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• W4247490841 abstract "You've all read it before. Stroke is the third most common cause of death and the commonest cause of disability worldwide. This is fact. Yet public awareness of stroke lags way behind that of the top two killers, cardiovascular disease and cancer. Community-based studies over the past decade have consistently shown that knowledge of stroke warning signs, what to do if someone is having a stroke, and what the risk factors are is woefully poor, especially in people who are most at risk. There is some hope that stroke awareness and knowledge are improving—in 2000, 70% of survey respondents could name at least one warning sign of stroke compared with 57% in 1995 (JAMA 2003; 289: 343–46)—but progress seems slow. A recent follow-up study by the American Heart Association and the American Stroke Association highlights a worrying lack of knowledge in a high-risk group—women, particularly those of ethnic minorities. Risk of stroke is higher in African-American women and Hispanic women than in white women, but paradoxically stroke knowledge in these groups is worse (Circulation 2005; 111: 1321–26). About 40 000 more women than men die every year from stroke in the USA, yet stroke awareness in women has remained consistently poor—the percentage claiming to be well informed about stroke increased by only 2% between 1997 and 2000. As part of its “Stroke Early Response” campaign in 2004, the American Stroke Association used radio advertising featuring African-American singers to target this ethnic minority and TV campaigns with stars such as Sharon Stone and Patrick Dempsey to get the message across that “time lost is brain lost”. The Hazel K Goddess Fund was founded specifically to increase awareness and promote research into the risk factors for stroke in women from all cultural and ethnic backgrounds. These sorts of initiatives are one step in the right direction but are a drop in the ocean when considering the burden of stroke on a global scale. Stroke is no longer a “westerner's” disease and risk factors, such as hypertension, are on the increase in developing countries. In a recent survey of public awareness of stroke warning signs, risk factors, and treatment in northwest India, 45% of participants did not know that the brain is the organ affected by stroke (Stroke 2005; 36: 644–48); 21% of participants could not identify a single risk factor for stroke and less than 8% could describe appropriate therapy. As stroke burden in the developing world rises, education about the disease has a very important part to play in prevention and treatment. Stroke associations, charities, and support groups the world over strive to increase stroke awareness. Community education programmes for stroke, like those for cardiovascular disease, do some good, although the knowledge gleaned from such efforts is often short lived. The effectiveness of different media has not received much attention. However, one study found that TV campaigns were more effective than newspaper campaigns in increasing the percentage of people able to identify warning signs of stroke (Stroke 2003; 34: 1965–69). In Northern Ireland, 60% of participants in a population-based survey stated that friends and relatives were their source of knowledge about stroke (Cerebrovasc Dis 2003; 16: 134–40). Only around a quarter of people said they obtained information from the national stroke organisation, with nearly as many citing TV as their source of knowledge. Rather worryingly, only 20% of participants said they received any information on stroke from medical or nursing staff. In northwest India, less than 4% of participants had received information on stroke from doctors and, again, most learnt through friends and relatives. Although few and far between, these community studies are key in identifying areas for improvement. Family practitioners are in a prime position to educate people who are at high risk of stroke (eg, those with hypertension, diabetes, or a family history of the disorder): this opportunity is clearly being missed. Targeting this group of medical professionals could ensure that an existing avenue of communication is used to full advantage. Educational initiatives in schools, particularly those in areas of low socioeconomic status and those with a high proportion of pupils from ethnic minorities, could put in place a basic education programme that could then be built on and re-inforced in adulthood. Studying the outcome of awareness campaigns could help identify the methods of education that are the most effective, both in terms of communicating the information but also in sustaining that knowledge. Stroke should no longer be the Cinderella to heart disease and cancer's ugly sisters." @default.
• W4247490841 created "2022-05-12" @default.
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• W4247490841 date "2005-05-01" @default.
• W4247490841 modified "2023-10-18" @default.
• W4247490841 title "The Cinderella disease" @default.
• W4247490841 doi "https://doi.org/10.1016/s1474-4422(05)70049-1" @default.
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