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- W4236057958 abstract "User involvement in cancer services operates at two levels: providing information and involving patients and carers in decision-making about their own care, and involving patients and carers in decisions about the development and management of cancer services. Information can be provided to patients verbally, in written material, and through patient-held records, and they can also have access to information via the Internet. Most people want to take an active role in making decisions about their care and treatment; however, this varies from person to person. Being fully informed is important to more people than being fully involved in the decision-making process itself. Issues of consent and competence are very important when involving patients, and nurses need to take account of these and also the condition of the patient, when involving them in the decision-making process. Involving cancer service users in evaluating and managing health care has the benefits of improving services and public understanding, and improving health. It can take the form of providing information and seeking feedback on services, consulting on developments to services, and participation in planning, managing, or evaluating services. These can be achieved through questionnaires and surveys, focus groups, membership of committees, or employing service users as consultants to services. For user involvement to be effective, it should be meaningful, the language should be inclusive, and minority perspectives should be represented." @default.
- W4236057958 created "2022-05-12" @default.
- W4236057958 date "2019-05-01" @default.
- W4236057958 modified "2023-10-14" @default.
- W4236057958 title "Patient information and involvement" @default.
- W4236057958 doi "https://doi.org/10.1093/med/9780198701101.003.0008" @default.
- W4236057958 hasPublicationYear "2019" @default.
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