Matches in SemOpenAlex for { <https://semopenalex.org/work/W4246192004> ?p ?o ?g. }
Showing items 1 to 90 of
90
with 100 items per page.
- W4246192004 abstract "Abstract Background Thalassaemia, a hereditary haemoglobin disorder, is a major public health concern in some parts of the world. Despite Bangladesh is located in the world’s thalassaemia belt, the information on this disease is scarce. Besides, the awareness on this life threatening but potentially preventable disease is surprisingly poor. However, mass awareness is pivotal for developing an effective preventive strategy. In this context, the understanding of parental perspectives is essential to realize the magnitude of the problem. Therefore, this study aimed to investigate the parental knowledge gaps and perceptions regarding thalassemia, the barriers confronted by the parents for caring for their thalassaemic children and their attitude to prenatal screening and prenatal diagnosis. Methods This cross-sectional study was conducted between January 2018 and December 2018 at a dedicated thalassemia hospital located in Dhaka. A structured questionnaire was used for face-to-face interviews with parents of thalassaemic children. Descriptive statistics were used to analyze data. Results Of 365 respondents, nearly all respondents (97%) had not heard about the term, ‘thalassemia’ before the disease was diagnosed in their children; all (100%) were unscreened for carrier status prior to marriage. Mean knowledge scores were significantly higher in respondents with higher income and education. Most respondents (~ 91%) had a guilty feeling for not undergoing premarital screening. Only around 36% of them had heard about prenatal diagnosis. Approximately 25% participants would consider prenatal diagnosis in a future pregnancy, while 70% of them were unsure and only ~ 5% would decline prenatal diagnosis. Only 9.3% mothers had prenatal diagnosis in a previous pregnancy. Nearly 80% of the parents faced difficulty for obtaining blood donors regularly and a similar proportion (~81%) of them did not receive support from any organized blood clubs. More than 40% of the parents reported they felt socially stigmatized. Conclusion This study suggests poor parental knowledge on thalassaemia including prenatal diagnosis and the challenges they are facing while caring for their children. These findings would be of paramount importance in planning and devising effective prevention and intervention strategies in Bangladesh as well as in other countries with similar sociocultural setting." @default.
- W4246192004 created "2022-05-12" @default.
- W4246192004 creator A5016621861 @default.
- W4246192004 creator A5016883742 @default.
- W4246192004 creator A5024633344 @default.
- W4246192004 creator A5042276596 @default.
- W4246192004 creator A5069357627 @default.
- W4246192004 date "2021-05-28" @default.
- W4246192004 modified "2023-09-27" @default.
- W4246192004 title "The Parental Perspective of Thalassaemia in Bangladesh: Lack of knowledge, Regret, and Barriers" @default.
- W4246192004 doi "https://doi.org/10.21203/rs.3.rs-564294/v1" @default.
- W4246192004 hasPublicationYear "2021" @default.
- W4246192004 type Work @default.
- W4246192004 citedByCount "0" @default.
- W4246192004 crossrefType "posted-content" @default.
- W4246192004 hasAuthorship W4246192004A5016621861 @default.
- W4246192004 hasAuthorship W4246192004A5016883742 @default.
- W4246192004 hasAuthorship W4246192004A5024633344 @default.
- W4246192004 hasAuthorship W4246192004A5042276596 @default.
- W4246192004 hasAuthorship W4246192004A5069357627 @default.
- W4246192004 hasBestOaLocation W42461920041 @default.
- W4246192004 hasConcept C105795698 @default.
- W4246192004 hasConcept C119857082 @default.
- W4246192004 hasConcept C122980154 @default.
- W4246192004 hasConcept C126322002 @default.
- W4246192004 hasConcept C142724271 @default.
- W4246192004 hasConcept C151730666 @default.
- W4246192004 hasConcept C15744967 @default.
- W4246192004 hasConcept C162324750 @default.
- W4246192004 hasConcept C172680121 @default.
- W4246192004 hasConcept C187212893 @default.
- W4246192004 hasConcept C2777799968 @default.
- W4246192004 hasConcept C2778258057 @default.
- W4246192004 hasConcept C2779134260 @default.
- W4246192004 hasConcept C2779234561 @default.
- W4246192004 hasConcept C2779343474 @default.
- W4246192004 hasConcept C33923547 @default.
- W4246192004 hasConcept C39896193 @default.
- W4246192004 hasConcept C41008148 @default.
- W4246192004 hasConcept C50522688 @default.
- W4246192004 hasConcept C50817715 @default.
- W4246192004 hasConcept C512399662 @default.
- W4246192004 hasConcept C54355233 @default.
- W4246192004 hasConcept C71924100 @default.
- W4246192004 hasConcept C77805123 @default.
- W4246192004 hasConcept C83864248 @default.
- W4246192004 hasConcept C86803240 @default.
- W4246192004 hasConceptScore W4246192004C105795698 @default.
- W4246192004 hasConceptScore W4246192004C119857082 @default.
- W4246192004 hasConceptScore W4246192004C122980154 @default.
- W4246192004 hasConceptScore W4246192004C126322002 @default.
- W4246192004 hasConceptScore W4246192004C142724271 @default.
- W4246192004 hasConceptScore W4246192004C151730666 @default.
- W4246192004 hasConceptScore W4246192004C15744967 @default.
- W4246192004 hasConceptScore W4246192004C162324750 @default.
- W4246192004 hasConceptScore W4246192004C172680121 @default.
- W4246192004 hasConceptScore W4246192004C187212893 @default.
- W4246192004 hasConceptScore W4246192004C2777799968 @default.
- W4246192004 hasConceptScore W4246192004C2778258057 @default.
- W4246192004 hasConceptScore W4246192004C2779134260 @default.
- W4246192004 hasConceptScore W4246192004C2779234561 @default.
- W4246192004 hasConceptScore W4246192004C2779343474 @default.
- W4246192004 hasConceptScore W4246192004C33923547 @default.
- W4246192004 hasConceptScore W4246192004C39896193 @default.
- W4246192004 hasConceptScore W4246192004C41008148 @default.
- W4246192004 hasConceptScore W4246192004C50522688 @default.
- W4246192004 hasConceptScore W4246192004C50817715 @default.
- W4246192004 hasConceptScore W4246192004C512399662 @default.
- W4246192004 hasConceptScore W4246192004C54355233 @default.
- W4246192004 hasConceptScore W4246192004C71924100 @default.
- W4246192004 hasConceptScore W4246192004C77805123 @default.
- W4246192004 hasConceptScore W4246192004C83864248 @default.
- W4246192004 hasConceptScore W4246192004C86803240 @default.
- W4246192004 hasLocation W42461920041 @default.
- W4246192004 hasLocation W42461920042 @default.
- W4246192004 hasOpenAccess W4246192004 @default.
- W4246192004 hasPrimaryLocation W42461920041 @default.
- W4246192004 hasRelatedWork W1511740900 @default.
- W4246192004 hasRelatedWork W1892860779 @default.
- W4246192004 hasRelatedWork W2009735833 @default.
- W4246192004 hasRelatedWork W2047103918 @default.
- W4246192004 hasRelatedWork W2147346995 @default.
- W4246192004 hasRelatedWork W2751383663 @default.
- W4246192004 hasRelatedWork W2912293598 @default.
- W4246192004 hasRelatedWork W3200503835 @default.
- W4246192004 hasRelatedWork W4244366898 @default.
- W4246192004 hasRelatedWork W3146383545 @default.
- W4246192004 isParatext "false" @default.
- W4246192004 isRetracted "false" @default.
- W4246192004 workType "article" @default.