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• W4288702337 abstract "In this paper we explore accounts of eight British women living with Lynch Syndrome: a hereditary syndrome that increases the risk of developing bowel and gynecological cancers. We collected data via semi-structured interviews and analyzed them using Interpretative Phenomenological Analysis. Two themes, 'It's Up to Us': The Lynch Patient Experience; and 'The Biggest Challenge': The Lynch Parent Experience, illustrate the experiential burden and emotional labor of living with Lynch Syndrome. We theorize our analysis through Corbin and Strauss's concept of 'Health Work', and Hochschild's concept of 'Emotion Work'. Recommendations for clinical care and familial support are discussed." @default.
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• W4288702337 date "2022-07-29" @default.
• W4288702337 modified "2023-09-23" @default.
• W4288702337 title "Living in the shadow of Lynch Syndrome: British women’s accounts" @default.
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• W4288702337 doi "https://doi.org/10.1080/07399332.2022.2101652" @default.
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