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- W4235402110 abstract "Please note, this paper has been peer-reviewed and published open acess. You can find the published version at https://www.scienceopen.com/document?vid=d93cf2fd-5b3f-4193-a437-da1ff89e83d2, and it can be cited Williams, G.L. (2020) ‘From anonymous subject to engaged stakeholder: Enriching participant experience in autistic-language-use research’. Research for All, 4 (2), 314–28. Online. https://doi.org/10.14324/RFA.04.2.13. Please do not cite this preprint.The Talking Together community-engagement pilot project brought together pairs of autistic and non-autistic strangers to: (1) talk about their experiences of loneliness in their local city; and (2) think about potential, co-produced responses to the problem. The project had evolved as a secondary aim, from an initial need to acquire naturalistic conversation data for my linguistic PhD research investigating a theoretical reframing of autistic language use as ‘different’ rather than ‘deficient’. The desire to make the data collection a meaningful experience for the participants in its own right was central to the research design, and so the Talking Together loneliness project was devised as a way to achieve this. However, it was not until the research was under way that the potential for valuable, immediate impact became apparent. This article reflects on the successes and challenges of the Talking Together pilot as a piece of autistic-led participatory research, and explores how the principles of engaged, participatory research can be applied so as to maximize impact, even where engagement may not be a primary aim. It also explores the ‘participatory’ nature of participatory research where the researcher belongs to the marginalized stakeholder group.Keywords: loneliness, autism, conversations, participatory design, data collectionKey messages • Engaged research can enrich linguistic data collection on multiple levels, not least in making the experience more meaningful for stakeholder research participants. • Facilitating strangers to come together to talk about their experiences of loneliness can generate qualitative data on loneliness, while at the same time contributing to reducing the impact of loneliness, as an act of radical ‘world building’. • Supporting autistic people to access doctoral research opportunities is one way of broadening the body of participatory autism research." @default.
- W4235402110 created "2022-05-12" @default.
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- W4235402110 date "2020-06-02" @default.
- W4235402110 modified "2023-10-14" @default.
- W4235402110 title "From anonymous subject to engaged stakeholder: Enriching participant experience in autistic-language-use research" @default.
- W4235402110 doi "https://doi.org/10.31219/osf.io/wa2dr" @default.
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