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- W4210363921 abstract "African American (AA) populations bear a disproportionate burden of morbidity, mortality, and prevalence of asthma and COVID-19. Patients, clergy, and researchers developed a 6-month virtual conference to inform emerging research needs related to patients with asthma and / or COVID-19 to become participants in all aspects of patient-centered outcomes research. A project advisory group consisting of AA patients, MDs, clergy and PCORI expert evaluator convened and developed the six-month virtual dialogue series to include platform, goals, objectives and timeline, patient recruitment strategies, incentives, and examination of program evaluation results. Learning objectives for each session were used to write pre-and-post session survey questions. Six virtual sessions took place between December 2020 – May 2021. An average of 658(SD+199) attendees participated in each session. Overall pre-and-post knowledge surveys for each session exhibited growth in knowledge regarding asthma risk and research opportunities for patients, COVID-19 vaccination procedures, rates of vaccinations and knowledge of PCORI training opportunities for patient involvement in research. Attendees demonstrated increased sense of empowerment in reference to their perceived knowledge in the engagement process, treatment decision making during healthcare visits and COVID-19 long hauler health issues. On average 70% or more attendees reported strong agreement in satisfaction of program registration, feeling encouraged and safe to participate, believed speakers were experts; On average 76% of participants strongly agreed with their satisfaction with the overall sessions. Conducting a virtual dialogue series is an effective method for engaging AA communities with experts in asthma, COVID-19 and research to discuss questions they need answered." @default.
- W4210363921 created "2022-02-08" @default.
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- W4210363921 date "2022-02-01" @default.
- W4210363921 modified "2023-09-26" @default.
- W4210363921 title "PCORI Engagement: Black People Like Me" @default.
- W4210363921 doi "https://doi.org/10.1016/j.jaci.2021.12.702" @default.
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