treatment. These events are essentially linked to the HFA's mission to improve quality of life and longevity in patients with HF. Professor Lopatin valued the efforts of national societies to attract and engage public interest and the diverse range of events they provide, including: press conferences, lectures/activities on nutrition and physical education, fun and sporting activities, radio and TV programmes on HF, social media alerts, involvement of local celebrities and meetings at national parliaments. As matter of appreciation, HFA awards prizes to the societies considered to have produced the most impressive, or innovative, campaigns in a particular year. Professor Ovidiu Chioncel presented the results of the questionnaire aimed to investigate perception of the respondents about the HFA strategic initiatives, type of educational resources and how the COVID-19 pandemic impacted HF management in ESC affiliated countries. The interest for the HFA Atlas was evident and 86.2% of respondents will support a next edition. Similarly, the ESC HF Textbook was seen as a valuable educational product by 91% of respondents. Organizing Joint Sessions, between national societies and HFA at National Congresses, was appreciated as an important educational offer, as well as an essential factor to contribute to the increasing prestige of HF working groups. Noticeably, the interest of NHFS Presidents for the younger generation, and HFA initiatives such as ‘giving travel grants’ and ‘short-term training’ for young cardiologists, were highly quoted in terms of increasing local visibility and as an opportunity to improve HF management at national level. Also, 53% of respondents considered that a European network of HF centres under HFA umbrella may further contribute to the improvement of HF management in their countries. A proportion of 70% of participants declared that HF research is poorly rewarded in their countries and 28% mentioned the absence of local research facilities, factors contributing to the low output of HF research. These aspects were greatly commented during the second part of the meeting highlighting the processual way of appropriate development of the research settings. Regarding the recent COVID-19 pandemic, 76% of participants considered that it had a high/major impact on HF management in their countries, and 91% declared that HFA delivered sufficient scientific information about the pandemic. At the end of the first session, Professor Andrew Coats thanks all participants and declared that the HFA is incredibly proud of the efforts of National Societies to support HFA mission. The second part of the summit was dedicated to open discussions and the coordinators of the meeting, Ovidiu Chioncel and Yuri Lopatin, invited participants to discuss and comment. In general, the discussions covered the results of the questionnaire, with NHFS representatives asking for a more active contribution of HFA at local scientific activities, and the feeling that the HFA needs a large and active membership. Professor Ewa Jankowska reiterated the advantages of Heart failure specialist Of Tomorrow (HOT) membership and mentioned that every HFA Committee included a HOT member. Volunteer participation at HFA Atlas and ESC/HFA HF registries was a highly commented upon topic, particularly recognition of participation in terms of authorship. Considering the advantages of participation at registries, Professor Lars Lund added that the epidemiological data coming from registries may be available at the national level, and benchmarking analysis may identify the differences in HF care provision across ESC affiliated countries. Professor Lund explained how the result of the registries essentially contributed to the elaboration of the several HFA position papers which substantially influenced HF patterns of care.13-15 There were several questions about setting up research facilities and access to the international research programmes. Professor Andrew Coats stated that although international cooperation is an important step when intending to develop research at national level, this is just a component, and setting up research facilities is a long ‘step by step’ process. Professor Thomas Thum mentioned the role of basic science research as an integral part of modern HF research. Overall, this was an enjoyable meeting that stimulated many new scientific exchanges, collaborations and future plans. Although social interaction and face to face discussions were missing, the meeting gave opportunity to the NHFS representatives and HFA Board members to listen each other and to discuss several points of mutual interest. From this perspective, the summit has accomplished its mission: to better fit the HFA offer to the needs of NHFS. The NHFS Summit 2020 has demonstrated the firm commitment of HFA to continue, improve and diversify its strategic initiatives, and proved once again that HFA has capacity to organize high complexity meetings even in difficult conditions as those represented by the COVID-19 pandemic." @default.
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- W3136017948 date "2021-03-30" @default.
- W3136017948 modified "2023-09-24" @default.
- W3136017948 title "National H eart F ailure S ocieties S ummit 2020" @default.
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- W3136017948 doi "https://doi.org/10.1002/ejhf.2157" @default.
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