FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W4213303598> ?p ?o ?g. }

• W4213303598 endingPage "397" @default.
• W4213303598 startingPage "387" @default.
• W4213303598 abstract "To define the dimensions of patient-centeredness of prenatal care for parents who had a fetus with isolated congenital diaphragmatic hernia (CDH) by exploring their values, experiences, needs and preferences.In-depth interviews with parents who were faced with the prenatal diagnosis of isolated CDH.Interviews (n = 18) identified seven dimensions of patient-centeredness. Parental preferences are respected by unconditional acceptance of parental choices and needs. After diagnosis access to care should occur by swift referral to a specialised centre to prevent parents receiving contradictory information. Information and education help parents to gain some sense of control and cope with the many uncertainties. A multidisciplinary team with a coordinating professional is perceived supportive (coordination and integration), and seamless referral between local and treatment centres reduces parental distress (continuity and transition). Family-centred emotional support helps parents to cope with emotions and distress. Informal support by involvement of family and friends and trusted peer-support is of added value.The impact of the uncertainty of outcome in this condition is tremendous and needs to be considered when providing prenatal care. After initial diagnosis, one should avoid speculation about the severity of the condition and outcome, and provide swift referral to a specialist centre expert in managing CDH. Provision of realistic and comprehensive information helps parents cope. Multidisciplinary and continuous support throughout the full trajectory, but also integrated psychosocial support should become standard-of-care." @default.
• W4213303598 created "2022-02-24" @default.
• W4213303598 creator A5004259303 @default.
• W4213303598 creator A5021100050 @default.
• W4213303598 creator A5032139568 @default.
• W4213303598 creator A5035007672 @default.
• W4213303598 creator A5042885767 @default.
• W4213303598 creator A5063285113 @default.
• W4213303598 creator A5065212680 @default.
• W4213303598 creator A5069454791 @default.
• W4213303598 creator A5078860903 @default.
• W4213303598 creator A5079103085 @default.
• W4213303598 creator A5089387072 @default.
• W4213303598 date "2022-02-24" @default.
• W4213303598 modified "2023-10-11" @default.
• W4213303598 title "Prenatal diagnosis of congenital diaphragmatic hernia: Parental counselling and support needs" @default.
• W4213303598 cites W1586125257 @default.
• W4213303598 cites W1832246930 @default.
• W4213303598 cites W1966886199 @default.
• W4213303598 cites W1986844613 @default.
• W4213303598 cites W1990480169 @default.
• W4213303598 cites W2010334683 @default.
• W4213303598 cites W2011433709 @default.
• W4213303598 cites W2019352718 @default.
• W4213303598 cites W2019414904 @default.
• W4213303598 cites W2062732607 @default.
• W4213303598 cites W2079906298 @default.
• W4213303598 cites W2085849009 @default.
• W4213303598 cites W2088134813 @default.
• W4213303598 cites W2089743347 @default.
• W4213303598 cites W2094353697 @default.
• W4213303598 cites W2101409454 @default.
• W4213303598 cites W2101966424 @default.
• W4213303598 cites W2116194568 @default.
• W4213303598 cites W2117399733 @default.
• W4213303598 cites W2131260494 @default.
• W4213303598 cites W2136778797 @default.
• W4213303598 cites W2138664283 @default.
• W4213303598 cites W2145401722 @default.
• W4213303598 cites W2167347812 @default.
• W4213303598 cites W2346796676 @default.
• W4213303598 cites W2417399168 @default.
• W4213303598 cites W2575385740 @default.
• W4213303598 cites W2584626576 @default.
• W4213303598 cites W2609826259 @default.
• W4213303598 cites W2736548756 @default.
• W4213303598 cites W2768475959 @default.
• W4213303598 cites W2783137569 @default.
• W4213303598 cites W2793451348 @default.
• W4213303598 cites W2796682974 @default.
• W4213303598 cites W2809287486 @default.
• W4213303598 cites W2910295989 @default.
• W4213303598 cites W2914497288 @default.
• W4213303598 cites W2966113572 @default.
• W4213303598 cites W2974368401 @default.
• W4213303598 cites W3043792604 @default.
• W4213303598 cites W3045607547 @default.
• W4213303598 cites W3082867365 @default.
• W4213303598 cites W3112777386 @default.
• W4213303598 cites W3171783549 @default.
• W4213303598 cites W4241723637 @default.
• W4213303598 cites W4247604930 @default.
• W4213303598 doi "https://doi.org/10.1002/pd.6118" @default.
• W4213303598 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/35184301" @default.
• W4213303598 hasPublicationYear "2022" @default.
• W4213303598 type Work @default.
• W4213303598 citedByCount "6" @default.
• W4213303598 countsByYear W42133035982022 @default.
• W4213303598 countsByYear W42133035982023 @default.
• W4213303598 crossrefType "journal-article" @default.
• W4213303598 hasAuthorship W4213303598A5004259303 @default.
• W4213303598 hasAuthorship W4213303598A5021100050 @default.
• W4213303598 hasAuthorship W4213303598A5032139568 @default.
• W4213303598 hasAuthorship W4213303598A5035007672 @default.
• W4213303598 hasAuthorship W4213303598A5042885767 @default.
• W4213303598 hasAuthorship W4213303598A5063285113 @default.
• W4213303598 hasAuthorship W4213303598A5065212680 @default.
• W4213303598 hasAuthorship W4213303598A5069454791 @default.
• W4213303598 hasAuthorship W4213303598A5078860903 @default.
• W4213303598 hasAuthorship W4213303598A5079103085 @default.
• W4213303598 hasAuthorship W4213303598A5089387072 @default.
• W4213303598 hasConcept C118552586 @default.
• W4213303598 hasConcept C139265228 @default.
• W4213303598 hasConcept C144024400 @default.
• W4213303598 hasConcept C150966472 @default.
• W4213303598 hasConcept C15744967 @default.
• W4213303598 hasConcept C159110408 @default.
• W4213303598 hasConcept C172680121 @default.
• W4213303598 hasConcept C22467394 @default.
• W4213303598 hasConcept C2776135927 @default.
• W4213303598 hasConcept C2777146472 @default.
• W4213303598 hasConcept C2778258057 @default.
• W4213303598 hasConcept C2779234561 @default.
• W4213303598 hasConcept C36289849 @default.
• W4213303598 hasConcept C512399662 @default.
• W4213303598 hasConcept C54355233 @default.
• W4213303598 hasConcept C70410870 @default.
• W4213303598 hasConcept C71924100 @default.

• next