Matches in SemOpenAlex for { <https://semopenalex.org/work/W4238922969> ?p ?o ?g. }
Showing items 1 to 71 of
71
with 100 items per page.
- W4238922969 abstract "Abstract Background. Transplantation is a saving therapeutic that has heavy consequences. The quality of life (QoL) of transplanted children and their parents has been little studied and should help physicians better manage these patients. The objectives of the study were to assess: i) the QoL of transplanted children and parents and compare it with that of children with other chronic conditions associated with long-term consequences, and ii) potential variables modulating the QoL. Methods. This cross-sectional study was performed in a multidisciplinary paediatric unit (Timone Hospital, Marseille, France). Children were less than 18 years old; had a liver, kidney or heart transplant; and had a time since transplantation of 1 to 10 years. Socio-demographics and clinical data were recorded from medical forms. The QoL was assessed using the VSP-A (Vécu et Santé Perçue de l’Adolescent et de l’Enfant) and the WhoQoL self-reported questionnaires. Results. Forty-five families were included (response rate: 76%). The transplanted organs were the liver for 20 children, the kidney for 15 children, and the heart for 10 children. The QoL of transplanted children reported by their parents was better than that of children with inborn errors of metabolism and similar to that of childhood leukaemia survivors. The QoL of parents of transplanted children was better than that of parents of children with inborn errors of metabolism and did not differ from French norms. The QoL did not differ according to the nature of the transplanted organ, sex or the main sociodemographic data. The main modulators decreasing QoL were residual treatment level, medications switch and the presence of another regular treatment. Conclusion. Transplanted children and their families reported moderate deterioration of their QoL compared with children with other chronic health conditions. Special attention should be given to QoL modulators related to therapeutic management (medication switches, regular treatments) that might be amenable to improve the QoL." @default.
- W4238922969 created "2022-05-12" @default.
- W4238922969 creator A5003713238 @default.
- W4238922969 creator A5006111688 @default.
- W4238922969 creator A5016900283 @default.
- W4238922969 creator A5033303967 @default.
- W4238922969 creator A5049578208 @default.
- W4238922969 creator A5049737867 @default.
- W4238922969 creator A5058439429 @default.
- W4238922969 creator A5082630677 @default.
- W4238922969 creator A5083509845 @default.
- W4238922969 creator A5090929267 @default.
- W4238922969 date "2020-02-03" @default.
- W4238922969 modified "2023-10-16" @default.
- W4238922969 title "Quality of life of transplanted children and their parents: a cross-sectional study" @default.
- W4238922969 doi "https://doi.org/10.21203/rs.2.22475/v1" @default.
- W4238922969 hasPublicationYear "2020" @default.
- W4238922969 type Work @default.
- W4238922969 citedByCount "0" @default.
- W4238922969 crossrefType "posted-content" @default.
- W4238922969 hasAuthorship W4238922969A5003713238 @default.
- W4238922969 hasAuthorship W4238922969A5006111688 @default.
- W4238922969 hasAuthorship W4238922969A5016900283 @default.
- W4238922969 hasAuthorship W4238922969A5033303967 @default.
- W4238922969 hasAuthorship W4238922969A5049578208 @default.
- W4238922969 hasAuthorship W4238922969A5049737867 @default.
- W4238922969 hasAuthorship W4238922969A5058439429 @default.
- W4238922969 hasAuthorship W4238922969A5082630677 @default.
- W4238922969 hasAuthorship W4238922969A5083509845 @default.
- W4238922969 hasAuthorship W4238922969A5090929267 @default.
- W4238922969 hasBestOaLocation W42389229691 @default.
- W4238922969 hasConcept C126322002 @default.
- W4238922969 hasConcept C142052008 @default.
- W4238922969 hasConcept C142724271 @default.
- W4238922969 hasConcept C144024400 @default.
- W4238922969 hasConcept C149923435 @default.
- W4238922969 hasConcept C159110408 @default.
- W4238922969 hasConcept C187212893 @default.
- W4238922969 hasConcept C2779609443 @default.
- W4238922969 hasConcept C2779951463 @default.
- W4238922969 hasConcept C2780084366 @default.
- W4238922969 hasConcept C2911091166 @default.
- W4238922969 hasConcept C71924100 @default.
- W4238922969 hasConceptScore W4238922969C126322002 @default.
- W4238922969 hasConceptScore W4238922969C142052008 @default.
- W4238922969 hasConceptScore W4238922969C142724271 @default.
- W4238922969 hasConceptScore W4238922969C144024400 @default.
- W4238922969 hasConceptScore W4238922969C149923435 @default.
- W4238922969 hasConceptScore W4238922969C159110408 @default.
- W4238922969 hasConceptScore W4238922969C187212893 @default.
- W4238922969 hasConceptScore W4238922969C2779609443 @default.
- W4238922969 hasConceptScore W4238922969C2779951463 @default.
- W4238922969 hasConceptScore W4238922969C2780084366 @default.
- W4238922969 hasConceptScore W4238922969C2911091166 @default.
- W4238922969 hasConceptScore W4238922969C71924100 @default.
- W4238922969 hasLocation W42389229691 @default.
- W4238922969 hasOpenAccess W4238922969 @default.
- W4238922969 hasPrimaryLocation W42389229691 @default.
- W4238922969 hasRelatedWork W13066795 @default.
- W4238922969 hasRelatedWork W13106774 @default.
- W4238922969 hasRelatedWork W14948673 @default.
- W4238922969 hasRelatedWork W19370246 @default.
- W4238922969 hasRelatedWork W19559214 @default.
- W4238922969 hasRelatedWork W19584085 @default.
- W4238922969 hasRelatedWork W3636362 @default.
- W4238922969 hasRelatedWork W4583548 @default.
- W4238922969 hasRelatedWork W809342 @default.
- W4238922969 hasRelatedWork W8643386 @default.
- W4238922969 isParatext "false" @default.
- W4238922969 isRetracted "false" @default.
- W4238922969 workType "article" @default.