FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W3217526364> ?p ?o ?g. }

• W3217526364 endingPage "5000" @default.
• W3217526364 startingPage "5000" @default.
• W3217526364 abstract "Abstract Introduction: Sickle cell disease (SCD) is an autosomal recessive hemoglobinopathy that causes red blood cell sickling and blockage of blood vessels that result in painful debilitating vaso-occlusive crises (VOC). Yet, individuals with SCD face negative stereotyping and stigmatization when accessing healthcare that contribute not only to feelings of shame, anger and distrust towards providers, but also to serious complications and poor outcomes. Comparison of individuals' experiences, assessment and management of VOC across different cultural landscapes may identify intervenable targets that could improve overall care and outcomes of SCD. Methods: This is a transnational qualitative research study that examined the perceptions, treatments and socio-economic impacts of pain in participants living with SCD in Jamaica (n= 31) and Cameroon (n=50). Participants completed semi-structured interviews that were collectively examined for themes and differences in experiences with acute and chronic pain. Analysis was completed using NVivo 12. Results: Both Jamaican and Cameroonian participants reported diverse psychosocial, physical and health causes of their VOC including, strenuous physical activity, intense emotionality, unhealthy lifestyle behaviors, other health conditions and extreme weather conditions. Similarly, both had challenges communicating the severity and type of VOC pain to providers when accessing healthcare for themselves and their children. Furthermore, both reported providers' reliance on non-validated forms of pain assessment (Cameroon &gt; Jamaica) such as behavioral cues rather than standardized numerical or visual scales that participants believed were easy-to-use and capable of improving the assessment and treatment of VOC. Jamaican participants also experienced more positive, less-discriminatory practices treating their VOC in specialized vs. unspecialized SCD public and private clinical settings. At least half of all participants reported satisfaction with overall provider treatment of VOC. Both Jamaican and Cameroonian participants primarily used non-opioid pain analgesics, daily folic acid and distraction rather than hydroxyurea to manage their acute and chronic VOC pain and thereby, presented late for treatment of unbearable pain. Participants also reported using both traditional medicine and lifestyle changes to maintain a positive mindset and decrease the occurrences of VOC. Lifestyle changes included eating a healthy diet, engaging in relaxation activities and mindfulness techniques (massages, breathing exercises, listening to music and resting). All participants were interested in learning about alternative methods of managing their VOC pain. Conclusion: The use of validated numerical and visual pain scales as well as the implementation of specialized SCD facilities in the public and private clinic settings may help eliminate communication barriers and discriminatory practices to improve overall satisfaction and treatment of VOC in SCD. Disclosures Asnani: Aruvant Sciences: Research Funding; Avicanna Ltd.: Research Funding." @default.
• W3217526364 created "2021-12-06" @default.
• W3217526364 creator A5013631017 @default.
• W3217526364 creator A5015098375 @default.
• W3217526364 creator A5023130040 @default.
• W3217526364 creator A5033734393 @default.
• W3217526364 creator A5045461281 @default.
• W3217526364 creator A5077112805 @default.
• W3217526364 creator A5085722482 @default.
• W3217526364 date "2021-11-05" @default.
• W3217526364 modified "2023-10-13" @default.
• W3217526364 title "Examining Experiences of Acute and Chronic Pain Among Individuals with Sickle Cell Disease (SCD) in Jamaica and Cameroon" @default.
• W3217526364 doi "https://doi.org/10.1182/blood-2021-153161" @default.
• W3217526364 hasPublicationYear "2021" @default.
• W3217526364 type Work @default.
• W3217526364 sameAs 3217526364 @default.
• W3217526364 citedByCount "1" @default.
• W3217526364 crossrefType "journal-article" @default.
• W3217526364 hasAuthorship W3217526364A5013631017 @default.
• W3217526364 hasAuthorship W3217526364A5015098375 @default.
• W3217526364 hasAuthorship W3217526364A5023130040 @default.
• W3217526364 hasAuthorship W3217526364A5033734393 @default.
• W3217526364 hasAuthorship W3217526364A5045461281 @default.
• W3217526364 hasAuthorship W3217526364A5077112805 @default.
• W3217526364 hasAuthorship W3217526364A5085722482 @default.
• W3217526364 hasConcept C118552586 @default.
• W3217526364 hasConcept C122980154 @default.
• W3217526364 hasConcept C126322002 @default.
• W3217526364 hasConcept C144024400 @default.
• W3217526364 hasConcept C150966472 @default.
• W3217526364 hasConcept C15744967 @default.
• W3217526364 hasConcept C160735492 @default.
• W3217526364 hasConcept C162324750 @default.
• W3217526364 hasConcept C190248442 @default.
• W3217526364 hasConcept C27415008 @default.
• W3217526364 hasConcept C2778620579 @default.
• W3217526364 hasConcept C2779134260 @default.
• W3217526364 hasConcept C2779302386 @default.
• W3217526364 hasConcept C2781118164 @default.
• W3217526364 hasConcept C2781283010 @default.
• W3217526364 hasConcept C36289849 @default.
• W3217526364 hasConcept C50522688 @default.
• W3217526364 hasConcept C558461103 @default.
• W3217526364 hasConcept C71924100 @default.
• W3217526364 hasConcept C77805123 @default.
• W3217526364 hasConceptScore W3217526364C118552586 @default.
• W3217526364 hasConceptScore W3217526364C122980154 @default.
• W3217526364 hasConceptScore W3217526364C126322002 @default.
• W3217526364 hasConceptScore W3217526364C144024400 @default.
• W3217526364 hasConceptScore W3217526364C150966472 @default.
• W3217526364 hasConceptScore W3217526364C15744967 @default.
• W3217526364 hasConceptScore W3217526364C160735492 @default.
• W3217526364 hasConceptScore W3217526364C162324750 @default.
• W3217526364 hasConceptScore W3217526364C190248442 @default.
• W3217526364 hasConceptScore W3217526364C27415008 @default.
• W3217526364 hasConceptScore W3217526364C2778620579 @default.
• W3217526364 hasConceptScore W3217526364C2779134260 @default.
• W3217526364 hasConceptScore W3217526364C2779302386 @default.
• W3217526364 hasConceptScore W3217526364C2781118164 @default.
• W3217526364 hasConceptScore W3217526364C2781283010 @default.
• W3217526364 hasConceptScore W3217526364C36289849 @default.
• W3217526364 hasConceptScore W3217526364C50522688 @default.
• W3217526364 hasConceptScore W3217526364C558461103 @default.
• W3217526364 hasConceptScore W3217526364C71924100 @default.
• W3217526364 hasConceptScore W3217526364C77805123 @default.
• W3217526364 hasIssue "Supplement 1" @default.
• W3217526364 hasLocation W32175263641 @default.
• W3217526364 hasOpenAccess W3217526364 @default.
• W3217526364 hasPrimaryLocation W32175263641 @default.
• W3217526364 hasRelatedWork W1965034430 @default.
• W3217526364 hasRelatedWork W2016045724 @default.
• W3217526364 hasRelatedWork W2061761410 @default.
• W3217526364 hasRelatedWork W2091657411 @default.
• W3217526364 hasRelatedWork W2165231851 @default.
• W3217526364 hasRelatedWork W2223251300 @default.
• W3217526364 hasRelatedWork W2810961770 @default.
• W3217526364 hasRelatedWork W4213435831 @default.
• W3217526364 hasRelatedWork W4233820854 @default.
• W3217526364 hasRelatedWork W3184820476 @default.
• W3217526364 hasVolume "138" @default.
• W3217526364 isParatext "false" @default.
• W3217526364 isRetracted "false" @default.
• W3217526364 magId "3217526364" @default.
• W3217526364 workType "article" @default.