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- W3215268889 abstract "Pain is the most prominent symptom interfering with quality of life in patients with rheumatic diseases. Therefore, pain reduction is rated as the most important outcome criteria in studies asking patients with rheumatoid arthritis for their preferences. 1 Strand V Wright GC Bergman MJ Tambiah J Taylor PC Patient expectations and perceptions of goal-setting strategies for disease management in rheumatoid arthritis. J Rheumatol. 2015; 42: 2046-2054 Crossref PubMed Scopus (36) Google Scholar , 2 Sanderson T Morris M Calnan M Richards P Hewlett S Patient perspective of measuring treatment efficacy: the rheumatoid arthritis patient priorities for pharmacologic interventions outcomes. Arthritis Care Res (Hoboken). 2010; 62: 647-656 Crossref PubMed Scopus (113) Google Scholar However, since the introduction of biologics and the declaring of remission as the main target for those with rheumatic diseases by international societies (as is the case for treating rheumatoid arthritis), pain was somewhat out of focus. Only in recent years has pain been considered to be an integral part of studies of patients with rheumatic diseases and is investigated more frequently in clinical practice as an important patient-reported outcome measure. Still, there exists a huge difference in the recognition of pain between various rheumatic diseases. Although pain is considered to be a disease key symptom in rheumatoid arthritis; the focus lies mainly on disease manifestations and comorbidities in systemic sclerosis. In an extensive review of the management of systemic sclerosis, pain and its treatment was hardly mentioned at all as a challenge for clinical practice. 3 McMahan ZH Hummers LK Systemic sclerosis--challenges for clinical practice. Nat Rev Rheumatol. 2013; 9: 90-100 Crossref PubMed Scopus (20) Google Scholar Similarly, only a few studies have addressed pain as a PRO in systemic sclerosis. Pain levels and associated factors in the Scleroderma Patient-centered Intervention Network (SPIN) cohort: a multicentre cross-sectional studyPain is common among people with systemic sclerosis. Controlling for sociodemographic variables, greater pain was associated with multiple systemic sclerosis-related manifestations, including joint contractures, digital ulcers, gastrointestinal involvement, skin involvement, and the presence of overlap syndromes. Health-care providers should work with patients to address pain, including identifying and addressing systemic sclerosis manifestations associated with their pain, and supporting behavioural approaches to minimise impact on function and quality of life. Full-Text PDF" @default.
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- W3215268889 date "2021-12-01" @default.
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- W3215268889 title "Prioritising pain in patients with systemic sclerosis" @default.
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- W3215268889 doi "https://doi.org/10.1016/s2665-9913(21)00350-7" @default.
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