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• W3179093178 abstract "Background Childhood visual impairment (VI) has a profound impact on many aspects of childhood and adolescence. This is well-documented in cross-sectional and/or quantitative studies utilizing self-report instruments which compare children with and without VI. Young people’s views on the experience of growing up with VI as a developmental, change-driven process remain largely unexplored. Methods As part of our broader research programme on quality of life of visually impaired children and young people in the United Kingdom, in-depth, semi-structured interviews were conducted between March and June 2015, with a stratified sample of 17 young people with VI, aged 16–19 years. An age-sensitive, empirically-based topic guide encouraged retrospective reflections on participants’ experiences of growing up with VI, including age-normative and vision-specific challenges. Results Descriptions of growing up with VI largely centered on an overarching higher-order theme labelled becoming me . Four themes representing everyday activities, attitudes, preferences and perceptions in relation to i) social relationships , ii) independence and responsibilities , iii) the future , and iv) rising to challenges emerged and were used by participants in their description of three stages in which they developed a sense of self: i) laying the foundations , ii) testing the waters , and iii) this is me . Differences in manifestation of VI influenced how young people made sense of their experiences and their sense of self. Conclusions Findings are discussed in relation to normative and vision-specific changes in psychosocial development during adolescence, including the development of identity. They highlight the need for ongoing monitoring of subjective well-being in a clinical population with a unique early life course trajectory." @default.
• W3179093178 created "2021-07-19" @default.
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• W3179093178 date "2021-07-07" @default.
• W3179093178 modified "2023-10-11" @default.
• W3179093178 title "This is me: A qualitative investigation of young people’s experience of growing up with visual impairment" @default.
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• W3179093178 doi "https://doi.org/10.1371/journal.pone.0254009" @default.
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