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- W4210921844 abstract "Neuromuscular disorders cause damage to the motor nerves. Arm-hand function can severely be impaired. The needs of and limitations of patients with neuromuscular disorders and the role of their carers in providing oral hygiene were studied. To this end, an online survey was sent to 706 patients with a neuromuscular disorder (amyotrophic lateral sclerosis, spinal muscular atrophy, primary lateral sclerosis and progressive bulbar palsy). The survey questions concerned, among other things, self-reliance, the oral situation and oral hygiene. Oral health-related quality of life and subjective well-being were also measured. A total of 259 patients (36.7%) responded, of whom 71.9% declared themselves not to have been informed about the importance of maintaining good oral health. Moreover, 40.4% wished to receive help from an oral care professional regarding their oral hygiene; 19.8% was not satisfied with the oral care they provided for themselves or as provided by their carers. It was concluded that attention to oral hygiene for patients with neuromuscular disorders by both multidisciplinary treatment teams and oral care professionals is required.Bij neuromusculaire aandoeningen worden de motorische zenuwen aangetast. Hierdoor kan de arm-handfunctie sterk achteruitgaan. De behoeften en barrières van patiënten met neuromusculaire aandoeningen en de rol van hun mantelzorgers of zorgverleners bij het uitvoeren van mondzorg werd onderzocht. Hiertoe werd een online vragenlijst gestuurd naar 706 patiënten met een neuromusculaire aandoening (amyotrofische laterale sclerose, progressieve spinale musculaire atrofie, primaire laterale sclerose en progressieve bulbaire parese). De vragen betroffen onder meer zelfredzaamheid, mondsituatie en mondhygiëne. De mondgezondheid gerelateerde kwaliteit van leven en het subjectieve welzijn werden ook gemeten. In totaal reageerden 259 patiënten (36,7%), van wie 71,9% aangaf niet geïnformeerd te zijn over het belang van een goede mondgezondheid. Bovendien wilde 40,4% graag hulp van een professionele mondzorgverlener ontvangen op het gebied van mondhygiëne, 19,8% was niet tevreden over de mondzorg zoals die door henzelf of hun verzorgers werd uitgevoerd. Geconcludeerd werd dat mondzorg bij patiënten met neuromusculaire aandoeningen aandacht nodig heeft van zowel multidisciplinaire behandelteams als mondzorgverleners." @default.
- W4210921844 created "2022-02-09" @default.
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- W4210921844 date "2022-02-08" @default.
- W4210921844 modified "2023-09-26" @default.
- W4210921844 title "Oral hygiene in patients with motor neuron disease: a cross-sectional survey" @default.
- W4210921844 doi "https://doi.org/10.5177/ntvt.2022.02.21061" @default.
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