FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W3136258044> ?p ?o ?g. }

• W3136258044 endingPage "862" @default.
• W3136258044 startingPage "848" @default.
• W3136258044 abstract "Amyotrophic Lateral Sclerosis (ALS) is a fatal neurodegenerative disease, associated with impaired quality of life for patients and caregivers. As treatment is largely supportive, early involvement of palliative care (PC) is recommended as standard of care. Despite this, literature surrounding PC information needs is limited.To explore the PC information needs of patients with ALS and their caregivers and identify gaps in the literature.A scoping review using MEDLINE, EMBASE, CINAHL and PsycINFO databases (2000-2019) was conducted. Articles examining PC information needs as stated by ALS patients and/or current/bereaved caregivers were included. Studies examining other diagnoses and those focused on healthcare workers were excluded. Thematic synthesis was used to summarize and identify prevalent domains and themes in the literature.581 articles underwent primary screening, with thirty-two ultimately included (26 original articles, six reviews). Fourteen examined information needs of both patients and caregivers, 13 caregivers only, 5 patients only. The most common PC information needs were as follows: for patients, disease course/prognosis (n = 10), general disease information (n = 9), decision-making (n = 7) and symptoms (n = 6); for caregivers, services and resources (n = 15), disease course/prognosis (n = 14), general disease information (n = 13) and skills (n = 10). There was substantial variability in information needs, both between patients and caregivers and among members of the same group.ALS patients and caregivers have unique and varying PC information needs. Future research should better characterize these needs to improve patient and caregiver quality of life. The delivery of information must be tailored to individual patient or caregiver preferences." @default.
• W3136258044 created "2021-03-29" @default.
• W3136258044 creator A5030129461 @default.
• W3136258044 creator A5078090450 @default.
• W3136258044 creator A5084432893 @default.
• W3136258044 date "2021-10-01" @default.
• W3136258044 modified "2023-09-28" @default.
• W3136258044 title "The Palliative Care Information Needs of Patients with Amyotrophic Lateral Sclerosis and their Informal Caregivers: A Scoping Review" @default.
• W3136258044 cites W1492867946 @default.
• W3136258044 cites W1902591754 @default.
• W3136258044 cites W1966590159 @default.
• W3136258044 cites W1968843271 @default.
• W3136258044 cites W1970781065 @default.
• W3136258044 cites W1978772788 @default.
• W3136258044 cites W1983734876 @default.
• W3136258044 cites W1984505227 @default.
• W3136258044 cites W2019730233 @default.
• W3136258044 cites W2022247498 @default.
• W3136258044 cites W2027527902 @default.
• W3136258044 cites W2035522605 @default.
• W3136258044 cites W2039187250 @default.
• W3136258044 cites W2056238978 @default.
• W3136258044 cites W2066908389 @default.
• W3136258044 cites W2070695488 @default.
• W3136258044 cites W2078609559 @default.
• W3136258044 cites W2080142781 @default.
• W3136258044 cites W2092624650 @default.
• W3136258044 cites W2099012925 @default.
• W3136258044 cites W2109305774 @default.
• W3136258044 cites W2135196651 @default.
• W3136258044 cites W2140248514 @default.
• W3136258044 cites W2157494194 @default.
• W3136258044 cites W2161021732 @default.
• W3136258044 cites W2165787691 @default.
• W3136258044 cites W2227953140 @default.
• W3136258044 cites W2264722046 @default.
• W3136258044 cites W2311912039 @default.
• W3136258044 cites W2313209493 @default.
• W3136258044 cites W2346403489 @default.
• W3136258044 cites W2378242604 @default.
• W3136258044 cites W2513196775 @default.
• W3136258044 cites W2528139661 @default.
• W3136258044 cites W2590476690 @default.
• W3136258044 cites W2732541017 @default.
• W3136258044 cites W2744832402 @default.
• W3136258044 cites W2752714203 @default.
• W3136258044 cites W2793035407 @default.
• W3136258044 cites W2800872635 @default.
• W3136258044 cites W2891378911 @default.
• W3136258044 cites W2905400326 @default.
• W3136258044 cites W2948074455 @default.
• W3136258044 cites W2949630467 @default.
• W3136258044 cites W2974121842 @default.
• W3136258044 cites W2989356358 @default.
• W3136258044 cites W3025451343 @default.
• W3136258044 cites W3043195177 @default.
• W3136258044 cites W3101093626 @default.
• W3136258044 cites W4210998205 @default.
• W3136258044 cites W72285846 @default.
• W3136258044 doi "https://doi.org/10.1016/j.jpainsymman.2021.03.008" @default.
• W3136258044 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/33757892" @default.
• W3136258044 hasPublicationYear "2021" @default.
• W3136258044 type Work @default.
• W3136258044 sameAs 3136258044 @default.
• W3136258044 citedByCount "8" @default.
• W3136258044 countsByYear W31362580442021 @default.
• W3136258044 countsByYear W31362580442022 @default.
• W3136258044 countsByYear W31362580442023 @default.
• W3136258044 crossrefType "journal-article" @default.
• W3136258044 hasAuthorship W3136258044A5030129461 @default.
• W3136258044 hasAuthorship W3136258044A5078090450 @default.
• W3136258044 hasAuthorship W3136258044A5084432893 @default.
• W3136258044 hasConcept C126322002 @default.
• W3136258044 hasConcept C136764020 @default.
• W3136258044 hasConcept C142724271 @default.
• W3136258044 hasConcept C144024400 @default.
• W3136258044 hasConcept C159110408 @default.
• W3136258044 hasConcept C17744445 @default.
• W3136258044 hasConcept C190248442 @default.
• W3136258044 hasConcept C199539241 @default.
• W3136258044 hasConcept C27415008 @default.
• W3136258044 hasConcept C2777995714 @default.
• W3136258044 hasConcept C2778900529 @default.
• W3136258044 hasConcept C2779134260 @default.
• W3136258044 hasConcept C2779473830 @default.
• W3136258044 hasConcept C2779549880 @default.
• W3136258044 hasConcept C2779951463 @default.
• W3136258044 hasConcept C2780596555 @default.
• W3136258044 hasConcept C2781145037 @default.
• W3136258044 hasConcept C28718268 @default.
• W3136258044 hasConcept C2994186709 @default.
• W3136258044 hasConcept C36289849 @default.
• W3136258044 hasConcept C41008148 @default.
• W3136258044 hasConcept C512399662 @default.
• W3136258044 hasConcept C534262118 @default.
• W3136258044 hasConcept C71924100 @default.
• W3136258044 hasConcept C74196892 @default.
• W3136258044 hasConcept C74909509 @default.

• next