FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W3199664422> ?p ?o ?g. }

• W3199664422 endingPage "163" @default.
• W3199664422 startingPage "163" @default.
• W3199664422 abstract "163 Background: Experts recognize goal-concordant care (GCC) as among the most important outcomes for those with advanced cancer. Despite a conceptual understanding about ways to measure goal-concordant care, we know little about what patient experiences align perceptions of goal concordance. Caregivers’ close proximity to patients give them a unique perspective on what factors contribute to perceived goal concordance. Methods: We conducted semi-structured interviews with 19 recently bereaved family caregivers of those with cancer to understand their experience of care, the extent to which they felt it was goal-concordant, and the factors of care which contextualized their experience. Caregivers were interviewed using a semi-structured guide based on the end-of-life planning module in Round 2 of the National Health and Aging Trends Survey (NHATS). We used template analysis to identify themes across the 19 interviews. Results: Most caregivers reported goal-concordant care when prompted, though many also recalled moments of goal discordance. Three high-level themes characterized their care perceptions: communication, relationships and humanistic care, and care transitions. Sub-themes of communication included clinician communication quality, prognostic communication, and information gaps. First, clear and transparent clinician communication facilitated GCC and high-quality care. Prognostic communication that did not align to patient preferences or consider patient hope was seen as harmful. Information gaps inhibited high-quality care as well as caregivers’ confidence that decisions were goal concordant. Second, relationships between patients and their clinicians enriched care, and humanistic care was seen as higher-quality. Lastly, logistical barriers, the need for relationship rebuilding, uncertain information communication, and a general lack of coordination characterized perceptions around care transitions and goal discordance. In particular, several caregivers noted issues and inter-specialty tensions around transitions specifically involving hospice. Conclusions: Caregivers consistently rated care as goal-concordant while also identifying areas of disappointing and low-quality care. Measures that capture goal-concordant care may be subject to psychological bias and may not clearly align with or predict other measures of care quality. Communication, relationships and humanistic care, and care transitions are all modifiable targets for quality improvement and deserve clear attention for patients with advanced cancer." @default.
• W3199664422 created "2021-09-27" @default.
• W3199664422 creator A5000037351 @default.
• W3199664422 creator A5001675969 @default.
• W3199664422 creator A5014360467 @default.
• W3199664422 creator A5016500543 @default.
• W3199664422 creator A5036228346 @default.
• W3199664422 creator A5063712330 @default.
• W3199664422 date "2021-10-01" @default.
• W3199664422 modified "2023-10-14" @default.
• W3199664422 title "“I think that she would have wanted...”: Caregiver reflections on goal-concordant care for patients with cancer at the end of life." @default.
• W3199664422 doi "https://doi.org/10.1200/jco.2020.39.28_suppl.163" @default.
• W3199664422 hasPublicationYear "2021" @default.
• W3199664422 type Work @default.
• W3199664422 sameAs 3199664422 @default.
• W3199664422 citedByCount "0" @default.
• W3199664422 crossrefType "journal-article" @default.
• W3199664422 hasAuthorship W3199664422A5000037351 @default.
• W3199664422 hasAuthorship W3199664422A5001675969 @default.
• W3199664422 hasAuthorship W3199664422A5014360467 @default.
• W3199664422 hasAuthorship W3199664422A5016500543 @default.
• W3199664422 hasAuthorship W3199664422A5036228346 @default.
• W3199664422 hasAuthorship W3199664422A5063712330 @default.
• W3199664422 hasConcept C126322002 @default.
• W3199664422 hasConcept C15744967 @default.
• W3199664422 hasConcept C159110408 @default.
• W3199664422 hasConcept C160735492 @default.
• W3199664422 hasConcept C160798450 @default.
• W3199664422 hasConcept C162324750 @default.
• W3199664422 hasConcept C169760540 @default.
• W3199664422 hasConcept C26760741 @default.
• W3199664422 hasConcept C2777995714 @default.
• W3199664422 hasConcept C2779951463 @default.
• W3199664422 hasConcept C2780879335 @default.
• W3199664422 hasConcept C2994186709 @default.
• W3199664422 hasConcept C50522688 @default.
• W3199664422 hasConcept C512399662 @default.
• W3199664422 hasConcept C71924100 @default.
• W3199664422 hasConceptScore W3199664422C126322002 @default.
• W3199664422 hasConceptScore W3199664422C15744967 @default.
• W3199664422 hasConceptScore W3199664422C159110408 @default.
• W3199664422 hasConceptScore W3199664422C160735492 @default.
• W3199664422 hasConceptScore W3199664422C160798450 @default.
• W3199664422 hasConceptScore W3199664422C162324750 @default.
• W3199664422 hasConceptScore W3199664422C169760540 @default.
• W3199664422 hasConceptScore W3199664422C26760741 @default.
• W3199664422 hasConceptScore W3199664422C2777995714 @default.
• W3199664422 hasConceptScore W3199664422C2779951463 @default.
• W3199664422 hasConceptScore W3199664422C2780879335 @default.
• W3199664422 hasConceptScore W3199664422C2994186709 @default.
• W3199664422 hasConceptScore W3199664422C50522688 @default.
• W3199664422 hasConceptScore W3199664422C512399662 @default.
• W3199664422 hasConceptScore W3199664422C71924100 @default.
• W3199664422 hasFunder F4320315738 @default.
• W3199664422 hasIssue "28_suppl" @default.
• W3199664422 hasLocation W31996644221 @default.
• W3199664422 hasOpenAccess W3199664422 @default.
• W3199664422 hasPrimaryLocation W31996644221 @default.
• W3199664422 hasRelatedWork W1555808384 @default.
• W3199664422 hasRelatedWork W1965888757 @default.
• W3199664422 hasRelatedWork W1985775887 @default.
• W3199664422 hasRelatedWork W2004811861 @default.
• W3199664422 hasRelatedWork W2161124101 @default.
• W3199664422 hasRelatedWork W2496644809 @default.
• W3199664422 hasRelatedWork W2781939549 @default.
• W3199664422 hasRelatedWork W3179863766 @default.
• W3199664422 hasRelatedWork W4366548556 @default.
• W3199664422 hasRelatedWork W2473990429 @default.
• W3199664422 hasVolume "39" @default.
• W3199664422 isParatext "false" @default.
• W3199664422 isRetracted "false" @default.
• W3199664422 magId "3199664422" @default.
• W3199664422 workType "article" @default.