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• W3136404397 abstract "The Watch the Spot Trial is a Patient-Centered Outcomes Research Institute (PCORI)- funded, multi-center, pragmatic, comparative effectiveness trial comparing a more- versus less-intensive surveillance strategies for small lung nodules. As a PCORI-funded study, engagement with patients and other stakeholders is an essential aspect of the Watch the Spot Trial. A key component, the Stakeholder Advisory Group (SAG), provides oversight and guidance regarding research methodology, publications, communications, survey development and recruitment, and dissemination of study results. Twenty stakeholders, including six patient stakeholders who previously underwent evaluation for a pulmonary nodule, have participated in the SAG over the course of the study. Stakeholders were actively involved in the conception, design, planning and execution of the trial. Currently, the SAG is comprised of thirteen stakeholders, including five patient stakeholders and eight stakeholders representing professional societies and advocacy groups. Members of the SAG meet on a recurring basis, monthly during Years 1 to 4 and quarterly from Year 5 onwards. In addition to the SAG meeting, stakeholders were also offered the opportunity to share their perspective in a variety of other workgroups: Intervention Design Workgroup, Patient Survey Workgroup, Provider Survey Workgroup, and a number of manuscript writing workgroups. All engagement from patient stakeholders were recorded in meeting minutes and highlighted in all progress reports to the funder. Key contributions of patient stakeholders include: developing the study protocol; designing the interventions being compared, developing scripts to communicate with study participants, participating in survey development, and writing manuscripts. Patient stakeholder feedback was important in the selection and adaptation of the guideline-based protocols that were compared in the trial. Patient stakeholders were also very involved in the creation and review of all study materials for patient communication and education. This includes the patient brochure, patient notification letter, and radiology reporting templates. SAG members helped identify brochure sections and tailor content to fit the general health literacy level of patients and their families. Similarly, they also vetted and refined a letter used to notify patients about the trial, and helped to define the timeline for notification. Recommendations for patient survey design from patient stakeholders helped prevent any undue anxiety and improved survey user friendliness. Moreover, their participation in survey development ensured that items for patient-reported outcomes and other domains of interest for patients were included. Additionally, their suggestions for survey recruitment strategies improved provider survey response rates as well. For dissemination efforts, patient stakeholders have served as contributors on all manuscripts to date. Input from the SAG, especially from patient stakeholders, has been instrumental to the trial’s start-up and progress. Active participation from patient stakeholders has made important contributions to study design and execution. Most importantly, the patient perspective helped the trial anticipate and address patient concerns. Representation from the SAG committee across study workgroups allowed for patient engagement to be present throughout all aspects of the Watch the Spot Trial. This level of engagement is necessary to produce impactful patient-centered outcomes research." @default.
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• W3136404397 date "2021-03-01" @default.
• W3136404397 modified "2023-10-14" @default.
• W3136404397 title "FP02.08 Importance of Stakeholder Engagement in a Patient-Centered Outcomes Research Trial" @default.
• W3136404397 doi "https://doi.org/10.1016/j.jtho.2021.01.080" @default.
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