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- W3203505598 abstract "ABSTRACT Purpose Children living with disabilities (CLWD) are at high risk of malnutrition but have long been marginalised in malnutrition treatment programmes and research. The 2013 World Health Organization (WHO) guidelines for Severe Acute Malnutrition (SAM) mention disability but do not contain specific details for treatment or support. This study assesses inclusion of CLWD in national and international SAM guidelines. Methods National and international SAM guidelines were sourced online and via direct enquiries. Eight scoping key informant interviews were conducted with experts involved in guideline development to help understand possible barriers to formalising malnutrition guidance for CLWD. Results 71 malnutrition guidelines were reviewed (63 national, 8 international). Only 4% (3/71) had a specific section for CLWD, while the remaining lacked guidance on consistently including CLWD in programmes or practice. Only one guideline mentioned strategies to include CLWD during a nutritional emergency. Most (99%,70/71) did not link to other disability-specific guidelines. Of the guidelines that included CLWD, most only discussed disability in general terms despite the fact that different interventions are often needed for children with different conditions. Interviews pointed towards barriers related to medical complexity, resource constraints, epidemiology ( e . g ., unrecognised burden), lack of evidence, and difficulty of integration into existing guidelines. Conclusion Children living with disability are not recognised in most SAM guidelines. Where they are, recommendations are very limited. Better evidence is urgently needed to identify and manage CLWD in malnutrition programmes. More inclusion in the 2022 update of the WHO malnutrition guidelines could support this vulnerable group." @default.
- W3203505598 created "2021-10-11" @default.
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- W3203505598 date "2021-09-28" @default.
- W3203505598 modified "2023-09-26" @default.
- W3203505598 title "Children Living with Disabilities Are Absent From Severe Malnutrition Guidelines" @default.
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- W3203505598 doi "https://doi.org/10.1101/2021.09.24.21264078" @default.
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