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• W3204184712 abstract "Despite having adopted requirements that apply in all nontherapeutic research, the case law presented in the previous Chapter was explicitly based on a single category of research projects: the clinical trial. Population biobanks are, as we will see, a distinct category and raise distinct concerns. Whether in their structure, ultimate objectives, or their observational nature, biobanks provide a case study of challenges faced as a consequence of the contemporary legal interpretation of the duty to inform in research. More specifically, and as I outlined above, I contend that the duty to inform, as it has been traditionally understood by Canadian courts, turns on individualistic considerations related to participants. In doing so, it neglects to consider how research participants and other stakeholders impact upon each other in the population biobanking setting. In other words, participants are conceived as independent agents rather than interdependent with other stakeholders. This is all the more problematic in population biobanks, where stakeholders outside of the researcher–participant relationship play a central role. Indeed, both the general public and research community, for example, have come to play increasingly important roles. This chapter aims at highlighting this trend by describing the nature and characteristics of population biobanks and, where possible, outlining how they interact with stakeholders outside of the traditional researcher–participant relationship. In fact, this chapter will demonstrate that while population biobanks clearly implicate the interests of participants, so too do they depend on the public and the broader research community." @default.
• W3204184712 created "2021-10-11" @default.
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• W3204184712 date "2022-01-01" @default.
• W3204184712 modified "2023-09-27" @default.
• W3204184712 title "Characteristics of population biobanks" @default.
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• W3204184712 doi "https://doi.org/10.1016/b978-0-323-91286-0.00003-4" @default.
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