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• W4248488934 abstract "Community Experiences and Perceptions of Clinical and Translational Research and Researchers Jeannine S. Skinner, PhD, Neely A. Williams, MDiv, Al Richmond, MSW, Jen Brown, MPH, A. Hal Strelnick, MD, Karen Calhoun, MA, E. Hill De Loney, MA, Shauntice Allen, PhD, Alex Pirie, BA, and Consuelo H. Wilkins, MD, MSCI What Is the Purpose of this Study/Review? • To understand community representatives' views on their involvement in clinical and biomedical research, researchers, and how community is valued in research. • To determine influencers of community trust in research and researchers' value of community. What Is the Problem? • Community representatives are increasingly involved in research in roles such as advisors, consultants, and community partners. Little is known regarding their views on barriers, facilitators, and indicators of successful community engagement in research. What Are the Findings? • A diverse group of 109 community members representing community organizations, faith-based organizations, public health agencies, and businesses participated in study. • Most community members did not view researchers as well-prepared to engage communities and few community members believe resources are available to adequate support community involvement. • Most community stakeholders (66%) were compensated for their involvement in research, but only 40% perceived compensation to be appropriate. • Trust of research and perceptions that researchers value community were positively associated with perceptions of appropriate compensation. • Community representatives view the most important indicators of success as involving community in all stages of research, from study design to sharing results. • Key facilitators of engagement include the importance of research to the community and use of culturally appropriate communications. Who Should Care Most? • Community members, community organizations, health researchers, and funding agencies. [End Page 239] Recommendations for Action • Researchers and research institutions should develop and implement strategies to engage community members in all phases of research and appropriately compensate them for their work. • Funding agencies and academic institutions should create policies and infrastructure to prepare researchers to engage communities and provide adequate resources to facilitate engagement. [End Page 240] Jeannine S. Skinner Department of Psychology, University of North Carolina at Charlotte Neely A. Williams Community Partners Network Al Richmond Community-Campus Partnerships for Health Jen Brown Alliance for Research in Chicagoland Communities, Northwestern University A. Hal Strelnick Einstein-Montefiore Institute for Clinical and Translational Research Karen Calhoun City Connect Detroit Michigan Institute for Clinical and Health Research E. Hill De Loney Michigan Institute for Clinical and Health Research Shauntice Allen School of Public Health, University of Alabama at Birmingham Alex Pirie Immigrant Service Providers Group/Health Consuelo H. Wilkins Meharry-Vanderbilt Alliance, Vanderbilt University Medical Center Meharry Medical College Copyright © 2018 Johns Hopkins University Press" @default.
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• W4248488934 date "2018-01-01" @default.
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• W4248488934 title "Community Experiences and Perceptions of Clinical and Translational Research and Researchers" @default.
• W4248488934 doi "https://doi.org/10.1353/cpr.2018.0046" @default.
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