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- W4254551392 abstract "<sec> <title>BACKGROUND</title> Background: Historically, patients have had difficulty obtaining copies of their medical records, notwithstanding the legal right to do so. In 2018, a study of 83 top hospitals found discrepancies between those hospitals’ published information and telephone survey responses regarding their processes for release of records to patients, indicating noncompliance with the HIPAA right of individual access </sec> <sec> <title>OBJECTIVE</title> Objective: Assess state of compliance with the HIPAA right of access across a broader range of health care providers and in the context of real records requests from patients. </sec> <sec> <title>METHODS</title> Methods: Evaluate the degree of compliance with the HIPAA right of access 1) by scoring the responses of 51 health care providers to actual patient record requests against the HIPAA right of access requirements and 2) through additional telephone surveys of health care institutions regarding release of records to patients. </sec> <sec> <title>RESULTS</title> Results: Based on the scores of responses of 51 health care providers to record requests and the responses of 3003 healthcare institutions to telephone surveys, more than 50% of health care providers are out of compliance with the HIPAA right of access. The most common failures were refusal to send records to patient or patient’s designee by e-mail; health care institutions’ responses to telephone survey also indicate 24% are potentially noncompliant with HIPAA’s fee limitations. With respect to actual patient record requests, for 71% of providers the records were provided in compliance with HIPAA only after supervisors and privacy officials were educated on HIPAA’s requirements. </sec> <sec> <title>CONCLUSIONS</title> Conclusions: Recent federal proposals prioritize patient access to medical records through certified electronic health record (EHR) technology, but access by patients to their complete clinical records via EHRs is years away. In the meantime, health care providers need to focus more attention on compliance with the HIPAA right of access, including better training of staff on HIPAA requirements. Greater enforcement of the law will help motivate providers to prioritize this issue. </sec> <sec> <title>CLINICALTRIAL</title> This is not a trial, and therefore is not subject to registration. It is research on institutional policies. </sec> <sec> <title>INTERNATIONAL REGISTERED REPORT</title> RR2-10.1101/19004291 </sec>" @default.
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- W4254551392 date "2019-08-13" @default.
- W4254551392 modified "2023-09-28" @default.
- W4254551392 title "Health Care Provider Compliance with the HIPAA Right of Individual Access: a Scorecard and Survey (Preprint)" @default.
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- W4254551392 doi "https://doi.org/10.2196/preprints.15850" @default.
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