FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W4283701271> ?p ?o ?g. }

• W4283701271 endingPage "1987" @default.
• W4283701271 startingPage "1979" @default.
• W4283701271 abstract "The lack of racial/ethnic diversity in research potentially limits the generalizability of findings to a broader population, highlighting the need for greater diversity and inclusion in clinical research. Qualitative research (i.e., focus groups) was conducted to identify (i) the potential motivators and barriers to study participation across different races and ethnicities; (ii) preferred delivery of education and information to support healthcare decision-making and the role of the community.Patient focus groups were conducted with 26 participants from the sponsor's Patient Engagement Research Councils selected through subjective sampling. Recruitment prioritized adequate representation across different race/ethnic groups. Participation was voluntary and participants underwent a confidential interview process before selection. Narrative analysis was used to identify themes and draw insights from interactions. Experienced research specialists identified emerging concepts, and these were tested against new observations. The frequency of each concept was examined to understand its importance.Based on self-selected race/ethnicity, participants were divided into five focus groups (Groups: African American/Black: 2; Hispanic/Latino, Asian American, and white: 1 each) and were asked to share their experiences/opinions regarding the stated objectives. Barriers to study participation included: limited awareness of opportunities to participate in research, fears about changes in standard therapy, breaking cultural norms/stigma, religion-related concerns and mistrust of clinical research. Participants identified the importance of transparency by pharmaceutical companies and other entities to build trust and partnership and cited key roles that communities can play. The perceptions of the African American group regarding diversity/inclusion in research studies appeared to be different from other groups; a lack of trust in healthcare providers, concerns about historical instances of research abuse and the importance of prayer were cited.This study provided insights into barriers to study participation, and also highlighted the need for pharmaceutical companies and other entities to authentically engage in strategies that build trust within communities to enhance recruitment among diverse populations.The data collected in the present study was provided by the participants in the focus groups." @default.
• W4283701271 created "2022-06-30" @default.
• W4283701271 creator A5000621068 @default.
• W4283701271 creator A5025836558 @default.
• W4283701271 creator A5029492283 @default.
• W4283701271 creator A5078565932 @default.
• W4283701271 creator A5088311665 @default.
• W4283701271 creator A5089912285 @default.
• W4283701271 date "2022-06-28" @default.
• W4283701271 modified "2023-10-10" @default.
• W4283701271 title "Improving diversity in study participation: Patient perspectives on barriers, racial differences and the role of communities" @default.
• W4283701271 cites W1118293217 @default.
• W4283701271 cites W1498511802 @default.
• W4283701271 cites W1561620361 @default.
• W4283701271 cites W177630580 @default.
• W4283701271 cites W1939947548 @default.
• W4283701271 cites W1970064314 @default.
• W4283701271 cites W1979046034 @default.
• W4283701271 cites W1986360186 @default.
• W4283701271 cites W1992914480 @default.
• W4283701271 cites W2001323802 @default.
• W4283701271 cites W2031438684 @default.
• W4283701271 cites W2032159952 @default.
• W4283701271 cites W2047434654 @default.
• W4283701271 cites W2049320250 @default.
• W4283701271 cites W2064790183 @default.
• W4283701271 cites W2074048861 @default.
• W4283701271 cites W2075765029 @default.
• W4283701271 cites W2084603631 @default.
• W4283701271 cites W2089965036 @default.
• W4283701271 cites W2091747195 @default.
• W4283701271 cites W2107954772 @default.
• W4283701271 cites W2109575571 @default.
• W4283701271 cites W2123739709 @default.
• W4283701271 cites W2148029531 @default.
• W4283701271 cites W2150322439 @default.
• W4283701271 cites W2152634711 @default.
• W4283701271 cites W2409825351 @default.
• W4283701271 cites W2564416525 @default.
• W4283701271 cites W2568091290 @default.
• W4283701271 cites W2592531833 @default.
• W4283701271 cites W2603257905 @default.
• W4283701271 cites W2607917317 @default.
• W4283701271 cites W2775049903 @default.
• W4283701271 cites W2778461957 @default.
• W4283701271 cites W2788630491 @default.
• W4283701271 cites W2891533221 @default.
• W4283701271 cites W2898518424 @default.
• W4283701271 cites W2900081888 @default.
• W4283701271 cites W2921762829 @default.
• W4283701271 cites W2942699921 @default.
• W4283701271 cites W2983391999 @default.
• W4283701271 cites W2998034180 @default.
• W4283701271 cites W3000389298 @default.
• W4283701271 cites W3035260924 @default.
• W4283701271 cites W3041067437 @default.
• W4283701271 cites W3044203833 @default.
• W4283701271 cites W3104101591 @default.
• W4283701271 cites W3163666194 @default.
• W4283701271 cites W3164266836 @default.
• W4283701271 cites W3193759217 @default.
• W4283701271 cites W4283701271 @default.
• W4283701271 doi "https://doi.org/10.1111/hex.13554" @default.
• W4283701271 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/35765232" @default.
• W4283701271 hasPublicationYear "2022" @default.
• W4283701271 type Work @default.
• W4283701271 citedByCount "9" @default.
• W4283701271 countsByYear W42837012712022 @default.
• W4283701271 countsByYear W42837012712023 @default.
• W4283701271 crossrefType "journal-article" @default.
• W4283701271 hasAuthorship W4283701271A5000621068 @default.
• W4283701271 hasAuthorship W4283701271A5025836558 @default.
• W4283701271 hasAuthorship W4283701271A5029492283 @default.
• W4283701271 hasAuthorship W4283701271A5078565932 @default.
• W4283701271 hasAuthorship W4283701271A5088311665 @default.
• W4283701271 hasAuthorship W4283701271A5089912285 @default.
• W4283701271 hasBestOaLocation W42837012713 @default.
• W4283701271 hasConcept C109359841 @default.
• W4283701271 hasConcept C125209646 @default.
• W4283701271 hasConcept C137403100 @default.
• W4283701271 hasConcept C138496976 @default.
• W4283701271 hasConcept C138816342 @default.
• W4283701271 hasConcept C144024400 @default.
• W4283701271 hasConcept C15744967 @default.
• W4283701271 hasConcept C159110408 @default.
• W4283701271 hasConcept C17744445 @default.
• W4283701271 hasConcept C190248442 @default.
• W4283701271 hasConcept C19165224 @default.
• W4283701271 hasConcept C199539241 @default.
• W4283701271 hasConcept C2250968 @default.
• W4283701271 hasConcept C27158222 @default.
• W4283701271 hasConcept C2781316041 @default.
• W4283701271 hasConcept C2908647359 @default.
• W4283701271 hasConcept C36289849 @default.
• W4283701271 hasConcept C509550671 @default.
• W4283701271 hasConcept C56995899 @default.
• W4283701271 hasConcept C71924100 @default.
• W4283701271 hasConcept C77805123 @default.

• next