FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W3157327973> ?p ?o ?g. }

• W3157327973 abstract "Advance care planning (ACP) is particularly appropriate for persons with early dementia (PWED) since it promotes conversations about dementia-specific illness scenarios, addresses inconsistencies between advance directives and patients' observed behavior, emphasizes prospective and relational autonomy, and may be generally consistent with older persons' decision-making needs. However, despite evidence of its benefits, ACP is yet to become widely used among PWED. In this paper, we present a dementia-specific tool developed in Western Switzerland, discuss results of a pilot trial designed to promote ACP among PWED and their relatives, and discuss the feasibility and acceptability of the intervention and the study protocol in prevision of a large scale trial.This one-arm pre-post pilot trial consisted of four visits, with visits 2 and 3 being the ACP intervention. Quantitative outcome measures during visit 1 and 4 assessed the aptitude of the intervention to support PWED autonomy and relatives' knowledge of PWED's preferences. Feasibility was explored according to how the recruitment procedure unfurled and based on the necessary revisions to the study protocol and healthcare providers' reason for excluding a PWED from the study. Acceptability was assessed according to pre-post evaluations, difficulties regarding the intervention or trial participation, and pre-post qualitative interviews regarding participants' reasons to participate to the study, satisfaction with the tool and difficulties perceived.The ACP intervention itself was well received by PWED and their relatives that expressed satisfaction with the procedure, especially regarding the opportunity to discuss a sensitive topic with the help of a facilitator. Five main challenges in terms of feasibility were 1) to locate eligible patients, 2) to tailor recruitment procedures to recruitment locations, 3) to adapt inclusion criteria to clinical routines, 4) to engage PWED and their relatives in ACP, and 5) to design a trial that does not burden PWED. Despite these challenges, the intervention increased the number of advance directives, the concordance between PWED's preferences and relatives' decision on their behalf, and relatives' perceived control over healthcare decisions.Misconceptions about dementia and ACP, in the patient, relatives, and healthcare providers, combined with structural and institutional challenges, have the power to impede research and implementation of ACP in dementia care. For this reason, we conclude that a large scale trial to test a dementia-specific tool of ACP is currently not feasible in Western Switzerland and should be endorsed in a systemic approach of ACP.This trial was registered in the database clinicaltrial.gov with the number NCT03615027 ." @default.
• W3157327973 created "2021-05-10" @default.
• W3157327973 creator A5019822315 @default.
• W3157327973 creator A5039939371 @default.
• W3157327973 creator A5041319050 @default.
• W3157327973 creator A5049394011 @default.
• W3157327973 date "2021-10-19" @default.
• W3157327973 modified "2023-10-17" @default.
• W3157327973 title "Implementing advance care planning in early dementia care: results and insights from a pilot interventional trial" @default.
• W3157327973 cites W1531982902 @default.
• W3157327973 cites W181547059 @default.
• W3157327973 cites W1919689675 @default.
• W3157327973 cites W1977983361 @default.
• W3157327973 cites W1993017588 @default.
• W3157327973 cites W1998890920 @default.
• W3157327973 cites W2010670917 @default.
• W3157327973 cites W2029111673 @default.
• W3157327973 cites W2040939895 @default.
• W3157327973 cites W2052285917 @default.
• W3157327973 cites W2063089034 @default.
• W3157327973 cites W2073869152 @default.
• W3157327973 cites W2122879540 @default.
• W3157327973 cites W2124932225 @default.
• W3157327973 cites W2126381797 @default.
• W3157327973 cites W2133823004 @default.
• W3157327973 cites W2143997631 @default.
• W3157327973 cites W2162787115 @default.
• W3157327973 cites W2181137729 @default.
• W3157327973 cites W2320577751 @default.
• W3157327973 cites W2461448434 @default.
• W3157327973 cites W2581760530 @default.
• W3157327973 cites W2596324635 @default.
• W3157327973 cites W2753234717 @default.
• W3157327973 cites W2753659610 @default.
• W3157327973 cites W2777247948 @default.
• W3157327973 cites W2800009268 @default.
• W3157327973 cites W2888388456 @default.
• W3157327973 cites W2904268494 @default.
• W3157327973 cites W2907114277 @default.
• W3157327973 cites W2913406851 @default.
• W3157327973 cites W2914497501 @default.
• W3157327973 cites W3047830774 @default.
• W3157327973 cites W3048219527 @default.
• W3157327973 cites W3084116859 @default.
• W3157327973 cites W3098692086 @default.
• W3157327973 cites W4297627114 @default.
• W3157327973 doi "https://doi.org/10.1186/s12877-021-02529-8" @default.
• W3157327973 hasPubMedCentralId "https://www.ncbi.nlm.nih.gov/pmc/articles/8524211" @default.
• W3157327973 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/34666711" @default.
• W3157327973 hasPublicationYear "2021" @default.
• W3157327973 type Work @default.
• W3157327973 sameAs 3157327973 @default.
• W3157327973 citedByCount "7" @default.
• W3157327973 countsByYear W31573279732023 @default.
• W3157327973 crossrefType "journal-article" @default.
• W3157327973 hasAuthorship W3157327973A5019822315 @default.
• W3157327973 hasAuthorship W3157327973A5039939371 @default.
• W3157327973 hasAuthorship W3157327973A5041319050 @default.
• W3157327973 hasAuthorship W3157327973A5049394011 @default.
• W3157327973 hasBestOaLocation W31573279731 @default.
• W3157327973 hasConcept C121332964 @default.
• W3157327973 hasConcept C141071460 @default.
• W3157327973 hasConcept C142724271 @default.
• W3157327973 hasConcept C15744967 @default.
• W3157327973 hasConcept C159110408 @default.
• W3157327973 hasConcept C160735492 @default.
• W3157327973 hasConcept C162324750 @default.
• W3157327973 hasConcept C168563851 @default.
• W3157327973 hasConcept C17744445 @default.
• W3157327973 hasConcept C1862650 @default.
• W3157327973 hasConcept C199539241 @default.
• W3157327973 hasConcept C204787440 @default.
• W3157327973 hasConcept C27415008 @default.
• W3157327973 hasConcept C2776831358 @default.
• W3157327973 hasConcept C2777995714 @default.
• W3157327973 hasConcept C2778755073 @default.
• W3157327973 hasConcept C2778818304 @default.
• W3157327973 hasConcept C2779134260 @default.
• W3157327973 hasConcept C2779483572 @default.
• W3157327973 hasConcept C2780385302 @default.
• W3157327973 hasConcept C2780665704 @default.
• W3157327973 hasConcept C2994186709 @default.
• W3157327973 hasConcept C50522688 @default.
• W3157327973 hasConcept C512399662 @default.
• W3157327973 hasConcept C62520636 @default.
• W3157327973 hasConcept C65414064 @default.
• W3157327973 hasConcept C71924100 @default.
• W3157327973 hasConcept C77805123 @default.
• W3157327973 hasConceptScore W3157327973C121332964 @default.
• W3157327973 hasConceptScore W3157327973C141071460 @default.
• W3157327973 hasConceptScore W3157327973C142724271 @default.
• W3157327973 hasConceptScore W3157327973C15744967 @default.
• W3157327973 hasConceptScore W3157327973C159110408 @default.
• W3157327973 hasConceptScore W3157327973C160735492 @default.
• W3157327973 hasConceptScore W3157327973C162324750 @default.
• W3157327973 hasConceptScore W3157327973C168563851 @default.
• W3157327973 hasConceptScore W3157327973C17744445 @default.
• W3157327973 hasConceptScore W3157327973C1862650 @default.
• W3157327973 hasConceptScore W3157327973C199539241 @default.
• W3157327973 hasConceptScore W3157327973C204787440 @default.

• next