Matches in SemOpenAlex for { <https://semopenalex.org/work/W3216521353> ?p ?o ?g. }
- W3216521353 endingPage "909" @default.
- W3216521353 startingPage "903" @default.
- W3216521353 abstract "The lack of validated and responsive outcome measures in the management of frontal fibrosing alopecia (FFA) significantly limits assessment of disease progression and treatment response over time.To understand how FFA extent and progression is currently assessed in UK specialist centres, to validate components of the International FFA Cooperative Group (IFFACG) statement on FFA assessment, and to identify pragmatic advice to improve FFA management in clinic.Consultant dermatologists with a specialist interest in hair loss (n = 17) were invited to take part. Preferred FFA assessment methods were explored using questionnaires and clinical scenarios. Participants were asked to identify and mark the current hairline in 10 frontal and 10 temporal hairline images (Questionnaire 1), with assessment repeated 3 months later to assess intraindividual variability (Questionnaire 2) and 12 months later to test whether interindividual accuracy could be improved with simple instruction (Questionnaire 3).All 17 clinicians (100%) completed the questionnaire at each time interval. We identified a wide variation in assessment techniques used by our experts. Measurements were perceived as the most accurate method of assessing frontal recession whereas photography was preferred for temporal recession. Inter-rater reliability between clinicians measuring the frontal hairline scenarios indicated a moderate strength of agreement [intraclass coefficient (ICC) = 0.61; 95% CI 0.40-0.85], yet intrarater reliability was found to be poor with wide limits of agreement (-8.71 mm to 9.92 mm) on follow-up. Importantly, when clear guidance was provided on how the hairline should be identified (Questionnaire 3), inter-rater reliability improved significantly, with ICC = 0.70, suggesting moderate agreement (95% CI 0.51-0.89; P < 0.001). A similar pattern was seen with temporal hairline measurements, which again improved in accuracy with instruction.We found that accuracy of measurements in FFA can be improved with simple instruction and we have validated components of the IFFACG measurement recommendations." @default.
- W3216521353 created "2021-12-06" @default.
- W3216521353 creator A5001407559 @default.
- W3216521353 creator A5004415173 @default.
- W3216521353 creator A5008315006 @default.
- W3216521353 creator A5011386065 @default.
- W3216521353 creator A5019137918 @default.
- W3216521353 creator A5019716240 @default.
- W3216521353 creator A5020133324 @default.
- W3216521353 creator A5024070291 @default.
- W3216521353 creator A5035206350 @default.
- W3216521353 creator A5035490480 @default.
- W3216521353 creator A5037095218 @default.
- W3216521353 creator A5040814922 @default.
- W3216521353 creator A5042956550 @default.
- W3216521353 creator A5061024191 @default.
- W3216521353 creator A5063264985 @default.
- W3216521353 creator A5065337670 @default.
- W3216521353 creator A5066951320 @default.
- W3216521353 creator A5071739641 @default.
- W3216521353 creator A5076741369 @default.
- W3216521353 creator A5078351171 @default.
- W3216521353 creator A5083052773 @default.
- W3216521353 creator A5090709609 @default.
- W3216521353 date "2022-01-20" @default.
- W3216521353 modified "2023-09-27" @default.
- W3216521353 title "Frontal fibrosing alopecia: survey of severity assessment methods in routine clinical practice and validation of the International Frontal Fibrosing Alopecia Cooperative Group measurement guidance" @default.
- W3216521353 cites W1594596002 @default.
- W3216521353 cites W1921909547 @default.
- W3216521353 cites W1924800224 @default.
- W3216521353 cites W1965595866 @default.
- W3216521353 cites W1988279333 @default.
- W3216521353 cites W2050095958 @default.
- W3216521353 cites W2128103577 @default.
- W3216521353 cites W2133967216 @default.
- W3216521353 cites W2291925731 @default.
- W3216521353 cites W2300330529 @default.
- W3216521353 cites W2327037637 @default.
- W3216521353 cites W2492653184 @default.
- W3216521353 cites W2624070680 @default.
- W3216521353 cites W2755455242 @default.
- W3216521353 cites W2757211917 @default.
- W3216521353 cites W2796689110 @default.
- W3216521353 cites W2893220308 @default.
- W3216521353 cites W2900890830 @default.
- W3216521353 cites W2920959276 @default.
- W3216521353 cites W2929846652 @default.
- W3216521353 cites W2998314473 @default.
- W3216521353 cites W3013147675 @default.
- W3216521353 cites W3017206483 @default.
- W3216521353 cites W3168459374 @default.
- W3216521353 cites W4294250347 @default.
- W3216521353 doi "https://doi.org/10.1111/ced.15035" @default.
- W3216521353 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/34826169" @default.
- W3216521353 hasPublicationYear "2022" @default.
- W3216521353 type Work @default.
- W3216521353 sameAs 3216521353 @default.
- W3216521353 citedByCount "1" @default.
- W3216521353 countsByYear W32165213532023 @default.
- W3216521353 crossrefType "journal-article" @default.
- W3216521353 hasAuthorship W3216521353A5001407559 @default.
- W3216521353 hasAuthorship W3216521353A5004415173 @default.
- W3216521353 hasAuthorship W3216521353A5008315006 @default.
- W3216521353 hasAuthorship W3216521353A5011386065 @default.
- W3216521353 hasAuthorship W3216521353A5019137918 @default.
- W3216521353 hasAuthorship W3216521353A5019716240 @default.
- W3216521353 hasAuthorship W3216521353A5020133324 @default.
- W3216521353 hasAuthorship W3216521353A5024070291 @default.
- W3216521353 hasAuthorship W3216521353A5035206350 @default.
- W3216521353 hasAuthorship W3216521353A5035490480 @default.
- W3216521353 hasAuthorship W3216521353A5037095218 @default.
- W3216521353 hasAuthorship W3216521353A5040814922 @default.
- W3216521353 hasAuthorship W3216521353A5042956550 @default.
- W3216521353 hasAuthorship W3216521353A5061024191 @default.
- W3216521353 hasAuthorship W3216521353A5063264985 @default.
- W3216521353 hasAuthorship W3216521353A5065337670 @default.
- W3216521353 hasAuthorship W3216521353A5066951320 @default.
- W3216521353 hasAuthorship W3216521353A5071739641 @default.
- W3216521353 hasAuthorship W3216521353A5076741369 @default.
- W3216521353 hasAuthorship W3216521353A5078351171 @default.
- W3216521353 hasAuthorship W3216521353A5083052773 @default.
- W3216521353 hasAuthorship W3216521353A5090709609 @default.
- W3216521353 hasBestOaLocation W32165213532 @default.
- W3216521353 hasConcept C104709138 @default.
- W3216521353 hasConcept C121332964 @default.
- W3216521353 hasConcept C126322002 @default.
- W3216521353 hasConcept C163258240 @default.
- W3216521353 hasConcept C171606756 @default.
- W3216521353 hasConcept C1862650 @default.
- W3216521353 hasConcept C197815874 @default.
- W3216521353 hasConcept C43214815 @default.
- W3216521353 hasConcept C44249647 @default.
- W3216521353 hasConcept C62520636 @default.
- W3216521353 hasConcept C70410870 @default.
- W3216521353 hasConcept C71924100 @default.
- W3216521353 hasConceptScore W3216521353C104709138 @default.
- W3216521353 hasConceptScore W3216521353C121332964 @default.
- W3216521353 hasConceptScore W3216521353C126322002 @default.