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- W4280616533 abstract "Few qualitative studies have explored the lives of autistic women diagnosed in adulthood, despite this knowledge being essential to inform awareness of the intersection of autism and gender. This systematic review was undertaken to synthesise available qualitative evidence on the lived experience of autistic women diagnosed in adulthood. The accounts of 50 women from nine qualitative studies were synthesised using thematic analysis and four super-ordinate themes were identified: wanting to ‘fit in’; making sense of past experiences; developing a new ‘autistic identity’; and barriers to support. The autistic women spent many years without a diagnosis or autism-specific support, felt misunderstood, and experienced social exclusion. Following their diagnosis, they reframed these experiences into new ‘sense-making narratives’, used social media to contact other autistic people, and developed neurodiverse-affirming autistic identities. The studies suggested that health and social care professionals were not always able to recognise, refer, diagnose, and support autistic women effectively. Points of interestIn childhood, the autistic women who participated in the nine reviewed studies remembered feeling that they were ‘weird’ or ‘alien’ and being bullied due to their difficulties with socialisingThese participants imitated their more ‘easy-going’ friends in social situations to keep up appearances and look as if they were in controlAfter their diagnosis, the autistic women felt more able to be themselves, rather than trying to be the ‘ideal’ person that others expected them to beThe women who participated in the studies believed that, if they had been diagnosed in childhood, they would have coped better with dangerous situations they had encountered during their livesMost of the women in the studies felt proud of their autistic identity and the success they had achieved, despite the number of challenges they had faced" @default.
- W4280616533 created "2022-05-22" @default.
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- W4280616533 creator A5016278639 @default.
- W4280616533 creator A5050125768 @default.
- W4280616533 date "2022-05-20" @default.
- W4280616533 modified "2023-10-05" @default.
- W4280616533 title "Sense-making narratives of autistic women diagnosed in adulthood: a systematic review of the qualitative research" @default.
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