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- W3195739291 abstract "More than a decade after the Genetic Information Nondiscrimination Act (GINA) was passed, there is a paucity of research on the general public's awareness of GINA. This study's objective was to assess knowledge of GINA and concerns of genetic discrimination.A quota-based sample of US adults (N = 421) was recruited via Qualtrics Research Services to complete an online survey.Overall, participants had a mean age of 43.1 (SD = 13.9), 51.8% identified as female, 63.1% identified as non-Hispanic White, and 38.4% had ≥4-year college degree. Respondents reported relatively low subjective knowledge of GINA (M = 3.10, SD = 1.98; 7-point Likert scale). Among respondents reporting high subjective knowledge of GINA (16.2%), 92.6% incorrectly reported or did not know that GINA does not covers life, long-term care, and disability insurance, and this number was 82.4% for auto or property insurance. Respondents were relatively likely to decline genetic testing due to concerns about results being used to determine eligibility for employment (M = 4.68, SD = 1.89) or health insurance (M = 4.94, SD = 1.73). There were few consistent demographic associations with either subjective or objective knowledge of GINA.This study highlights continued public concern about genetic discrimination and a lack of awareness and understanding of GINA and its scope of protections." @default.
- W3195739291 created "2021-08-30" @default.
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- W3195739291 date "2021-12-01" @default.
- W3195739291 modified "2023-10-16" @default.
- W3195739291 title "The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage" @default.
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- W3195739291 doi "https://doi.org/10.1038/s41436-021-01268-w" @default.
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