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- W3210171183 abstract "Background: The COVID-19 pandemic has accelerated adoption of remote ways of providing hospice care, including psychological support. Emotional disclosure (ED) interventions hold potential as a way of providing such support online. But evidence supporting use of ED interventions for people living with terminal illness is limited. We are testing an online psychological intervention, Let It Out (LIO), consisting of three self-guided expression sessions over two weeks. Aims: The primary aim is to inform the development of LIO. Secondary aims include assessing LIO's acceptability, feasibility of study methods and potential impact on wellbeing. Methods: A mixed-methods, longitudinal study. Adults receiving palliative care were recruited from six UK hospices from September 2020 to January 2021. Participants received the LIO intervention, and completed physical and psychological health-related questionnaires at baseline and immediately, one week, four weeks and eight weeks after the final expression session, with a feedback form after the final session. Two also took part in a semi-structured interview. Focus groups and interviews have also been held with 12 hospice staff and volunteers. Data have been triangulated through process evaluation. Results: Of 13 patients recruited, 8 have completed all three expression sessions. Most people who finish LIO find it helpful (7/8). One person who withdrew found the online platform too complicated to use. Staff felt LIO could be helpful for computer-literate patients, but reported difficulties with recruitment. Conclusion: Preliminary evidence suggests LIO holds potential to support wellbeing for some people living with terminal illness. Adaptions are required to make the online platform more user-friendly. This study demonstrates the value of robust consultation with patients and staff in the development of acceptable online interventions for use in palliative care." @default.
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- W3210171183 date "2021-01-01" @default.
- W3210171183 modified "2023-09-23" @default.
- W3210171183 title "Let it out (LIO): A mixed-methods study to optimise the design of an online, emotional disclosure intervention for adults with terminal illness receiving hospice care" @default.
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