FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W3215252102> ?p ?o ?g. }

• W3215252102 endingPage "12395" @default.
• W3215252102 startingPage "12395" @default.
• W3215252102 abstract "Rare diseases (RDs), with distinctive and complex features, pose a serious public health concern and represent a considerable challenge for the Slovenian healthcare system. One of the potential approaches to tackling this problem and treating patients with RDs in a quality and effective manner is to form an RD ecosystem. This represents a functional environment that integrates all stakeholders, procedures, and relationships required for the coordinated and effective treatment of patients. This paper explores the current situation in the field of RDs, especially in light of the proposed ecosystemic arrangement, and provides an outline for the design of an RD ecosystem in Slovenia. The research applies a case-study design, where focus groups are used to collect evidence from the field, assess the state of affairs, and generate ideas. Structured focus group discussions were conducted with preeminent experts affiliated with the leading institutions in the field of RDs in Slovenia. Analyses and interpretations of the obtained data were carried out by means of conventional content analysis. Setting up an RD ecosystem in Slovenia would lead to significant benefits for patients, as it could promote the coordination of healthcare treatment and facilitate extensive monitoring of the treatment parameters and outcomes. A well-organized RD ecosystem could garner considerable systemic benefits for evidence-informed policymaking, a better utilization of resources, and technological innovation. Delivering quality healthcare in this complex field is largely reliant on the effective integration and collaboration of all entities within the RD ecosystem, the alignment of related systemic factors, and the direction of healthcare services to support the needs and well-being of patients with RDs." @default.
• W3215252102 created "2021-12-06" @default.
• W3215252102 creator A5027176509 @default.
• W3215252102 creator A5029708619 @default.
• W3215252102 creator A5049778994 @default.
• W3215252102 creator A5081415463 @default.
• W3215252102 creator A5083550135 @default.
• W3215252102 date "2021-11-25" @default.
• W3215252102 modified "2023-10-16" @default.
• W3215252102 title "Towards a Comprehensive Strategy for the Management of Rare Diseases in Slovenia: Outlining an IT-Enabled Ecosystemic Approach" @default.
• W3215252102 cites W1486449559 @default.
• W3215252102 cites W1974669541 @default.
• W3215252102 cites W2015823515 @default.
• W3215252102 cites W2027072101 @default.
• W3215252102 cites W2060707028 @default.
• W3215252102 cites W2067404301 @default.
• W3215252102 cites W2085227513 @default.
• W3215252102 cites W2111614279 @default.
• W3215252102 cites W2126714363 @default.
• W3215252102 cites W2142225512 @default.
• W3215252102 cites W2144190226 @default.
• W3215252102 cites W2150104072 @default.
• W3215252102 cites W2235073318 @default.
• W3215252102 cites W2356144961 @default.
• W3215252102 cites W2743415974 @default.
• W3215252102 cites W2765536636 @default.
• W3215252102 cites W2886173545 @default.
• W3215252102 cites W2911379028 @default.
• W3215252102 cites W2921313412 @default.
• W3215252102 cites W2959297002 @default.
• W3215252102 cites W2963193540 @default.
• W3215252102 cites W2965185556 @default.
• W3215252102 cites W2973267506 @default.
• W3215252102 cites W2988630324 @default.
• W3215252102 cites W2994844251 @default.
• W3215252102 cites W2999840984 @default.
• W3215252102 cites W3001616402 @default.
• W3215252102 cites W3006434948 @default.
• W3215252102 cites W3013178359 @default.
• W3215252102 cites W3013917401 @default.
• W3215252102 cites W3026005656 @default.
• W3215252102 cites W3037041073 @default.
• W3215252102 cites W3049229579 @default.
• W3215252102 cites W3093994858 @default.
• W3215252102 cites W4234758319 @default.
• W3215252102 doi "https://doi.org/10.3390/ijerph182312395" @default.
• W3215252102 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/34886121" @default.
• W3215252102 hasPublicationYear "2021" @default.
• W3215252102 type Work @default.
• W3215252102 sameAs 3215252102 @default.
• W3215252102 citedByCount "0" @default.
• W3215252102 crossrefType "journal-article" @default.
• W3215252102 hasAuthorship W3215252102A5027176509 @default.
• W3215252102 hasAuthorship W3215252102A5029708619 @default.
• W3215252102 hasAuthorship W3215252102A5049778994 @default.
• W3215252102 hasAuthorship W3215252102A5081415463 @default.
• W3215252102 hasAuthorship W3215252102A5083550135 @default.
• W3215252102 hasBestOaLocation W32152521021 @default.
• W3215252102 hasConcept C107826830 @default.
• W3215252102 hasConcept C110872660 @default.
• W3215252102 hasConcept C111472728 @default.
• W3215252102 hasConcept C138885662 @default.
• W3215252102 hasConcept C144133560 @default.
• W3215252102 hasConcept C160735492 @default.
• W3215252102 hasConcept C162324750 @default.
• W3215252102 hasConcept C162853370 @default.
• W3215252102 hasConcept C17744445 @default.
• W3215252102 hasConcept C18903297 @default.
• W3215252102 hasConcept C195094911 @default.
• W3215252102 hasConcept C199539241 @default.
• W3215252102 hasConcept C202444582 @default.
• W3215252102 hasConcept C2779530757 @default.
• W3215252102 hasConcept C2988170871 @default.
• W3215252102 hasConcept C33923547 @default.
• W3215252102 hasConcept C41008148 @default.
• W3215252102 hasConcept C56739046 @default.
• W3215252102 hasConcept C56995899 @default.
• W3215252102 hasConcept C58941895 @default.
• W3215252102 hasConcept C71924100 @default.
• W3215252102 hasConcept C86803240 @default.
• W3215252102 hasConcept C9652623 @default.
• W3215252102 hasConceptScore W3215252102C107826830 @default.
• W3215252102 hasConceptScore W3215252102C110872660 @default.
• W3215252102 hasConceptScore W3215252102C111472728 @default.
• W3215252102 hasConceptScore W3215252102C138885662 @default.
• W3215252102 hasConceptScore W3215252102C144133560 @default.
• W3215252102 hasConceptScore W3215252102C160735492 @default.
• W3215252102 hasConceptScore W3215252102C162324750 @default.
• W3215252102 hasConceptScore W3215252102C162853370 @default.
• W3215252102 hasConceptScore W3215252102C17744445 @default.
• W3215252102 hasConceptScore W3215252102C18903297 @default.
• W3215252102 hasConceptScore W3215252102C195094911 @default.
• W3215252102 hasConceptScore W3215252102C199539241 @default.
• W3215252102 hasConceptScore W3215252102C202444582 @default.
• W3215252102 hasConceptScore W3215252102C2779530757 @default.
• W3215252102 hasConceptScore W3215252102C2988170871 @default.
• W3215252102 hasConceptScore W3215252102C33923547 @default.
• W3215252102 hasConceptScore W3215252102C41008148 @default.

• next