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- W3204451968 abstract "Florence Nightingale, nurse and public health practitioner, was a forerunner in outcome assessment (Appleby J, Devlin N. Measuring success in the NHS. In: Using patient-assessed health outcomes to manage the performance of health care providers. London: King’s Fund/Dr Foster; 2004). Clinical outcome assessment (COA), an overarching term for patient-related outcomes, is subcategorised by changes observed/reported by either the patient, clinician or non-clinician or measurable physiological changes. A phenomenal evolution in medical technology has fuelled disease prevention, diagnosis and treatment and patient survival. The utlisation of patient-centred healthcare outputs has progressed more slowly.Patient-centred concepts motivate and empower patients’ voice and sense of control despite life-limiting health conditions. They promote the biopsychosocial perspective and shared decision-making through a therapeutic alliance (Michie et al., Patient Educ Couns 51:197–206, 2003; Mead and Bower, Soc Sci Med 51:1087–110, 2000; Saha et al., J Natl Med Assoc 100:1275–85, 2008) essentially driven by respect for the patient. Patient-centred concepts are integrated into clinical care, policy-making, research design and methodology and inform instrument development. ‘Nothing about us, without us’ strengthens the patient voice and participation (Chu et al., BMJ 354:i3883, 2016).Palliative care epitomises patient-centred care values and principles: palliating symptom distress and optimising health-related quality of life (HRQoL). Palliation requires responsiveness to the patient’s changing experience of their fluctuating health condition and life circumstances.‘Patient-centredness’, a contemporary buzzword for healthcare excellence, belies patients being consistently at the centre of healthcare. The survival of patient-centred approaches struggles against a revenue-centred healthcare industry, wherein myopic financial-centred analytics may diminish the value and resources of patients and care team members. Patient-centred outcomes research (PCOR) strives to meet these challenges in optimising healthcare, through integrating patient perspectives, priorities, preferences, beliefs and values with patient-valued outcomes and long-term fiscal health.This chapter outlines patient-centred strategies associated with COAs including patient-reported measures (PRMs) of outcomes, experience and motivation, the lived experience and treatment preferences that optimise clinical and research environments in palliative care in lung disease, therapeutic relationships and data collection to support policy and patient-centred infrastructure. This chapter is designed to support the content of the subsequent chapters of this textbook." @default.
- W3204451968 created "2021-10-11" @default.
- W3204451968 creator A5026551577 @default.
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- W3204451968 date "2021-01-01" @default.
- W3204451968 modified "2023-09-24" @default.
- W3204451968 title "Patient-Centredness and Patient-Reported Measures (PRMs) in Palliation of Lung Disease" @default.
- W3204451968 cites W1556323812 @default.
- W3204451968 cites W1578672048 @default.
- W3204451968 cites W1583754202 @default.
- W3204451968 cites W1628226928 @default.
- W3204451968 cites W1837267844 @default.
- W3204451968 cites W1875747230 @default.
- W3204451968 cites W1923062767 @default.
- W3204451968 cites W1966259155 @default.
- W3204451968 cites W1967748161 @default.
- W3204451968 cites W1972192539 @default.
- W3204451968 cites W1975148131 @default.
- W3204451968 cites W1975285483 @default.
- W3204451968 cites W1975793762 @default.
- W3204451968 cites W1977552182 @default.
- W3204451968 cites W1979301476 @default.
- W3204451968 cites W1985565165 @default.
- W3204451968 cites W1990166011 @default.
- W3204451968 cites W1990889011 @default.
- W3204451968 cites W1992065469 @default.
- W3204451968 cites W2001923922 @default.
- W3204451968 cites W2005078500 @default.
- W3204451968 cites W2005433388 @default.
- W3204451968 cites W2016981921 @default.
- W3204451968 cites W2020127353 @default.
- W3204451968 cites W2022006179 @default.
- W3204451968 cites W2023588564 @default.
- W3204451968 cites W2027365236 @default.
- W3204451968 cites W2027566116 @default.
- W3204451968 cites W2029538037 @default.
- W3204451968 cites W2031756259 @default.
- W3204451968 cites W2033980725 @default.
- W3204451968 cites W2037286772 @default.
- W3204451968 cites W2038962823 @default.
- W3204451968 cites W2043390017 @default.
- W3204451968 cites W2047101195 @default.
- W3204451968 cites W2049538291 @default.
- W3204451968 cites W2049998466 @default.
- W3204451968 cites W2052977441 @default.
- W3204451968 cites W2053689306 @default.
- W3204451968 cites W2059077168 @default.
- W3204451968 cites W2067949717 @default.
- W3204451968 cites W2070309415 @default.
- W3204451968 cites W2071699044 @default.
- W3204451968 cites W2076044700 @default.
- W3204451968 cites W2084684408 @default.
- W3204451968 cites W2085378460 @default.
- W3204451968 cites W2091343120 @default.
- W3204451968 cites W2096868672 @default.
- W3204451968 cites W2098017386 @default.
- W3204451968 cites W2098098843 @default.
- W3204451968 cites W2099667987 @default.
- W3204451968 cites W2100551390 @default.
- W3204451968 cites W2107723678 @default.
- W3204451968 cites W2110871781 @default.
- W3204451968 cites W2111629627 @default.
- W3204451968 cites W2114703873 @default.
- W3204451968 cites W2116690628 @default.
- W3204451968 cites W2118666712 @default.
- W3204451968 cites W2119614921 @default.
- W3204451968 cites W2121046615 @default.
- W3204451968 cites W2128077231 @default.
- W3204451968 cites W2130414716 @default.
- W3204451968 cites W2132322340 @default.
- W3204451968 cites W2134867579 @default.
- W3204451968 cites W2136185137 @default.
- W3204451968 cites W2136272299 @default.
- W3204451968 cites W2137471458 @default.
- W3204451968 cites W2138456319 @default.
- W3204451968 cites W2138664283 @default.
- W3204451968 cites W2138784721 @default.
- W3204451968 cites W2138871107 @default.
- W3204451968 cites W2141625031 @default.
- W3204451968 cites W2141997945 @default.
- W3204451968 cites W2146400009 @default.
- W3204451968 cites W2147309394 @default.
- W3204451968 cites W2149103558 @default.
- W3204451968 cites W2150791953 @default.
- W3204451968 cites W2151186028 @default.
- W3204451968 cites W2151811972 @default.
- W3204451968 cites W2152628336 @default.
- W3204451968 cites W2159249088 @default.
- W3204451968 cites W2159843609 @default.
- W3204451968 cites W2159974544 @default.
- W3204451968 cites W2160726475 @default.
- W3204451968 cites W2163711937 @default.
- W3204451968 cites W2164510086 @default.
- W3204451968 cites W2165988683 @default.
- W3204451968 cites W2167987787 @default.
- W3204451968 cites W2168592878 @default.
- W3204451968 cites W2168746889 @default.
- W3204451968 cites W2168864180 @default.