FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W4248164772> ?p ?o ?g. }

• W4248164772 abstract "Event Abstract Back to Event Developing a smartphone application to improve care and outcomes in adolescent arthritis through patient input Alice R. Cai1*, Dominik Beste2*, Hema Chaplin1, Linda Suffield1, Debajit Sen1, John Ioannou1, Lucy Wedderburn1, Steve Hailes2 and Despina Eleftheriou1 1 University College London, Division of Medicine, United Kingdom 2 University College London, Department of Computer Science, United Kingdom Background: Juvenile idiopathic arthritis (JIA) affects around 1 in 1,000 young people (YP) in the UK. Flare-ups of JIA cause joint pain and swelling, and are often accompanied with fatigue, stiffness, sleep problems, higher negative emotions, and reduced participation in activities. As a result, JIA can negatively impact educational, psychosocial, and physical development and wellbeing, especially during puberty. In addition, missing medications, poor clinic attendance, as well as low levels of physical activity complicate the management of this disease in adolescence. Using smartphone technologies to engage YP with their care has the potential to improve health outcomes for this age group. No such smartphone app has yet been developed in collaboration with YP with JIA and consultations with Healthcare Professionals (HCPs). Aims: To develop a smartphone app that facilitates collection of information deemed important by YP with JIA and clinicians involved in their care. Methods: Phase 1 carried out five focus groups (FGs): two with YP (one with 10- to 15-year olds and one with 16- to 24-year olds), one with parents, and two with HCPs working in paediatric and adult rheumatology. Participants were guided by semi-structured interview questions focusing on how to develop an interesting and easy-to-use app that can help YP improve self-management and increase understanding and adherence to treatment. Phase 2 developed the app by integrating participants’ ideas and suggestions. The app’s acceptability and usability were then evaluated through four FGs: two with YP (one with 10- to 14-year olds and one with 16- to 23-year olds) and two with HCPs. Participants were provided with the app on a smartphone and were asked to navigate through its various features. Participants’ perceptions of the app and suggestions for improvements were sought via qualitative interview responses and user observations. Results: Qualitative content analysis was used to identify five major themes that informed the development of the app. First was Monitoring Information, which included JIA-related symptoms, mood and stress, exercise, missed medications, medication side-effects, and completing the health assessment questionnaire. Second was Setting Reminders for medications and appointments. Third theme was Education and Support, such as including practical advice and links to social support groups. Fourth theme pertains to Motivating Factors for Using the App, such as providing feedback for personal input and having a rewards system. The last theme relates to the Design for the App, such as how to make it visually appealing and easy to navigate. Qualitative feedbacks from CYP and HCPs during phase 2 indicated that the app is acceptable, comprehensive, interesting, and useful. Conclusions: The current study employed a qualitative user-centered approach to develop an acceptable and developmentally appropriate smartphone application that can benefit YP with JIA. Current qualitative data showed that complementing traditional therapies with new mobile technology may be an affordable and effective method to improve patient’s understanding of their condition and help YP become more independent in their own healthcare. Collecting more frequent and accurate data using the app may also improve treatments and interactions between patients and HCPs, which optimizes health and wellbeing. Keywords: juvenile idiopathic arthritis, qualitative research, Focus Groups, self-management, Mobile application, Young Adult Conference: 2nd Behaviour Change Conference: Digital Health and Wellbeing, London, United Kingdom, 24 Feb - 25 Feb, 2016. Presentation Type: Oral presentation Topic: Academic Citation: Cai AR, Beste D, Chaplin H, Suffield L, Sen D, Ioannou J, Wedderburn L, Hailes S and Eleftheriou D (2016). Developing a smartphone application to improve care and outcomes in adolescent arthritis through patient input. Front. Public Health. Conference Abstract: 2nd Behaviour Change Conference: Digital Health and Wellbeing. doi: 10.3389/conf.FPUBH.2016.01.00068 Copyright: The abstracts in this collection have not been subject to any Frontiers peer review or checks, and are not endorsed by Frontiers. They are made available through the Frontiers publishing platform as a service to conference organizers and presenters. The copyright in the individual abstracts is owned by the author of each abstract or his/her employer unless otherwise stated. Each abstract, as well as the collection of abstracts, are published under a Creative Commons CC-BY 4.0 (attribution) licence (https://creativecommons.org/licenses/by/4.0/) and may thus be reproduced, translated, adapted and be the subject of derivative works provided the authors and Frontiers are attributed. For Frontiers’ terms and conditions please see https://www.frontiersin.org/legal/terms-and-conditions. Received: 27 Nov 2015; Published Online: 09 Jan 2016. * Correspondence: PhD. Alice R Cai, University College London, Division of Medicine, London, United Kingdom, a.cai@ucl.ac.uk Mr. Dominik Beste, University College London, Department of Computer Science, London, United Kingdom, d.beste@ucl.ac.uk Login Required This action requires you to be registered with Frontiers and logged in. To register or login click here. Abstract Info Abstract The Authors in Frontiers Alice R Cai Dominik Beste Hema Chaplin Linda Suffield Debajit Sen John Ioannou Lucy Wedderburn Steve Hailes Despina Eleftheriou Google Alice R Cai Dominik Beste Hema Chaplin Linda Suffield Debajit Sen John Ioannou Lucy Wedderburn Steve Hailes Despina Eleftheriou Google Scholar Alice R Cai Dominik Beste Hema Chaplin Linda Suffield Debajit Sen John Ioannou Lucy Wedderburn Steve Hailes Despina Eleftheriou PubMed Alice R Cai Dominik Beste Hema Chaplin Linda Suffield Debajit Sen John Ioannou Lucy Wedderburn Steve Hailes Despina Eleftheriou Related Article in Frontiers Google Scholar PubMed Abstract Close Back to top Javascript is disabled. Please enable Javascript in your browser settings in order to see all the content on this page." @default.
• W4248164772 created "2022-05-12" @default.
• W4248164772 creator A5015760303 @default.
• W4248164772 creator A5016736314 @default.
• W4248164772 creator A5017774067 @default.
• W4248164772 creator A5021784687 @default.
• W4248164772 creator A5040829004 @default.
• W4248164772 creator A5050647031 @default.
• W4248164772 creator A5050981422 @default.
• W4248164772 creator A5060485755 @default.
• W4248164772 creator A5086685006 @default.
• W4248164772 date "2016-01-01" @default.
• W4248164772 modified "2023-09-30" @default.
• W4248164772 title "DEVELOPING A SMARTPHONE APPLICATION TO IMPROVE CARE AND OUTCOMES IN ADOLESCENT ARTHRITIS THROUGH PATIENT INPUT" @default.
• W4248164772 doi "https://doi.org/10.3389/conf.fpubh.2016.01.00068" @default.
• W4248164772 hasPublicationYear "2016" @default.
• W4248164772 type Work @default.
• W4248164772 citedByCount "0" @default.
• W4248164772 crossrefType "journal-article" @default.
• W4248164772 hasAuthorship W4248164772A5015760303 @default.
• W4248164772 hasAuthorship W4248164772A5016736314 @default.
• W4248164772 hasAuthorship W4248164772A5017774067 @default.
• W4248164772 hasAuthorship W4248164772A5021784687 @default.
• W4248164772 hasAuthorship W4248164772A5040829004 @default.
• W4248164772 hasAuthorship W4248164772A5050647031 @default.
• W4248164772 hasAuthorship W4248164772A5050981422 @default.
• W4248164772 hasAuthorship W4248164772A5060485755 @default.
• W4248164772 hasAuthorship W4248164772A5086685006 @default.
• W4248164772 hasBestOaLocation W42481647721 @default.
• W4248164772 hasConcept C118552586 @default.
• W4248164772 hasConcept C144133560 @default.
• W4248164772 hasConcept C150966472 @default.
• W4248164772 hasConcept C160735492 @default.
• W4248164772 hasConcept C162324750 @default.
• W4248164772 hasConcept C162853370 @default.
• W4248164772 hasConcept C2778173179 @default.
• W4248164772 hasConcept C50522688 @default.
• W4248164772 hasConcept C512399662 @default.
• W4248164772 hasConcept C56995899 @default.
• W4248164772 hasConcept C71924100 @default.
• W4248164772 hasConceptScore W4248164772C118552586 @default.
• W4248164772 hasConceptScore W4248164772C144133560 @default.
• W4248164772 hasConceptScore W4248164772C150966472 @default.
• W4248164772 hasConceptScore W4248164772C160735492 @default.
• W4248164772 hasConceptScore W4248164772C162324750 @default.
• W4248164772 hasConceptScore W4248164772C162853370 @default.
• W4248164772 hasConceptScore W4248164772C2778173179 @default.
• W4248164772 hasConceptScore W4248164772C50522688 @default.
• W4248164772 hasConceptScore W4248164772C512399662 @default.
• W4248164772 hasConceptScore W4248164772C56995899 @default.
• W4248164772 hasConceptScore W4248164772C71924100 @default.
• W4248164772 hasLocation W42481647721 @default.
• W4248164772 hasLocation W42481647722 @default.
• W4248164772 hasOpenAccess W4248164772 @default.
• W4248164772 hasPrimaryLocation W42481647721 @default.
• W4248164772 hasRelatedWork W2029213519 @default.
• W4248164772 hasRelatedWork W2082138633 @default.
• W4248164772 hasRelatedWork W2108461142 @default.
• W4248164772 hasRelatedWork W2166193959 @default.
• W4248164772 hasRelatedWork W2214771766 @default.
• W4248164772 hasRelatedWork W225112494 @default.
• W4248164772 hasRelatedWork W2999014956 @default.
• W4248164772 hasRelatedWork W3157976281 @default.
• W4248164772 hasRelatedWork W3187123367 @default.
• W4248164772 hasRelatedWork W4308585883 @default.
• W4248164772 hasVolume "4" @default.
• W4248164772 isParatext "false" @default.
• W4248164772 isRetracted "false" @default.
• W4248164772 workType "article" @default.