FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W3215244100> ?p ?o ?g. }

• W3215244100 endingPage "377" @default.
• W3215244100 startingPage "367" @default.
• W3215244100 abstract "Data repositories, like research biobanks, seek to optimise the number of responding participants while simultaneously attempting to increase the amount of data donated per participant. Such efforts aim to increase the repository's value for its uses in medical research to contribute to improve health care, especially when data linkage is permitted by participants. We investigated individuals' motives for participating in such projects and potential reasons for their withdrawal from participation in a population-based biobank. In addition, we analysed how these motives were related to various characteristics of the participants and their willingness to permit data linkage to their personal data for research. These questions were explored using a sample of participants in the Dutch Lifelines biobank (n = 2615). Our results indicated that motives for participation and withdrawal were premised on benefits or harm to society and to the individuals themselves. Although general values and trust both played key roles in participation, potential withdrawal and willingness to permit data linkage, they were differentially associated with motives for participation and withdrawal. These findings support and nuance previous findings by highlighting the distinctiveness and complexity of decision making regarding participation in or withdrawal from data donation. We suggest some new directions for improving recruitment, retention and safeguarding strategies in biobanking. In addition, our data provide initial evidence regarding how factors may relate with the probability that individuals will agree to data linkages, when controlling for their unique effects. Future research should further investigate how perceptions of harm and benefits may influence decision making on withdrawal of participation." @default.
• W3215244100 created "2021-12-06" @default.
• W3215244100 creator A5009609107 @default.
• W3215244100 creator A5018500463 @default.
• W3215244100 creator A5022603747 @default.
• W3215244100 creator A5025997613 @default.
• W3215244100 creator A5074727449 @default.
• W3215244100 date "2021-11-22" @default.
• W3215244100 modified "2023-10-08" @default.
• W3215244100 title "Motives for withdrawal of participation in biobanking and participants’ willingness to allow linkages of their data" @default.
• W3215244100 cites W1967066861 @default.
• W3215244100 cites W1968416619 @default.
• W3215244100 cites W1989935020 @default.
• W3215244100 cites W1997102788 @default.
• W3215244100 cites W2031708455 @default.
• W3215244100 cites W2033999925 @default.
• W3215244100 cites W2037807779 @default.
• W3215244100 cites W2074650530 @default.
• W3215244100 cites W2087822793 @default.
• W3215244100 cites W2093087398 @default.
• W3215244100 cites W2103516623 @default.
• W3215244100 cites W2105014595 @default.
• W3215244100 cites W2119086081 @default.
• W3215244100 cites W2120077815 @default.
• W3215244100 cites W2127405899 @default.
• W3215244100 cites W2131541399 @default.
• W3215244100 cites W2142323439 @default.
• W3215244100 cites W2417482206 @default.
• W3215244100 cites W2429251702 @default.
• W3215244100 cites W2509046702 @default.
• W3215244100 cites W2521104665 @default.
• W3215244100 cites W2528472811 @default.
• W3215244100 cites W2551792675 @default.
• W3215244100 cites W2586610513 @default.
• W3215244100 cites W2610529552 @default.
• W3215244100 cites W2731339037 @default.
• W3215244100 cites W2750182232 @default.
• W3215244100 cites W2752808925 @default.
• W3215244100 cites W2792418966 @default.
• W3215244100 cites W2800653202 @default.
• W3215244100 cites W2801527617 @default.
• W3215244100 cites W2901892047 @default.
• W3215244100 cites W2912178335 @default.
• W3215244100 cites W2924023035 @default.
• W3215244100 cites W2936749120 @default.
• W3215244100 cites W2947572397 @default.
• W3215244100 cites W2957896895 @default.
• W3215244100 cites W2966400616 @default.
• W3215244100 cites W2973432378 @default.
• W3215244100 cites W2984546756 @default.
• W3215244100 cites W2990454706 @default.
• W3215244100 cites W2998981248 @default.
• W3215244100 cites W3007103738 @default.
• W3215244100 cites W3028329270 @default.
• W3215244100 cites W3046240878 @default.
• W3215244100 cites W3046330016 @default.
• W3215244100 cites W3046626448 @default.
• W3215244100 cites W320587423 @default.
• W3215244100 cites W4248588746 @default.
• W3215244100 cites W4254213139 @default.
• W3215244100 cites W4313429353 @default.
• W3215244100 doi "https://doi.org/10.1038/s41431-021-00997-5" @default.
• W3215244100 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/34803164" @default.
• W3215244100 hasPublicationYear "2021" @default.
• W3215244100 type Work @default.
• W3215244100 sameAs 3215244100 @default.
• W3215244100 citedByCount "5" @default.
• W3215244100 countsByYear W32152441002022 @default.
• W3215244100 countsByYear W32152441002023 @default.
• W3215244100 crossrefType "journal-article" @default.
• W3215244100 hasAuthorship W3215244100A5009609107 @default.
• W3215244100 hasAuthorship W3215244100A5018500463 @default.
• W3215244100 hasAuthorship W3215244100A5022603747 @default.
• W3215244100 hasAuthorship W3215244100A5025997613 @default.
• W3215244100 hasAuthorship W3215244100A5074727449 @default.
• W3215244100 hasBestOaLocation W32152441001 @default.
• W3215244100 hasConcept C116567970 @default.
• W3215244100 hasConcept C15744967 @default.
• W3215244100 hasConcept C159110408 @default.
• W3215244100 hasConcept C162324750 @default.
• W3215244100 hasConcept C187736073 @default.
• W3215244100 hasConcept C26077564 @default.
• W3215244100 hasConcept C2776743756 @default.
• W3215244100 hasConcept C2777363581 @default.
• W3215244100 hasConcept C47385372 @default.
• W3215244100 hasConcept C60644358 @default.
• W3215244100 hasConcept C71924100 @default.
• W3215244100 hasConcept C77805123 @default.
• W3215244100 hasConcept C86803240 @default.
• W3215244100 hasConceptScore W3215244100C116567970 @default.
• W3215244100 hasConceptScore W3215244100C15744967 @default.
• W3215244100 hasConceptScore W3215244100C159110408 @default.
• W3215244100 hasConceptScore W3215244100C162324750 @default.
• W3215244100 hasConceptScore W3215244100C187736073 @default.
• W3215244100 hasConceptScore W3215244100C26077564 @default.
• W3215244100 hasConceptScore W3215244100C2776743756 @default.
• W3215244100 hasConceptScore W3215244100C2777363581 @default.
• W3215244100 hasConceptScore W3215244100C47385372 @default.

• next